|
An Overview
and Annotated Bibliography
U.S. Department of Health and Human Services
Health Resources and Services Administration
Office of Rural Health Policy
This document was prepared under HRSA contract
#03H1163080D, U.S. Department of Health and Human Services, Health
Resources and Services Administration, Office of Rural Health Policy.
Contents
Foreword
Preface
Chapter 1-Rural America Today
Chapter 2-Epidemiological
Overview of Mental Health in Rural America
Chapter 3-Epidemiological
Overview of Substance Abuse in Rural America
Chapter 4-Mental Health Service
Delivery in Rural Areas: Organizational and Clinical Issues
Chapter 5-Workforce Development
Chapter 6-Where to Go From
Here: Rural Mental Health in the 21st Century
A User's Guide to the Annotated
Bibliography
Annotations
Foreword
| It is with pleasure that we offer
you this third edition of Mental Health and Rural America. This
work, which provides a comprehensive overview and annotated
bibliography, focuses upon the period of 1994-2005. The preceding
editions of this work are some of the most cited in rural mental
health.
What we see in these bodies of work are the challenges facing
rural America in meeting the needs of its citizens with mental
illnesses and substance use disorders. Beyond the challenges,
the opportunities captured and unique solutions are also reported.
Mental Health and Rural America: 1994-2005 seeks to concisely
present a comprehensive summary of the current knowledge base
around mental health issues in rural and frontier America.
This information, it is hoped, will be a valuable resource
across the spectrum of rural mental health, from local community
planning to national policy development.
This publication was developed by the Federal Office of
Rural Health Policy, Health Resources and Services Administration
in cooperation with the Mental Health Program of the Western
InterState Commission for Higher Education (WICHE). Rural
America is a diverse environment in every way, including its
cultures, landscapes, and economies. There is "no one
rural", but there are many rural myths. This book will
provide the reader with an array of information to begin to
help understand the facts of rural mental health today at
the beginning of the 21st Century.
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While many things have changed
over the course of the 30 years since the first book in this
series was published, too many challenges facing rural mental
health systems of care remain unresolved. Rural America suffers
critical shortages of mental health professionals, and the percent
of rural Americans who are underserved has remained unchanged
across this span of time.
Financing for rural mental health services remains problematic
today, with rural Americans too often being priced out of
the health insurance marketplace, and the coverage that many
rural Americans can afford does not provide benefits for mental
health or substance use care.
It appears clear today, after decades of study that rural
Americans suffer from mental illnesses and substance use disorders
at rates similar to their urban peers. It is also clear, that
while the prevalence and incidence rates may be evenly distributed
and rurality does not in itself increase the possibility that
rural Americans may be at significantly increased risk for
poor health outcomes, the resources to address their mental
health and substance use disorders are either not available
or not accessible.
Mental Health and Rural America: 1994-2005, provides a solid
resource to assist Federal, State, and local efforts to improve
quality mental health and substance use policy and services
for rural America.
|
Marcia K. Brand, Ph.D.
Associate Administrator for Rural Health, HRSA |
Dennis F. Mohatt. Director
WICHE Mental Health Program |
Preface
Mental Health and Rural America:1994-2005
represents the third edition of a comprehensive overview and annotated
bibliography focused on rural mental health. The previous editions
(Flax, Wagenfeld, Ivens & Weiss, 1979; and Wagenfeld, Murray,
Mohatt & DeBruyn, 1994) have been frequently cited in the rural
mental health literature and have served as valuable sources of
information relating to rural mental health in the United States.
The previous editions, and the current,
have reviewed the environment of rural mental health at points-in-time
over the past three decades. Not surprising to those engaged daily
in the delivery of mental healthcare in rural America, much has
changed and much has remained the same across this span of time.
This new edition will examine both what is new and what remains
unchanged.
Support for Mental Health and Rural America:
1994-2005 has been made available by the Federal Office of Rural
Health Policy (ORHP) in the Health Resources and Services Administration
(HRSA), U.S. Department of Health and Human Services (HHS). ORHP
is the "focal-point" for coordination of rural health
services for HHS. ORHP also supported the production of the second
edition, in the early 1990s, and has provided strong leadership
since its establishment in including mental health in its rural
health vision. The Mental Health Program of the Western InterState
Commission for Higher Education (WICHE) was selected to edit and
coordinate its production. Since 1955, the WICHE mental health program
has worked to support mental health system improvement and workforce
development. It is fitting the publication of this Third edition
coincides with the 50th anniversary of the WICHE mental health program.
The production of this third edition also marks
the departure of Morton O. Wagenfeld from the editorial team. Dr.
Wagenfeld has happily and gainfully retired from a prestigious academic
and research career at Western Michigan University.
Mortie was a true mentor to generations of many
of us with a passion for rural mental health and rural America.
His lively mind, and eye for what makes a difference, resulted in
a significant body of rural mental health research and analysis.
His work is a gift to us all.
In keeping with the style and content of the
previous editions, the Third edition seeks to provide a single-source
of current rural mental health information. The focus is upon the
period of 1994-2005. The volume is divided into two sections: the
narrative overview and annotated bibliography. These two sections
are integrated, however not all annotated references have been cited
in the narrative section or vice versa. The material utilized in
this document was discovered through electronic library searches
of mental health and health related archives and indexes. The editors
reviewed the enormous amount of material and selected those that
together seemed to provide a clear and comprehensive picture of
the rural mental health environment today. The electronic search
was augmented by numerous colleagues who offered their insights,
knowledge, and assistance.
In the midst of the "information age,"
when a simple Google search reveals 26,500+ hits for the term
"rural mental health," the need for this work is even
more important to provide a source of context, review, and analysis
of the vast array of data and information that can sometimes be
overwhelming and often more than a little confusing. The world of
the personal computer and internet access is also one of the most
significant differences between this edition and the previous volumes.
The current edition will include citations of material published
on websites, something not cited in past editions.
The development of the Mental Health and Rural
America: 1994-2005, coincided with the WICHE Mental Health Program's
work with the Rural Issues Subcommittee of the President's New Freedom
Commission on Mental Health and the development of the Rural Issues
Background Paper released for public access in 2005. The work of
the President's Commission has truly created new momentum across
the nation to transform mental healthcare, and has brought serious
attention to rural mental health. The Commission's Rural Issues
Subcommittee Chairperson, Nancy Speck, Ph.D., provided extraordinary
guidance to these parallel review efforts.
Blanca Fuertes, from the staff of the Federal
Office of Rural Health Policy, served as the project officer for
the development of Mental Health and Rural America: 1994-2005 and
provided both good counsel and technical advice. The support of
ORHP was essential to making the notion of a third edition a reality.
The leadership of ORHP Director, Marcia Brand, and Deputy Director,
Tom Morris, was critical in making this project move from a good
idea to a finished product. We also acknowledge the support and
guidance of many colleagues from across the nation. Dr. Anthony
Pollitt, from the National Institute of Mental Health (NIMH) Office
of Rural Mental Health Research, was always prepared to field a
research question and assist our efforts to identify key studies.
Dr. David Lambert, past-President of the National Association for
Rural Mental Health, and Steve Wilhide, former Executive Director
of the National Rural Health Association, were always responsive
to requests for information and policy analysis. Finally, Jenny
Shaw, the WICHE mental health administrative and project coordinator
provided the organizational focal point for putting it all together.
Thank you for the hard work.
Transforming mental health in America is the
battle cry today, as a result of the work of the President's New
Freedom Commission on Mental Health. Other reports such as the
Institute of Medicine Report Quality through Collaboration: The
Future of Rural Health (2005) also emphasize the need for better
coordination of care and collaboration among providers of services
and their communities. Rural mental health is on the agenda, and
the leadership within HRSA and SAMHSA are taking rural seriously.
From rural mental health workforce development to scientific discovery,
rural America has often simply not been taken into account, it is
our hope that Mental Health and Rural America: 1994-2005
helps support those many individuals from across our vast nation
make rural count.
Dennis F. Mohatt
Mimi M. Bradley
Scott J. Adams
Chad D. Morris
Western InterState Commission for Higher Education
Boulder, Colorado
January 2005
1
Rural America Today
There is not one rural America. The rural United
States is a place of great diversity, which is perhaps a surprise
to many in the majority metropolitan population. Rural is many small
places scattered across the vast landscape of America.
In the eastern half of the nation, rural is the
green space between the large metropolitan areas from Maine to Florida,
the little towns and villages off the InterState 95 corridor, the
isolated places of Appalachia, the Deep South, the Ohio and Mississippi
river valleys. This rural America is much more densely populated,
with many small towns spread along the twisting two-lane highways
and back roads that lace the region like a spider's web. The State
with the largest rural population is Pennsylvania, with over 2.8
million rural residents, while in Vermont, over 60 percent of the
population is rural.1
Crossing the Mississippi River marks the beginning
of a different rural. The density begins to thin, the little towns
and villages becoming increasingly spread apart. The twisting roads
give way to a uniform grid of roads, which follow the checkerboard
like section lines. Finally, out past the 100th meridian, precipitation
becomes a welcome albeit infrequent event and the population becomes
so lean and remote it is referred to by many as frontier. Large
metropolitan areas exist like island fortresses, and rural dominates
the landscape. While satellite pictures of the eastern U.S. at night
emanate a glow, much of the west is darkness. The west coast again
emulates the pattern of the east, with the population density high
along the InterState 5 corridor, and thinning proportionate to distance
from it.
Rural America has always been a place of diversity.
The picture many hold of a homogeneous agrarian hinterland is simply
a myth. Even prior to European discovery, diversity was the norm
with an indigenous population made up of hundreds of tribes speaking
nearly as many different languages. Some farmed in settlements,
while others were nomads. Small places may have been the norm, but
even then these places were very different.
This chapter will provide a picture of the demographics
and socioeconomic landscape of the United States and attempt to
share what is clear about rural America at the close of the 20th
and beginning of the 21st century. It cannot be a complete picture,
but it will be a complex illustration.
What's Rural?
A myriad of methods for determining what physically
constitutes rural versus non-rural areas of the United States is
employed by the Federal government. No consistent definition is
used across agencies or programs (HHS, 2002). For the purposes of
this book, the terms rural and nonmetro will be used
interchangeably, as will the terms urban and metro.
When programs are implemented to provide health
services to rural areas, they immediately encounter the problem
that there are no operational definitions of "rural areas"
that precisely divide the population of the United States into "rural
residents" and "urban residents."
The two most commonly used definitions are by
the Office of Management and Budget (OMB) and the Census Bureau.
All information for the following section was cited from OMB, Census
Bureau and Economic Research Service data. Over the past 10 years,
many sources encouraged the OMB to classify the entire United States
into population categories and to not leave any regions outside
urban areas as unclassifiable.
In June 2003, the OMB released a new classification
system to define metropolitan (i.e., metro or urban) and nonmetropolitan
(i.e., nonmetro, micropolitan, or rural) areas based on census data
from 2000. The OMB previously defined metropolitan areas by central
counties with one or more cities of at least 50,000 residents or
with an urbanized area of 50,000 or more and total area population
of at least 100,000. Counties surrounding these areas were included
if they met two primary criteria: 1) they were both economically
tied to the central county measured by daily commuting and 2) they
showed a level of "metropolitan character" defined by
population density, urbanization and population growth. However,
a county with high "metropolitan character" would be included
even though only 15 percent of it workers commute, but a county
low in "metropolitan character" would be classified as
nonmetro no matter how high the commuting percentage to the main
county.
In the new "core-based statistical area"
system, OMB defined metro by the following two characteristics:
1) central counties with one or more urbanized areas and 2) outlying
counties that are economically tied to the core counties as measured
by the amount of people who commute for work. Outlying counties
are included in the metro classification if 25 percent of workers
living in the county commute to the metro counties, or if 25 percent
of the employment in the county consists of workers coming out from
the metro counties (i.e., reverse commuting).
The OMB defines nonmetro as those counties outside
the boundaries of metro areas. These nonmetro counties are then
subdivided into two types: 1) micropolitan areas and 2) noncore
counties.
Micropolitan areas are defined by clusters of 10,000 or more persons.
All remaining areas are classified as "noncore" counties.
The Census Bureau modified its measurement procedures
for rural and urban areas in 2003 as well. An urbanized area
is defined by a region with at least 50,000 people. The Census Bureau
added the definition of urban cluster, measured by at least
2,500 people but no more than 50,000 people. Rural is still
defined by small settlements of less than 2,500 people. However,
the Bureau now identifies small towns and cities that have adjoining
towns or suburbs. For example, if a town of 3,000 people has 300
residents living in thinly settled portions, the 300 are classified
as rural and the 2,700 are classified as an urban cluster.
Map 1

New classification parameters within the OMB and
the Census Bureau have led to significant shifts in the description
of rural geography and population data. These shifts highlight the
diversity that exists in non-urban areas in America. New population
measurement procedures will allow for better and more complete data
collection in rural areas. Better data will ultimately lead to increased
understanding of rural population trends and attention from policymakers
and other interested parties.
Extensive discussions of the implications of this
array of definitions to health and human services programs have
been published by Hewitt (1989), Wagenfeld, Murray, Mohatt &
DeBruyn (1994) and Ciarlo, Wagenfeld & Mohatt (1996).
Despite advances in making rural definitions more
precise, the fact that the OMB and the Census Bureau categorize
regions slightly differently leads to disparate population results.
For example, according to the OMB definition, rural America comprises
17 percent (49 million) of the population, compared to 21 percent
(59 million) by the Census definition. Researchers and policy makers
need to be aware of which definition is used and that it is used
consistently throughout a study or document.
According to the Census Bureau definitions, in
2000, 68 percent of Americans lived in urbanized areas, 11
percent lived in urban clusters and 21 percent in rural
areas. In the OMB's recent population data (also from 2000), 298
formerly nonmetro counties are now classified as metro and 45 metro
counties were reclassified as nonmetro. These recent statistics
reflect the pattern of urban growth over the past decade as well
as highlight the new system for metro and nonmetro classification.
Defining rural does make a difference in ensuring
limited resources intended to address critical rural needs actually
are transmitted to locations that have those needs. The President's
New Freedom Commission on Mental Health, Subcommittee on
Rural Issues (NFC-SRI, 2004) recommended DHHS adopt a single definition
that was precise enough to capture the diversity of rural America
as to enable focused targeting of Federal resources to address specific
rural needs.
Rural Demographics
For rural America to be taken into account, it
is essential that the reality of rural be understood instead of
the myths. Many myths exist, and perhaps the most persistent is
the notion of rural America being synonymous with agriculture and
farms. There is a persistent image of rural areas being a patchwork
of family farms surrounding tranquil communities. Today, less than
10 percent of the rural population live on farms and people in rural
areas are engaged in a wide range of activities.
In 1992, only 7.6 percent of rural employment
was in farming (ERS/USDA 1995:5). Service employment, on the other
hand, accounted for 50.6 percent and has experienced the greatest
growth over the past two decades. Even in areas of the U.S. with
the greatest percentage of farm employment, non-farm employment
still accounts for nearly 80 percent of jobs. Simply Stated, most
family farmers supplement their farm-based income with non-farm
employment (ERS/USDA, 1995:12).
The family farm is fading from the rural landscape,
with a continued decline in the number of family farms during the
past decade, which continues a trend established for over a half-century.
Family farms are broadly defined here to include family-held corporations
and partnerships, as well as sole proprietorships. Census of agriculture
data confirms that family-owned farms are not losing their share
of U.S. farm product sales in relation to non-family corporations.
Non-family corporations comprised a relatively stable and minor
share (0.3 to 0.4 percent) of total U.S. farm numbers between 1978
and 1997, while their share of total farm product sales actually
fell, from 6.5 percent in 1978 and 1982 to 5.6 percent in 1997.
Socio-economic factors play an important role
in the accessibility of health and human services. Rural employment
is dominated by low wages, and rural incomes are less than those
in urban areas. In 1996, 23 percent of rural workers were employed
in the service sector and were nearly twice as likely to earn the
minimum wage as their urban peers (U.S. Congress, 2002). Compared
to urban workers, rural citizens are more likely to be unemployed
and less likely to move out of low wage jobs. Rural working families
are more likely to be poor than working urban families.
More than 25 percent of rural workers over age
25 earn less than the Federal poverty rate of $18,390, and 600 (23
percent) rural counties are classified as persistent poverty counties
by the U.S. Government. According to the Economic Research Service
(ERS) website (http://www.ers.usda.gov/),
the rural low-wage employment was 24 percent versus 16.6 percent
in urban areas. The higher incidence of nonmetro poverty compared
with metro poverty has existed since the 1960s when poverty rates
were first formally recorded.
Rural economies benefited from the economic expansion
during the 1990s. In addition, recent data on metro and nonmetro
employment change shows substantial employment growth in nonmetro
areas since mid-2002, based on the 2003 classification of metropolitan
status. Micropolitan and noncore counties are now experiencing employment
growth at a rate of more than 1 percent a year (ERS, 2005).
Over the last decade, nonmetro employment growth
has generally been fastest in the West even in times of economic
slowing. The slowdown had the greatest effect on nonmetro employment
growth in the South and the Midwest (ERS, 2005).
Nonmetro unemployment rates were highest in mining
counties during the 1990s, but this changed around the year 2001.
After a relatively positive experience in the 1990s, manufacturing
counties experienced a sharp increase in unemployment in 2001 and
currently have the highest unemployment rate of any county economic
type (ERS, 2005).
Child poverty is higher in rural areas, with more
than half of all rural children (3.2 million) in female-headed households
living in poverty. Children of color are particularly at risk, with
46.2 percent of rural African American, 43 percent of rural Native
American, and 41.2 percent of rural Hispanic children living in
poverty (U.S. Congress, 2002).
People of color constituted about 17 percent of
the rural population in 1997, compared with about 25 percent of
the overall U.S. population. A disproportionately large number of
Native Americans-nearly half of the overall Native American population-live
in rural areas. The rural white population is roughly proportional,
with 23 percent of whites living in rural areas. The remaining major
ethnic and racial groups are underrepresented in rural areas. Fifteen
percent of African Americans, nine percent of Hispanics, and five
percent of Asians and Pacific Islanders are rural.
Poverty rates by race indicate that non-Hispanic
Black people have the highest incidence of rural poverty at a rate
of approximately 30 percent. One out of every four Hispanics living
in rural areas lived in poverty in 2003. The above statistics exceed
the rate of poverty for non-Hispanic White people in rural areas,
which was 11 percent in 2003. The high poverty level for Hispanic
people is remarkable as their share of the rural population has
been increasing in the past 10 years (ERS, 2005).

As for rural population,
some places are growing, while many are not. During the 1990s, 2.2
million more people moved from the city to the country than vice
versa, reversing a trend of rural outmigration established during
the early 20th century. During this same time period, 70 percent
of rural counties grew in population, but the pace of growth slowed
during the end of the decade of the 1990s (U.S. Congress, 2002).
Since the mid-1990s, all rural counties (except
rural commuter counties) have experienced reduced rates of population
growth and the rural rate of growth is only half the rate of urban.
The great plains has experienced the most significant population
loss, and depopulation of some frontier counties (those counties
with fewer than six persons per square mile). These population trends,
especially population loss, strain the resources available to sustain
comprehensive systems of health and human services (NFC-SRI, 2004).
Rural educational levels continue to be less than
those in urban environments. Fewer rural adults have a college education
than do urban adults (15 percent versus 28 percent), and the number
of rural adults without a high school diploma is greater than in
urban areas (20 percent versus 15 percent). Fewer young adults in
rural areas seek higher education. Since the high school graduation
levels match or exceed urban levels, clearly these graduates are
leaving rural America more often than are their non-graduating peers,
making the "best and brightest" a chief rural export (U.S.
Congress, 2002).
This out-migration of capable young persons limits
the pool of local persons available to train and staff health and
human service systems. As a result many services are provided by
persons who are not indigenous to the rural communities they serve,
and often are only available on an itinerant basis (NFC-SRI, 2004).
Immigration is changing rural America in some
places. While most immigrants (about 95 percent) settle in large
metro areas, those who move to rural areas concentrate in a few
locations (Effland & Butler, 1997). For example, Texas is home
to 17 percent of the total rural immigrant population of the United
States. The West accounts for about seven percent of the nation's
rural immigrants. Overall, immigrants to rural areas comprise only
two percent of the total rural population. The single largest group
of rural immigrants is Mexican, whose share in rural immigrants
has increased from 48 percent in the 1980s to 57 percent in 1990s.
Rural America is home to numerous social, cultural,
religious and language differences. These differences are a part
of the reason why it is difficult to capture a cultural understanding
of rural America as a whole. While there are many similarities (e.g.,
small community), rural areas also differ from region to region.
For example, a rural community in the Northeast is likely very different
culturally from a small town in Alaska. These differences are distinguished
by the ethnicities that reside there, the political climate of the
State and other economic and social factors that are indigenous
to the area.
Data on homelessness in rural is limited and does
not reflect the true number of homeless, as efforts to identify
homeless persons often depend upon formal systems of support (e.g.
shelters) and often miss rural homeless who may be outside of rural
support systems. However, according to the National Coalition for
the Homeless (1997), "studies comparing urban and rural homeless
populations have shown that homeless people in rural areas are more
likely to be white, female, married, currently working, homeless
for the first time and homeless for a shorter period of time"
(p. 1).
Rural Mental Health
Demographics, economics and cultural values have
a dynamic impact upon mental health and mental health care. The
prevalence and incidence of adults with severe mental illnesses
and children with serious emotional disturbances are not significantly
different in rural and urban areas. What differs in rural America
is the experience of individuals with mental illnesses and their
families (Wagenfeld et al., 1994). Too often, that experience seems
to result in higher suicide rates for both rural adults with mental
illnesses and children with serious emotional disturbances (George
Mason University, 2000).
The different experiences that rural persons with
mental illnesses face are influenced by three factors (variables)
that may prevent them from receiving the mental health care they
need:
- Accessibility
- Availability
- Acceptability
These variables lead rural residents with mental
health needs to: enter care later in the course of their disease
than do their urban peers; enter care with more serious, persistent
and disabling symptoms and require more expensive and intensive
treatment response (Wagenfeld et al., 1994).
Accessibility: The New Freedom Commission
on Mental Health, Subcommittee on Rural Issues (2004) identified
three significant components of access to mental health services
that put rural residents at a significant disadvantage: knowledge,
transportation and financing.
An essential element of access is knowing when
one needs care and where and what care options are available
to address needs. In both respects, the rural experience differs
from the urban one. The frequently noted myth of an idyllic rural
existence persists (HHS Rural Task Force, 2002). This myth, when
widely held, becomes a barrier to creating an impetus for action
to address rural mental health problems.
The perception of need
for care is the first step in seeking care, and rural residents
enter care later than do their urban peers due to a lower perception
of need-a problem that is then compounded by their perceiving less
access to care. Empirical studies show that lower access to mental
health services is directly related to lower availability or supply
of mental health providers (Lambert & Agger, 1995). The barrier
to care posed by provider availability in rural areas is discussed
further in the next section.
The ability to travel to services and to pay for
those services if accessed is a significant barrier to rural persons.
Physically and psychologically accessible and affordable transportation
services may be unavailable, especially to rural children, people
with disabilities and the elderly. Public transportation is often
not an option to rural consumers of mental health services. As a
result, many rural mental health providers operate some form of
transportation service to bring consumers to care-an operational
cost not often incurred by their urban counterparts. Rural consumers
and families must often travel hundreds of miles weekly to access
care available only in larger communities that serve as "regional
centers of trade."
Employment-based health insurance covers a wide
variety of health services for Americans, and is the most common
form of health insurance coverage in the United States, covering
64.9 percent of the non-elderly population and 34.4 percent of the
elderly population in 1998. Size matters; often small employers
do not offer a full range of benefits and employers with 50 or fewer
workers were exempt from the Mental Health Parity Act of 1996. Retiree
health benefits have steadily declined over the past decade, with
only 30 percent of employers offering retiree health benefits in
1998, as compared to 40 percent in 1993 (McDonnell & Fronstin,
1999). A similar dramatic decline occurred for mental health benefits,
where per employee expenditures for behavioral health benefits have
gone from $151.54 in 1988 to $69.61 in 1997 (The Hay Group, 1998).
For rural Americans, the cost of health services
(only partially reimbursed by Medicare Part B; or at a discount
by Medicaid) may be too expensive-especially prescription drugs.
Small group and individual purchasers, who often cannot afford comprehensive
policies, dominate the rural health insurance marketplace. As a
result, these policies often have large deductibles, and limited
or no behavioral health coverage (McDonnell & Fronstin, 1999).
Rural residents also have longer periods of time without insurance
than do their urban peers and, hence, a greater likelihood of pent-up
demand. Also, they are more likely not to seek physician services
when they cannot pay, both because of pride and limited opportunities
for free or reduced-fee clinical care (Mueller, Kashinath &
Ullrich, 1997).
Parents who have children with mental health problems
but limited or no ability to pay for treatment may have to face
a disturbing option: relinquishing custody of the child in order
to obtain needed services. Multiple groups have commented on this
practice, including the National Alliance for the Mentally Ill (NAMI),
the Bazelon Center for Mental Health Law, and the Federation of
Families for Children's Mental Health (FFCMH). 2
It is beyond the scope of this document to present
all the issues related to relinquishment of custody to receive services.
However, a report by the FFCMH lists the consequences of relinquishment.
They State:
"These public practices:
- Lead children to believe they have been abandoned
by their family into the care of the State thus irreparably harming
the bond between the child and family;
- Force parents to make an otherwise unthinkable
choice between retaining responsibility for and a relationship
with their children and giving over decision-making authority
and control to a State agency in order to obtain the help their
child desperately needs;
- Waste public funds by keeping children as wards
of the State when their basic needs could otherwise be provided
by families who love them; and
- Force children into expensive residential placements
rather than promoting and supporting families with less costly
community-based services.
The implications of these phenomena can have a
significant bearing on rural mental health through limiting the:
- Supply pool of skilled individuals to staff
mental health programs;
- Availability of natural supports for persons
with serious mental illnesses and children with serious emotional
disturbances;
- Level of peer support and affiliations available
to create and sustain an environment that supports professional
recruitment and retention of mental health and allied staff; and,
- Financial resources available to support a
"continuum of mental health services" (Gamm, Tai-Seale & Stone,
2002).
Rural mental health systems can rarely
operate without direct or indirect governmental subsidy; this is
especially true for programs serving persons with serious mental
illness (SMI) or children with severe emotional disturbances (SED)
(Wagenfeld, 2000).
Availability: The availability of rural mental health services
and providers is seriously limited in rural communities. Over 85
percent of the 1,669 Federally designated mental health professional
shortage areas (MHPSAs) are rural (Bird, Dempsey & Hartley,
2001). According to the National Advisory Committee on Rural Health
(1993), of the 3,075 rural counties in the United States, 55 percent
had no practicing psychologists, psychiatrists, or social workers,
and all of these counties identified were rural.
It is often difficult to recruit and keep
professionals in rural areas. Although there have been government-subsidized
programs (e.g., student loan repayment), they have only had a minimal
effect in solving the mental health workforce shortage in rural
areas. Furthermore, it is often difficult for mental health providers
with spouses or partners to find work for both people. For those
brought up or currently living in urban or suburban areas, the transition
to life in a rural or frontier area can be difficult. Lower salaries
and a more limited range of social and other outlets may be disincentives
to move to such areas or motivators to return to urban centers.
Unlike the situation in general rural healthcare, specific Federal
strategies for sustaining a rural mental health infrastructure do
not exist (e.g., Community and Migrant Health Clinic Programs, Critical
Access Hospitals). Finally, rural programs often operate in areas
with disproportionately limited sources of financial resources to
leverage as matching funds in seeking to compete for Federal and
private foundations grant support.
Acceptability: Most Americans value self-reliance
or utilizing family or other close relationships to solve problems.
For this reason, many attach stigma to having or seeking help for
mental health or substance abuse problems. However, this appears
to be more of an issue in rural communities, as there is less anonymity
in seeking help. That is, belief in self-reliance and limited anonymity
combine to more significantly limit a rural person's likelihood
of seeking services.
On the provider side, Roberts, Battaglia
and Epstein (1999) described how rural caregivers face serious clinical
ethical dilemmas every day. Rural clinicians commonly provide care
without optimal supports, services and safeguards for their patients.
It is necessary at times to ration care; to provide care outside
of their usual areas of expertise and competence; to deal with patients'
"noncompliance" related to access problems; to respond
to complaints about colleagues' impairments and to make complex
clinical decisions about reproductive, end-of-life and quality-of-life
issues without the benefit of specialists.
Care requires addressing patients' potential for
self-harm and violence; dealing with the heightened social stigma
associated with mental disorders; protecting vulnerable patients
from potential abuse or exploitation and grappling with care planning
for individuals with impaired decision-making capacity. These ethical
issues are often more acute in rural or isolated health care settings
primarily because usual practices to ensure ethical conduct are
narrowed by the scarcity of health care resources.
References
Bird, D.C., Dempsey, P. & Hartley, D. (2001).
Addressing mental health workforce needs in underserved rural
area: Accomplishments and challenges. Portland, ME: Maine Rural
Health Research Center, Muskie Institute, University of Southern
Maine.
Ciarlo, J.A., Wackwitz, J.H., Wagenfeld, M.O.
& Mohatt, D.F. (1996). Focusing on "frontier":
Isolated rural America. Letter to the Field No. 2. Boulder,
CO: Frontier Mental Health Resource Network, WICHE Mental Health
Program, http://www.wiche.edu/mentalhealth/.
Effland, A. B. W. & Butler, M. A. (1997).
Fewer immigrants settle in nonmetro areas and most fare less well
than metro immigrants. Rural Conditions and Trends, 8(2),
60-65.
Economic Research Service; United States Department
of Agriculture. (Information accessed in 2005) http://www.ers.usda.gov/
ERS/USDA (1995). Understanding Rural America.
Agricultural Information Bulletin No. 710. Washington, D.C.: Economic
Research Service, U.S. Department of Agriculture.
Gamm, L., Tai-Seale, M. & Stone, S. (2002).
Meeting the mental health needs of people living in rural areas.
Rockville, MD: Center for Mental Health Services, SAMHSA, U.S. Department
of Health and Human Services.
Lambert, D. & Agger, M. (1995). Access of
rural Medicaid beneficiaries to mental health services. Health
Care Financing Review, 17(7), 133-145.
McDonnell, K. & Fronstin, P. (1999). EBRI
health benefits data book (1st ed.). Washington, D.C.: Employee
Benefit Research Institute.
Mueller, K., Patil, K. & Ullrich, F. (1997).
Lengthening Spells of Uninsurance and their Consequences. The
Journal of Rural Health, 13(1).
National Advisory Committee on Rural Health (1993).
Sixth annual report on rural health. Rockville, MD: Office
of Rural Health Policy, Health Resources and Services Administration,
HHS.
National Coalition for the Homeless (1997). Rural
homelessness (NCH Fact Sheet No. 13). Also available: http://www.nationalhomeless.org/publications/facts/Rural.pdf
(1998, November 10).
Office of Management and Budget (1990). OMB Circular
A-11. Preparation and Submission of Budget Estimates.
Office of Management and Budget (2003). OMB Bulletin
No. 03-04. http://www.whitehouse.gov/omb/bulletins/b03-04.html
Roberts, L. W., Battaglia, J., & Epstein,
R. S. (1999). Frontier ethics: Mental health care needs and ethical
dilemmas in rural communities. Psychiatric Services, 50(4),
497-503.
The Hay Group. (1998). Health care plan design
and trends. Arlington, VA: The Hay Group.
The President's New Freedom Commission on Mental
Health (2004). Achieving the Promise: Transforming Mental Health
Care in America. A final report. DHHS Pub. No. SMA-03-3832.
Rockville, MD.
The President's New Freedom Commission on Mental
Health (2004). Subcommittee of Rural Issues: Background Paper.
DHHS Pub. No. SMA-04-3890. Rockville, MD.
U.S. Census Bureau (2003). http://www.ers.usda.gov/Briefing/Rurality/NewDefinitions/.
U.S. Congress (2002). Why rural matters. In Fast
Facts [Electronic Version]. Washington, DC: Congressional Rural
Caucus. U.S. House of Representatives.
U.S. Health and Human Services Rural Task Force.
(2002). One department serving rural America (Report to the
Secretary). Washington, DC: U.S. Department of Health and Human
Services.
Wagenfeld, M.O. (2000). Organization and delivery
of mental health services to adolescents and children with persistent
and serious mental illness in frontier areas. Journal of the
Washington Academy of Sciences, 86(3), 81-88.
Wagenfeld, M.O., Murray, J.D., Mohatt, D.F., and
DeBruyn, J.C. (1994). Mental Health and Rural America 1980-1993:
An Overview and Annotated Bibliography. Rockville, Md. Office
of Rural Health Policy, HRSA, and Office of Rural Mental Health
Research, NIMH, NIH, 1994. NIH Publication No. 94-3500.
Notes for Chapter 1
1. Source: Northeast-Midwest Institute
calculations based on data from U.S. Department of Commerce, Census
Bureau, 2000 Census, Summary File 3, Table P.5 Urban and Rural,
data extracted via http://factfinder.census.gov.
2. For more information on these
organizations and the issue of relinquishing custody, please visit
the following websites: http://www.bazelon.org/issues/children/publications/index.htm;
http://www.ffcmh.org/;
http://www.nami.org/.
2
Epidemiological Overview of Mental
Health in Rural America
This chapter will review the epidemiologic evidence
for the prevalence of mental health disorders in rural areas of
the United States since the last publication of this book. In addition,
this section will address some of the clinical, social and policy
implications for rural communities as a result of the epidemiologic
data.
Historically, rural America has lacked the necessary
political influence to promote effective rural mental health policy
agendas (Ahr & Halcomb, 1985; Danbom, 1995; Dyer, 1997; Kimmel,
1992). Recent survey results indicate that rural health centers
and State organizations for rural health rated mental health as
a top priority (Gamm, Tai-Seale & Stone, 2002). Several Federal
projects including Rural Healthy People 2010, the President's New
Freedom Commission, Subcommittee on Rural Issues and the 1990
Surgeon General's report on Mental Health indicate the existence
of underserved mental health issues in rural communities. Recommendations
from these various reports are described throughout this chapter.
Prevalence
The most comprehensive and recent data indicate
that the prevalence and incidence of mental health problems are
similar between rural and urban populations (Kessler et al., 1994).
Current prevalence rates show that approximately 20 percent of the
United States population is affected by mental health issues each
year (Kessler et al., 1994). Additionally, although this book presents
mental health and substance abuse disorders in separate chapters,
it is important to keep in mind that these disorders often co-occur.
A study by Gogek (1992), found that approximately 40 percent of
mentally ill individuals in rural populations were using illegal
substances. This illustrates the importance of integrating services
through formal and informal collaboration and including substance
abuse statistics when discussing mental health.
The overall prevalence of substance abuse among
adults has frequently been shown to be comparable between rural
and urban areas. According to the Epidemiological Catchment Area
(ECA) Study, which compared rural and urban prevalence rates for
a large variety of psychiatric disorders, the rural lifetime prevalence
rate of these combined disorders was 32 percent, only slightly lower
than the 34 percent rate in urban areas (Robins & Reiger, 1991).
In a review of studies investigating the prevalence
of psychiatric disorders in rural primary care settings, Sears and
colleagues (2003) found that 34 to 41 percent of patients had a
mental health disorder. Additionally, results of studies of seriously
mentally ill individuals indicate that rural residents have poorer
outcomes (e.g., reliance on inpatient services, increased symptom
severity) when compared to urban residents, especially if there
are co-occurring substance abuse issues (Fisher, Owen & Cuffel,
1996; Rost et al., 1998).
One striking difference between rural and urban
populations is the higher rate of suicide in rural communities,
which has been a consistent trend for more than a decade (New
Freedom Commission Subcommittee on Rural Issues; NFC-SRI, 2004;
Institute of Medicine, 2002; Stack, 1982; Wagenfeld et al., 1994).
Specifically, the suicide rate for older adult (elderly) males and
Native American youth in rural populations is significantly higher
than in urban populations (Eberhardt, Ingram & Makuc, 2001).
Adults suffering from depression, who live in
rural areas, tend to make more suicide attempts than their urban
counterparts (Rost et al., 1998). However, Rost and colleagues (2002)
suggest that it is difficult to attribute these elevated suicide
rates to rurality per se because suicide comparisons have not been
adjusted for other variables such as income and education.
Women & Families
Rural families often experience stress because
of the high poverty rates, high unemployment rates and low educational
opportunities (Champion, 2002; Human & Wasem, 1991). Women living
in rural areas are particularly affected by these barriers of rural
culture and are at a higher risk for abuse (Boyd, 2000; Champion,
1999; Champion, 2002; Dimmitt, 1995). Because of the small size
of rural communities and a lack of anonymity, it may be very difficult
for women to leave abusive or dangerous relationships, which is
compounded by a lack of mental health and other community services.
Health providers, especially in rural communities, need to be aware
of the complex emotional repercussions of abuse (emotional or physical),
such as depression and other mood disturbances. Studies have found
additional factors associated with depression in rural women, including
isolation, declining farm economy (making income unpredictable)
and the lack of social, educational and childcare resources (Bushy,
1993; Hauenstein & Boyd, 1994).
Rural women are more likely to seek mental health
treatment than rural men, but both are more likely to utilize mental
health care services if they have previously sought mental health
treatment in the past (Kenkel, 2003). Hauenstein and Boyd (1994)
found that 41 percent of their sample of rural women reported depressive
symptoms, which contrasts with the typical urban prevalence rates
of 13 to 20 percent. Several factors including age, employment status
(i.e., unemployed) and lack of education were associated with more
depressive symptoms (Hauenstein & Boyd, 1994). Despite the fact
that depression is common in rural areas (i.e., 40 percent of all
patient visits to primary care physicians), rural doctors detect
50 percent less depression in their patients than their urban counterparts
(Rost et al., 1995). The implication of this lower detection rate
is the need for increased training for general medical professionals
and improved collaborative relationships between medical and mental
health professionals.
Children
Approximately one-third of American youths live
in rural areas (Cutrona, Halvorson & Russell, 1996). Epidemiologic
studies of rural youths are not common, but existing results have
consistently found comparable rates of psychiatric disorder, controlling
for income (Angold et al., 2002).
Rural children have some different characteristics
when compared to urban children. Nordal, Copans and Stamm (2003)
report that although drug abuse rates are lower overall, rural teenagers
tend to drink more alcohol and have higher rates of risky sexual
behavior (i.e., two times as likely to be sexually active, have
an earlier first sexual experience and report more alcohol-related
sexual intercourse). Twenty percent of teen pregnancies occur in
rural communities (Yawn & Yawn, 1993). It is not uncommon for
adolescents who engage in risky sexual behavior or who have substance
abuse problems to also be struggling with emotional issues that
contribute to or increase the odds of engaging in such behaviors.
Rural areas often have difficulty meeting the
needs of children with serious mental health problems (Holzer, 1998).
A study by Angold and colleagues (2002), which compared psychiatric
disorder, impairment and service use among rural African American
and White youth, found that despite equal access to mental health
services (i.e., school-based mental health services), African American
youth were only half as likely as White youth to use specialty mental
health services. This study also reported that only one in three
youth with a current psychiatric diagnosis had received any mental
health care from any professional during the previous three months
(Angold et al., 2002).
Youths in the United States who are in need of
mental health services are not receiving care traditionally offered
by outpatient service agencies (Flaherty, Weist & Warner, 1996;
Weist, 1997). Possible reasons for this trend include a lack of
trained mental health providers, transportation issues, family disorganization,
or stigma linked to mental health issues (Kelleher, Taylor &
Rickert, 1992). However, there is a significant lack of providers
specializing in providing treatment to children and adolescents
(Nordal et al., 2003).
Students with mental health issues are most commonly
seen in school-based clinics, which reduce some barriers to accessing
care (Welsh, Domitrovich & Bierman, 2003). These authors describe
a school program initiated in rural Pennsylvania in which several
mental health programs were integrated into their current services.
Specifically, the referral process for mental health services was
directly connected with the Student Assistance Program (SAP), a
State-regulated program that identified and provided interventions
to students with emotional or behavioral problems. School-based
mental health professionals participated on the SAP team and were
able to conduct assessments, provide case management when necessary
and act as a link to the community mental health care system, which
increased access and helped streamline care.
Elderly
Rural elders may perceive or interpret the need
for mental health services differently than their urban counterparts.
Rural elderly often encounter the same or increased health needs
as urban elderly. However, they often face unique geographic and
economic factors (e.g., transportation difficulties, inadequate
housing and limited availability of health care services) that influence
the environment in which they grow older (Chalifoux et al., 1996;
Lubben, Weiler, Chi & De Jong, 1988). The literature indicates
that rural elderly persons with mental health issues are often underserved
(Dellasega, 1991; Gamm, Stone & Pittman, 2003).
It is estimated that 15 to 25 percent of individuals
65 years or older have significant mental health problems. However,
roughly 85 percent do not receive needed treatment (Dorwart, 1990).
This is troubling, as rural areas typically have a higher number
of older adults than urban areas, a ratio that continues to increase.
This increase, which began in the 1950s, is partly attributable
to the aging of the population in general, the immigration of older
persons from urban areas and the outmigration of younger adults
(Rogers, 1999; Rowland & Lyons, 1989).
The rural elderly also have complex mental health
needs (e.g., Alzheimer's and other dementias) that are compounded
by fragmented and inaccessible services (Buckwalter, Smith &
Caston, 1994), fears of institutionalization and geographic isolation.
Although there are national data on the prevalence of dementia in
the general population, there are no data on the specific prevalence
of dementia in rural areas (Buckwalter, Smith & Caston, 1994).
It has been noted that the misdiagnosis of Alzheimer's
disease may have serious repercussions for the elderly in rural
areas, who often have less access to diagnostic expertise (Rathbone-McCuan
& Fabian, 1992). Only approximately five percent of patients
at Community Mental Health Centers and less than two percent of
private psychiatric patients in rural areas are elderly, which is
most likely attributable to transportation issues and stigma regarding
mental health in general. In rural areas, the criminal justice system
and nursing homes are frequently responsible for the mentally ill
rural elderly (Buckwalter et al., 1994).
Despite some of the barriers encountered by rural
elderly, there are some positive attributes as well, including a
strong sense of community and social support. In addition, despite
isolation and evidence of diminished health status for rural elders,
they do not differ much in life satisfaction compared to urban elders.
While there are some value differences between urban and rural areas,
some authors (Buckwalter et al., 1994; Harbert & Ginsberg, 1990)
caution against categorizing rural elders as a homogenous group,
as cultural differences exist even in predominately white farmlands.
Area Agencies on Aging (AAA) can be influential
in mobilizing informal community resources to provide support during
crises and prevent unnecessary institutionalization (Rathbone-McCuan,
1993). In addition, increased outreach efforts directly targeting
the rural elderly, as well as increased home visitation programs
may be helpful in increasing education and utilization of mental
health services for this group. Psychiatric nurses and other mid-level
providers with adequate training in geriatric mental health may
be instrumental in providing services for the rural elderly.
A higher percentage of rural elderly live below
200 percent of the Federal poverty level compared to their urban
counterparts (52.3 percent vs. 41.2 percent) (Agency for Healthcare
Research and Quality, 2000). Rural elderly comprise almost 25 percent
of the Medicare population, but not all beneficiaries may be offered
a plan that covers prescription drugs. In 2003, rural beneficiaries
on average spent more out-of-pocket on prescription drugs compared
to urban beneficiaries (Caplan & Brangan, 2004).
In 2003, Medicare beneficiaries either obtained
drug coverage from some other public or private source, or paid
for their drugs out of pocket. Prescription drugs for all Medicaid
beneficiaries in 2003 were the largest single out-of-pocket expense
on health care, with the exception of the costs of health care premiums.
Sixty percent of rural beneficiaries had some type of prescription
drug coverage in 2003, compared to almost three quarters (72 percent)
of urban beneficiaries. In addition, rural beneficiaries were more
likely to have Medigap and were less likely to be in a private health
plan, regardless of drug coverage status. Prescription drug coverage
under Medigap generally provides a limited benefit, with higher
coinsurance (50 percent) and annual benefit limits that are not
commonly found in employer-provided plans. Consequently, the majority
of beneficiaries with Medigap do not have any drug coverage (Caplan
& Brangan, 2004).
The drug benefit established by the Medicare
Prescription Drug, Improvement, and Modernization Act (MMA) of 2003
will be effective in 2006. The goals of the new benefit are to change
the spending characteristics of the Medicare population, increase
utilization, decrease drug prices and lower out-of-pocket spending
for Medicare beneficiaries (Stell & Rodgers, 2004). This new
legislation (MMA) will add prescription drug coverage to Medicare
beginning in 2006. The availability of new coverage may provide
a critical source of drug coverage for individuals in rural areas
(Caplan & Brangan, 2004).
Veterans
In the late 1980s, veterans in rural areas did
not have access to specialized Post-Traumatic Stress Disorder (PTSD)
treatment unless they traveled long distances to larger Veteran's
Administration hospitals (Sandrick, 1990). Research indicated that
veterans are more likely to access PTSD treatment through the Veteran's
Health Administration (VHA) than through non-VA mental health services
(Rosenheck & Fontana, 1995). By the late 1990s, the VHA opened
141 inpatient and outpatient PTSD treatment programs across the
nation (Fontana et al., 1999). However, a commission that reviewed
the methodology used to identify new clinic locations indicated
that the selection process was disadvantageous to veterans living
in rural areas. In response to these findings, the VHA revised its
Community Based Outpatient Clinic (CBOC) planning criteria to include
more emphasis on the importance of access to care for rural veterans.
The purpose of these clinics was to improve access to primary care
and mental health services for veterans in rural communities.
Refugees
Refugee communities from a variety of racial and
ethnic backgrounds are increasing in rural areas (Marsella et al.,
1994) in search of safety and job opportunities (Markstrom et al.,
2003). Between five and 35 percent of refugees are survivors of
torture (Baker, 1992) and often struggle with emotional difficulties
(e.g., Post-Traumatic Stress Disorder, social adjustment problems)
(U.S. Committee for Refugees, 1997). This is important for mental
health professionals working in rural areas and implies the need
for increased knowledge and training in working with refugee populations
and survivors of trauma. The information regarding refugee mental
health in rural communities is significantly inadequate. While there
is some information regarding refugee mental health in general that
may be useful and applicable to rural refugees, there is a significant
need for further research in this area. Language and cultural barriers
also sometimes prevent refugees from receiving mental health services.
Barriers to Mental Health Treatment in Rural
Communities
There are numerous barriers that contribute to
disparities in access to care, utilization of services and treatment
of mental health disorders for rural residents. Fox, Merwin and
Blank (1995) and the New Freedom Commission on Mental Health,
Subcommittee on Rural Issues (2004) indicate that obstacles
to service use generally fall into three categories: availability,
accessibility and acceptability.
Availability refers to the presence or absence
of services and service providers. Accessibility refers to whether
or not people can reach the services they need. Acceptability indicates
a person's attitude to mental health issues, willingness to seek
services and enter treatment.
Whether individuals with mental health issues
received treatment has been predicted by availability (Fortney,
Rost & Zang, 1998) and accessibility (Fortney, Rost & Warren,
2000). Hoyt and colleagues (1997) indicated that perceived acceptability
predicts the willingness to initiate an evidence-based treatment
regimen.
The mental health service system in rural areas
is often described as de facto and is comprised of a loosely organized
and fragmented array of services and providers (Fox, Merwin &
Blank, 1995; Rost et al., 2002). Rural residents with mental health
issues often do not seek treatment until the problem has worsened
and is currently impeding functioning in multiple areas of life
(e.g., relationships, work). Delays in seeking treatment are often
due to financial barriers (Schur & Franco, 1999). In this way,
rural mental health, generally speaking, is not preventive, but
is often reactive to mental health issues that have been exacerbated
by crises.
Availability
There is clear evidence that the availability
of mental health services and the number of mental health providers
in rural areas is severely inadequate. Rural America has been underserved
by mental health professionals for the past 40 years. Over 85 percent
of the 1,669 Federally designated mental health professional shortage
areas (MHPSAs) are rural (Bird, Dempsey & Hartley, 2001). According
to the National Advisory Committee on Rural Health (1993), of the
3,075 rural counties in the United States, 55 percent had no practicing
psychologists, psychiatrists, or social workers, and all of these
counties identified were rural (NFC-SRI, 2004). In the past 10 years,
many rural hospitals have closed or been converted to Critical Access
Hospitals due to financial and other economic reasons (NFC-SRI,
2004). Although Critical Access Hospitals provide a more limited
array of services than full-service hospitals, they still serve
an important function in the service system in rural areas.
It is estimated that approximately two-thirds
of individuals with symptoms of mental illness receive no care at
all. Of those who do receive treatment in rural areas, approximately
40 percent receive care from a mental health specialist and 45 percent
from a general medical practitioner (Regier et al., 1993). There
are approximately 605 rural counties in the U.S. without a medical
health care provider, and approximately 1,600 rural counties that
do no have accredited mental health care providers (Rosmann &
Van Hook, 1998).
Primary care physicians and other general medical
practitioners are often the first-line mental health providers for
rural residents. However, primary care physicians may not be adequately
trained to identify and treat mental illness and behavioral disorders
(Ivey, Scheffler & Zazzali, 1998; Little et al., 1998; Susman,
Crabtree & Essink, 1995). In addition to training concerns,
primary care physicians may also lack the time and resources to
diagnose mental health disorders adequately.
The public mental health system is frequently
the only provider in rural areas that serves individuals with serious
mental health issues. In the absence of a formal safety net of providers
(e.g., public hospital systems, Federal, State and locally supported
Community Health Centers and local public health departments), the
"informal" safety net (e.g., private professionals and
organizations that provide free or low-cost care) is forced to bear
the responsibility of treating the majority of mental health issues
in rural communities (Taylor, et al., 2003; Hartley & Gale,
2003). Additionally, informal safety net providers utilize lay community
health workers (also known as indigenous paraprofessionals) as providers
of mental health care in rural communities (Hollister et al., 1985;
Wagenfeld et al., 1994).
As a result of the lack of mental health services
in rural areas, law enforcement is often responsible for responding
to mental health emergencies (Larson, Beeson & Mohatt, 1993).
Other first responders include fellow community members who, as
with law enforcement, generally do not have the training or experience
recognizing mental illness and/or providing triage or stabilization
assistance to individuals in immediate crisis. Identifying mental
illness, especially if substance abuse issues are also present,
is often complicated and requires specialized knowledge and experience
to handle these situations effectively.
There are significant differences in the distribution
of rural Community Health Centers (CHCs). Many Eastern and Southern
States have approximately 30 to 40 rural CHC sites, but many Midwestern
and Mountain States (e.g., Iowa, Minnesota, Nebraska, Kansas) have
few or none (e.g., North Dakota) (National Advisory Committee on
Rural Health, 2000; Hartley & Gale, 2003). The Farm Bill of
1987 included the Rural Crisis Recovery Act which helped support
direct funding of rural mental health services. However, community
efforts are often limited by the lack of long-term funding to ensure
sustainability.
The recruitment and retention of certified mental
health professionals is of major concern in rural communities (Kimmel,
1992). In addition, Medicare reimbursement rates are often lower
in rural areas, which affect the earning potential for rural mental
health professionals (Meyer, 1990). The shortage of mental health
professionals prompted the National Health Service Corps (NHSC)
to offer loan repayment in exchange for service in MHPSAs. From
1995 to 1999, the NHSC placed 244 mental health professionals in
rural areas (Bird et al., 2001).
The availability of specialty mental health services
(e.g., neuropsychology, geriatric) is even lower than that of general
mental health services. Most specialty mental health services are
available through larger trade centers or locally by periodic visits
made by providers (Wagenfeld et al., 1994). Rural areas also contain
fewer hospital-based inpatient and outpatient services for both
psychiatric and substance abuse (Hartley et al., 1999). Often when
individuals are released from inpatient care to the community, there
are few social services and rehabilitation agencies to provide follow-up
care.
Although there has been increased National attention
and support for evidence-based practices, there have been only minor
efforts to increase workforce development activities to enable rural
mental health providers and systems to initiate such practices.
In fact, there has been a steady decline in the number of training
programs that specifically target rural mental health professionals
(NFC-SRI, 2004; Wagenfeld et al., 1994).
Accessibility
Despite comparable prevalence rates for mental
disorders among rural and urban residents, rural residents are much
less likely to have access to services or providers (Lambert &
Agger, 1995). As discussed in Chapter 1, there are three significant
components of access to mental health services for rural residents:
knowledge, transportation and financing. These issues will be briefly
expanded upon here.
Mohatt and Kirwan (1995) found that rural residents
lacked an awareness of the need for mental health care, which leads
to seeking care later in the course of their disorders. Perceived
need for treatment is often hindered by acute symptoms that obscure
an individual's understanding of the need for immediate treatment
(Rost et al., 2002). Current research suggests that perceived need
for care is so low that even minimal barriers in other areas can
prevent a person from seeking assistance (Rost et al., 2002).
One response to overcoming these barriers is a
marketing effort to enhance rural knowledge of mental illnesses,
treatment options/best practices and local resources. However, administrators
and providers of rural mental health services have expressed their
apprehension about creating an increased demand when current resources
are often over-utilized. Nevertheless, consumers, noting "they
couldn't go because they didn't know," believe public education/marketing
efforts should be among the top priorities for enhancing the rural
mental health care system (Ralph & Lambert, 1999). Many outreach
interventions in rural areas have failed to convince mentally ill
individuals that they need to seek care (Fox et al., 1999).
The ability to travel to mental health services
is a significant barrier for rural Americans (NFC-SRI, 2004). Transportation
barriers for people living in rural communities include the lack
of personal transportation to travel to service providers, limited,
inefficient, or inconvenient public transportation (Schauer &
Weaver, 1993; U.S. Senate, 1992) and the use of catchment areas,
which can complicate access to services for rural residents. The
catchment area system may require individuals to seek services in
an area that they do not usually frequent due to the allocation
of funding streams (Mulder et al., 2002).
Inability to pay further hinders accessibility
to mental health services, either because of insufficient insurance
coverage or high co-payments for appointments (Zevenbergen &
Buckwalter, 1991). Of the people living in rural areas who do have
health insurance, many do not have comprehensive benefits and do
not have coverage for psychotherapy (NIMH, 2000). Many rural residents
are self-employed or are employed by a small business and, thus,
may not have employer-based health insurance. In response to increased
insurance premiums (by an average of 16.4 percent in 2001), many
small businesses are either discontinuing insurance coverage for
their employees, dropping coverage for dependents, increasing the
employee's contribution to the premium and deductibles, or not providing
health insurance at all (Levitt, Holve & Wang, 2001; Hartley
& Gale, 2003). As a result, more rural residents are paying
out-of-pocket for basic primary care services (Hartley & Gale,
2003).
Two-thirds of those uninsured living in rural
areas are poor or near-poor, meaning their family income is less
than 200 percent of the poverty level (Kaiser Commission, 2003).
Low-income adults, who comprise almost half of the rural uninsured,
only qualify for Medicaid if they are disabled, pregnant, elderly,
or have dependent children (Kaiser Commission, 2003). Approximately
one-fourth of the rural poor qualify for Medicaid, compared to 43
percent of low-income urban residents.
The cost of health services that are only partially
reimbursed by Medicare and Medicaid may be too expensive for some
rural residents. Further complicating the cost issue is the lack
of Federal strategies for sustainable mental health services (NFC-SRI,
2004). In addition, rural programs often operate in areas with limited
sources of financial resources to leverage as matching funds for
other grant support (NFC-SRI, 2004). Finally, although the actual
numbers of individuals with serious mental illness in rural areas
may be relatively small (Gale & Deprez, 2003), the geographic
limitations and fragmented delivery of mental health services make
it difficult for this population to access appropriate services.
Lack of insurance can be especially tragic for
families with children with severe emotional disturbances (SED).
Too often, parents face the unthinkable choice of relinquishing
custody of their child to obtain mental health treatment because
they cannot pay for care. It has been estimated that more than 25
percent of families in the nation face this crisis each year (Bazelon
Center, 2000; NAMI, 1999). While the data are not extensive in this
area, the available data would suggest that rural families with
lower rates of insurance coverage and lack of provider availability
may be at greater risks of facing this horrible dilemma.
The emergence of telehealth strategies over the
past decade has opened a new access point for many rural consumers,
families and systems. The use of telecommunication in the delivery
of health services, consultation and training in mental health is
expanding rapidly. The field is very broad, spanning audio-only
telephone or radio consultation and crisis intervention to very
sophisticated interactive audio-video linkages between distant clinical
and training sites.
A recent review and survey of current grantees
under the Federal Office for the Advancement of Telehealth (LaMendola,
Mohatt & McGee, 2002) found mental health was listed as the
most often service being delivered. However, closer examination
found that telehealth mental health care was a major component of
less than a dozen projects, and few noted any formal link to the
systems of care for adults with SMI or children with SED. Frequently,
these projects are organized around hospital and primary care networks
that may lack strong collaborative traditions with the systems of
care for adults with SMI and children with SED.
The study also found little data on telehealth mental health care
performance beyond consumer satisfaction surveys and process measures.
Telehealth mental health care has been held forth as a significant
tool in improving the chronic lack of access to mental health services
among rural populations. However, there simply are not enough data
available to measure the ability of such telehealth strategies to
enhance access for adults with SMI or children with SED.
Acceptability
The acceptability of mental health services in
rural areas is hindered by stigma, cultural beliefs and values (Intermill
& Rathbone-McCuan, 1991). Rural residents tend to value self-reliance
and view help-seeking behavior in a more negative light than urban
residents (Rost et al., 2002). Other cultural attitudes often observed
in rural communities include the fear that fellow rural community
members will discover they are in treatment for emotional issues
(Berkowitz & Helund, 1979; Bushy, 1993; Wagenfeld et al., 1994).
Many rural individuals may be fearful of being labeled "insane,"
of being shunned by friends and other community members, or of being
institutionalized (Buckwalter et al., 1994). According to Rost,
Smith and Taylor (1993), the more negative the labeling of a rural
individual struggling with depression, the less likely they are
to seek treatment.
A survey of rural mental health outreach programs
by the National Association for Rural Mental Health (NARMH) found
that even the best programs felt unprepared to meet the cultural
and clinical needs of recent immigrants to rural areas (NFC-SRI,
2004; Lambert et al., 2001). Many ethnic minority individuals are
unable to access providers who are of similar ethnic or cultural
background, speak their native language, or are knowledgeable about
their particular culture (Martin, 1997; NFC-SRI, 2004; U.S. Public
Health Services Office of the Surgeon General, 2001). Because of
this barrier, ethnic minority individuals may be more hesitant to
enter treatment based on fear that the provider may not understand
their culture and traditions.
It is common for public mental health programs
and services to be based on urban models and experiences, and are
merely applied to fit rural communities (Beeson et al., 1998; Bergland
& Dixon, 1988; Gamm et al., 2002; Larson et al., 1993; Mohatt,
2000; NFC-SRI, 2004). Mental health professionals are generally
trained with urban-centered standards that often do not directly
apply to rural communities (Wagenfeld & Buffum, 1983).
Mental health providers in rural areas need an
understanding of and appreciation for cultural similarities and
differences within, among and between groups (NRHA, Issue Paper,
1999). The American Psychological Association (1995) identified
five important goals of cultural competence: 1) identifying social,
economic, political and religious influences affecting rural communities
2) understanding the importance of ethnic and cultural influences
in rural communities and the importance of the oral tradition 3)
understanding the impact of the interaction between social institutions
and ethnicity on the delivery of mental health services 4) recognizing
the impact of the provider's own culture, sensitivity and awareness
as it affects his or her ability to deliver mental health care and
5) understanding alternative treatment sources in the ethnic minority
culture.
Reducing the stigma against mental disorders and
encouraging individuals to seek treatment when needed may be accomplished
by increasing educational campaigns and enhancing social and professional
network referrals (Kenkel, 2003). Understanding and utilizing the
work of indigenous healers or other natural supports could be particularly
helpful in this regard (Neese, Abraham & Buckwalter; 1999; Buckwalter,
1992).
Summary
As Roberts, Battaglia and Epstein (1999) wrote,
"The mental health needs of rural America are immense, and
it is increasingly recognized that implementation of adequate psychiatric
services in nonmetropolitan areas is a critical national health
imperative." Rural mental health has emerged as a priority
area for policy makers, mental health professionals and rural community-based
service providers. The literature on mental health in rural communities
clearly defines areas of unmet need for individuals with mental
health issues including a lack of availability of services, a lack
of access to these services and a lack of acceptability by rural
residents due to the ever-present stigma around mental illness.
Suggestions for improvement include increasing
the number of training programs focused on rural issues while simultaneously
promoting recruitment and retention efforts for students interested
in working in rural areas. Other recommendations include increasing
training for primary medical providers about mental health issues
and increasing collaborative relationships between medical providers
and mental health professionals. The most recent Institute of Medicine
report Quality through Collaboration: The Future of Rural Health
(2005) also emphasizes the need for better coordination of care
and collaboration. This report offers many suggestions on increasing
partnerships and is a guide for service agencies and policymakers
on the benefits of such collaboration in rural America. Policy reform
at the legislative level is also critical to increasing public attention
to rural mental health issues and to increasing funding streams
for providers and agencies working in rural communities. New technology,
such as telemedicine, can also help to fill some of the service
gaps in rural communities. Lastly, continued research is necessary
to further define rural mental health issues and the service needs
that result from those issues.
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3
Epidemiological Overview of Substance
Abuse in Rural America
Since the last publication of this book, research
regarding substance abuse in rural America has grown significantly.
A wide variety of publications have addressed issues such as substance
abuse in a rural context from a developmental perspective; specific
populations that include youth, elderly, women, inmates and ethnic
minority groups; prevention and service delivery.
Findings described in previous chapters regarding
the similarity in prevalence rates for both mental health and substance
use disorders, as well as the widely documented spread of such drugs
as methamphetamine, have undoubtedly contributed to the increased
attention paid to substance abuse in rural areas. Additionally,
the recent release of the President's New Freedom Commission
on Mental Health, Subcommittee on Rural Issues report will continue
to propel rural America to the forefront of research foci.
As discussed in Chapter
2, an increasingly important issue is the co-occurrence of mental
and substance abuse disorders for both adults and children (Regier
et al., 1990). The interrelationship of mental health and substance
abuse problems has been well-documented, and efforts have occurred
to address this fact. For instance, the Substance Abuse and Mental
Health Services Administration (SAMHSA) has released grants that
promote integrated mental health and substance abuse services through
State or tribal agencies. Furthermore, some States (e.g., Alaska)
have integrated their substance abuse and mental health service
divisions into single entities, usually called a "Division
of Behavioral Health."
Evidence-based practices have been established
for treating co-occurring disorders (Drake et al., 2001; SAMHSA,
2004), but there is little research on the incidence, prevalence,
and etiology of co-occurring disorders in rural populations. Thus,
the field lacks an understanding of current needs, as well as ways
to tailor evidence-based practices to treat persons with co-occurring
disorders in rural areas. Furthermore, because there is not one
rural America, research findings are still very difficult to generalize
across the manifold places and variety of people that live in these
areas.
This chapter will discuss each of the topic areas
indicated above, but it should be viewed as only a snapshot of a
process that is in continual motion.
Substance Abuse in a Rural Context
The National Institute on Drug Abuse (USDHHS,
1997) published a monograph series titled "Rural Substance
Abuse: State of Knowledge Issues." In that publication, Conger
(1997) reviewed the literature on substance abuse in rural America
and provided a context in which to understand the process that underlies
the development of substance use disorders. Synthesizing work from
a number of authors and researchers, he described five major themes
that characterize the relationships among social context, individual
dispositions and syndromes of problem behaviors that include substance
use and abuse. The five themes are:
- Substance abuse is part of a developmental
progression from relatively minor to more serious antisocial activities
(Elliot et al., 1989; Loeber & LeBlanc, 1990; Patterson, 1993).
- Placing substance abuse within a developmental
progression of antisocial behaviors that begin with relatively
minor deviant acts during childhood underscores the need for social-contextual
models of substance abuse that include explanatory variables existing
early in the life course (Gottfredson & Hirschi, 1990; Hawkins
et al., 1992; Moffitt, 1993; Patterson, 1993; Simons et al., 1994a).
- The realization that the early manifestations
of problem behaviors likely become apparent before adolescence
has placed new emphasis on the role of the family in explanations
of antisocial tendencies (Akers, 1994; Conger et al., 1992, 1993,
1994a; Gottfredson & Hirschi, 1990; Hawkins et al., 1992; Loeber
& Stouthhamer-Loeber, 1986; Patterson et al., 1992; Moffitt, 1993;
Simons et al., 1994a, 1994b; Thornberry, 1987).
- Family interactions involve reciprocal influences
in parent and child behaviors that affect both the probability
of child misconduct and also disruptions in effective child-rearing
practices (Conger & Rueter, 1995; Lytton, 1990; Thornberry et
al., 1991; Vuchinich et al., 1992).
- Reciprocal influences exist not only within
the family but also between the behaviors of individual family
members and the other social contexts important to the development
or restraint of adolescent misconduct (Conger & Rueter, 1995;
Elliott et al., 1989; Hawkins et al., 1992; Melby et al., 1993;
Richters & Martinez, 1993; Sampson & Groves, 1989; Thornberry
et al., 1991).
In other words, substance abuse problems do not
"just happen"; they develop over time and are foreshadowed
by early childhood behavioral problems, which are often the result
of particular interactions between parents and their children, as
well as individual family member interactions with other social
contexts (e.g., jobs, school, friends, law).
Aspects of individuals who develop substance abuse
disorders include genetic, biological and/or neuropsychological
factors, emotional responses, and cognitive factors that interact
with social-contextual issues.
For instance, Moffitt (1993) discussed how genetically
or environmentally-induced biological deficits may reduce overall
competence or exacerbate behavioral problems. Estimates of heritability
for substance use and abuse are consistent with the degree to which
delinquency is heritable (Hawkins et al., 1992; Plomin et al., 1994).
Furthermore, based on adoption studies, Conger (1997) concludes
"the genetic component of a biological predisposition to substance
abuse and related conduct problems appears to become manifest largely
in disrupted social environments; and social-contextual variables
(poverty) affect biological development, which
affects antisocial
substance use behaviors" (p. 16).
Chassin and colleagues (1993) reported that negative
emotional responses can include antisocial behavior and predict
involvement with alcohol and other drugs. Environmental issues can
exacerbate a child or adolescent's emotional characteristics and
make him or her more vulnerable to substance abuse, as can biologically-based
emotional dispositions. Several dimensions of delinquency, such
as behavior under-control, poor emotional regulation and impulsive,
risky behaviors, both predict and are predicted by substance use
(Elliott et al., 1989; Hawkins et al., 1992; Sher et al., 1991).
Additionally, in terms of cognitive issues, when
models (e.g., family members, family friends) for substance use
are plentiful, consumption is defined as acceptable and enjoyable,
and use is encouraged in social settings, youths will likely adopt
these beliefs and practices, which increases risk for later substance
use problems (Akers, 1994; Conger & Rueter, 1995). Thus, the
conclusion is that the social-contextual approach to understanding
substance use and abuse provides a framework for identifying the
dynamic through which social settings combine with the individual
attributes that impact "developmental trajectories of risk
or resilience to substance abuse and related conduct problems"
(Conger, 1997, p. 17).
Youth and Adolescent Substance Abuse
In 1999, Mental Health: A Report of the Surgeon
General was released and addressed youth and adolescent substance
use and abuse. According to the report, the early 1990s was the
beginning of a "sharp resurgence" in the misuse of alcohol
and other drugs by adolescents (Johnston et al., 1996). Kessler
and colleagues (1996) reported results from the National Comorbidity
Study, indicating that about 51 percent of those with one or more
lifetime mental disorders also had a lifetime history of at least
one substance use disorder, with the rates being highest in the
15 to 24 year-old age group (Kessler et al., 1994).
The National Center on Addiction and Substance
Abuse (CASA; 2000) analyzed national data and reported that the
prevalence of tobacco, alcohol, marijuana, amphetamine and cocaine
use among eighth-graders to be higher in rural areas (defined as
counties with no city over 50,000 inhabitants) than in urban areas.
Rural eighth-graders were reported to be more than twice as likely
to smoke cigarettes, 70 percent more likely to have been drunk,
34 percent more likely to smoke marijuana, 104 percent more likely
to use amphetamines, and 50 percent more likely to have used cocaine
than their urban counterparts. Johnston, Bachman and O'Malley (2000)
found the alcohol use prevalence rate among rural eighth-graders
to be 57 percent, compared with 50 percent among their urban peers.
Substance abuse rates in rural areas were reported
to exceed those in urban areas for every drug except ecstasy and
marijuana among 10th graders (CASA; 2000). In addition, the monthly
prevalence rate of alcohol use among youth (6th, 8th, and 11th graders)
in a rural Midwestern State was 26 percent (Iowa Consortium on Substance
Abuse and Research Evaluation, 1999), compared with 21 percent in
a national sample of adolescents (USDHHS, SAMHSA, Office of Applied
Studies, 1999).
Despite these data, Edwards (1997) warned against
using national level data to characterize rural drug use, as rural
community variability is significant. For instance, communities
similar in size and geographic location can have very different
youth drug use profiles. Also, consistent with the need for research
based on a continuum of rurality, data illustrate that there is
a lower aggregate level of drug use among youth in very small, rural
communities (population <2,500) than among those in larger rural
and metropolitan communities. Edwards (1997) reported that problems
related to drug use are much higher for metro than nonmetro and
rural youth. For example, the percent of metropolitan youth who
have tried marijuana is reportedly almost twice that of small rural
community youth and significantly higher than that of other nonmetropolitan
youth. Thus, the differences in data represent the ongoing problems
of researching certain rural populations and then generalizing these
findings across diverse rural areas.
Youth and Adolescent Risk and Protective Factors
Underlying the prevalence of substance abuse by
rural youth are risk and protective factors. Although studies of
specific individual and family risk factors in the 1980s and beginning
of the 1990s indicated that there were higher levels of risk in
urban areas (especially risk associated with peer influence), more
recent research has found some risk factors to be more prevalent
among adolescents in rural areas (e.g., family history of drug involvement,
early initiation of problem behavior and low school achievement)
(Becker et al., 1999a, 1999b).
Oetting and colleagues (1997) surveyed a total
of 2,861 students in the 7th, 8th, 11th and 12th grades in nine
rural communities (population range 451 to 18,400) in nine States.
The surveys included a drug use questionnaire, The American Drug
and Alcohol Survey, and the Prevention Planning Survey. Youth
were classified into high, moderate, or no drug involvement groups.
The results indicated that risk factors for rural and urban youth
are similar; adolescent drug use is chiefly a social behavior rather
than a response to the addictive properties of drugs. Additionally,
families can have either a direct or indirect influence on substance
use, particularly alcohol and tobacco. For instance, a direct influence
identified was that a smoking parent doubles the risk of a child's
smoking, and quadruples the risk if the parent's attitude is conducive
toward the child's smoking. Indirect influence on increasing drug
use was seen when young people believe their families are unconcerned
about it and when there is family conflict (Oetting et al., 1997).
Children with relational problems at home are
more likely to select friends who also have problems, and their
peers are more likely to get involved with drugs and reinforce drug
use. Nonusers typically have friends who would try to stop them
(Oetting et al., 1997). Young women who are depressed and/or have
low self-esteem may find that drug use relieves negative feelings,
which increases their susceptibility to drug-using peers. Angry
youth and adolescents with high need for excitement or risk-taking
interact with similar youth, which drug use may satisfy.
Studies of the accumulation of risk factors show
that there is an almost linear relationship; the greater the number
of risk factors, the greater the chances of drug use (Swaim, 1991).
Although personal and social risk factors are generally the same
for urban and rural youth, there is likely to be more variability
in risk factors across rural towns. This is supported by the work
of Spoth and colleagues (2001), who evaluated rural-urban differences
in cumulative risk for youth substance abuse using a cumulative
risk index. The index included family-related (e.g., parent-child
bonding or conflict, family financial stress, parental marital status,
parental education, etc.) and individual-related (items from the
Child Behavior Checklist that ask about youth problem behaviors)
risk and protective variables.
The results of the study indicated that parent-reported
cumulative risk for young adolescence substance use was significantly
higher for rural youth than urban youth, although differences were
small to medium in magnitude (Spoth et al., 2001). However, comparing
these findings to others in the literature is difficult due to differences
in cohorts, rural-urban classification schemes and measures. The
studies also differ in sampling methods and related sample characteristics
across studies. Nevertheless, consistent with the CASA (2000) report,
there is evidence to indicate that risk factors for youth substance
use may be changing for rural and urban populations. Also, factors
that have protected rural youth against developing substance abuse
problems may be eroding, and the literature generally suggests a
higher level of cumulative risk for rural youth (Spoth et al., 2001).
One aspect of protective factors that has gained
attention in the literature is the role of spirituality and/or religious
participation in youths' lives. For instance, Hodge, Cardenas and
Montoya (2001) examined the relationship between spirituality and
religious participation and substance use in a multicultural (Hispanic,
Native American, non-Hispanic white and African-American) sample
of rural youths. The authors viewed spirituality and religion as
distinct but overlapping concepts-spirituality was defined as "an
experiential relationship with God," and religion was defined
as "a formal set of rituals, beliefs, and practices that expresses
an internal, commonly held, spiritual reality in a community context"
(p. 154).
The results indicated that the higher the level
of religious participation, the higher the probability that an adolescent
never used alcohol. Also, the higher an adolescent's level of spirituality,
the higher the probability the youth had not used marijuana. Finally,
the higher the level of spirituality, the greater the likelihood
of abstaining from hard drugs. Spirituality was not significantly
related to alcohol use, while participation in religious activities
was not significantly related to marijuana use or to hard drug use.
More research in this area is needed to corroborate, clarify, or
generalize these findings.
Prevention of Substance
Abuse for Rural Youth
The use of prevention programs to curb rising
rates of substance abuse has proliferated since the last edition
of this book. Although there is no distinctively rural prevention
program, D'Onofrio (1997) described two general categories: 1) school-based
and 2) community-based.
School-Based Programs
Prevention programs conducted by rural school
districts and communities without outside sponsorship are often
not theoretically-based, but reflect reasoned assumptions about
what is needed, using available resources creatively, and are more
limited in scope (D'Onofrio, 1997). Programs sponsored by local
service organizations usually try to coordinate referrals and treatment
resources. Those organized by civic groups seek to develop youth
leadership or provide youth with new options for recreation and
employment.
Reviews of existent school-based programs indicated
that most rural districts provide at least three types of drug education
for students, which may include classroom instruction, extracurricular
activities and drug-free social events, student intervention services,
peer-managed self-monitoring, as well as parent and/or community
involvement (D'Onofrio, 1997). Classroom instruction was a program
component in nearly all districts, augmented by extracurricular
activities, drug-free social events and intervention services. There
were also training programs for teachers and staff, parent programs,
and educational programs in the community.
Having multiple components in school-based prevention
programs apparently increases their effectiveness (NIAAA, 1994).
It has been recommended that such programs provide factual information
about the harmful effects of drugs; support and strengthen students'
resistance to using drugs; carry out collaborative drug abuse prevention
efforts with parents and other community members; be supported by
strong school policies and provide services for confidential identifications,
assessment, and referral to treatment and support groups for users.
Community-Based Programs
Community-based prevention programs are typically
organized in rural areas by professionals in schools and agencies,
local business leaders, service clubs, local activists, and external
sponsors (D'Onofrio, 1997). Different types include community programs
for youth; media campaigns; community coalitions; community team-building
and networking; community development; grassroots movements and
participation in statewide coalitions. Many include young people
and other members of the community in assessing issues of alcohol
use and generating possible solutions. Most complement or substitute
for school-based programs.
Characteristics of Other Programs
D'Onofrio (1997) also described
characteristics of the various programs that existed at the time
of that writing, but pointed out that very few rural programs focus
solely on the prevention of youthful drinking; goals and objectives
tend to be general rather than specific and vary with program sponsorship.
For instance, at SAMHSA, the Center for Substance Abuse Prevention
(CSAP) programs are required to endorse a philosophy of youth abstinence
from substance use. Almost all of these projects are based on a
risk factor model and try to reduce at least two risk factors from
different domains (as of 1993: individual = 70 percent, family =
50 percent, school = 50 percent, peer = 40 percent, neighborhood/community
= 40 percent).
The few rural prevention programs organized by
university researchers are based on social normative theory, with
most being implemented in school classrooms using diverse instructional
and skill-building techniques. These programs seek to delay the
onset of smoking and drinking and to reduce the prevalence of tobacco,
alcohol, and sometimes marijuana use among youth in particular grades
(usually seventh).
Popular Prevention Programs
Two of the most popular and researched prevention
programs are Preparing for the Drug Free Years (PDFY) and
Drug Abuse Resistance Education (DARE). The PDFY program
is theoretically based on the social development model, which is
an integration of social control theory (Hirschi, 1969) and social
learning theory (Akers, 1977). The former views prosocial bonding
as a protective factor against adolescent substance use and delinquency,
while the latter specifies processes by which bonding develops.
The social development model hypothesizes that bonding is determined
by the levels of 1) opportunities provided to the child for proactive
involvement in the family, 2) the child's skills for participating,
problem-solving, and positive interaction with other family members
and 3) the rewards and punishments received from parents for appropriate
and inappropriate behaviors. Thus, the quantity and quality of parent-child
communication or family discipline style are hypothesized to affect
family bonds, which in turn affect children's behavior.
The core objectives of PDFY include conveying
information about the risks and dangers of childhood substance use,
increasing opportunities for family involvement and teaching the
necessary skills to ensure that such involvement is rewarding and
enhances parent-child bonds.
DARE is an early prevention program that promotes
youths' resiliency to later problem behaviors, including drug use,
by co-training parents and children to enhance self-efficacy, effective
child rearing, and problem-solving. It has historically focused
on youth 5 to 18 years old, their parents, and/or community professionals
who work with this age group. The community team component includes
a curriculum that is delivered through 15-18 hours of training for
multi-agency teams who provide services to youth. This training,
from which the parent workshops evolved, emphasizes four areas:
1) decision-making and problem-solving skills, 2) assertiveness
in communication and conflict management, 3) responsibility for
one's behavior, and 4) esteem for oneself (e.g., self-efficacy)
and others.
Research on the PDFY and DARE Programs
It was noted that the PDFY and DARE programs have
been fairly well researched. However, among these studies, a relatively
limited number have been concerned specifically with rural areas.
Thus, this section will present findings from the available literature,
but will primarily focus on research conducted on these programs
in rural areas.
PDFY Program: The PDFY program has been
found to have a significant, positive impact on parenting skills
(e.g., proactive communication, child-management, protective behaviors,)
and/or the parent-child relationship (e.g., reducing negative interactions)
(Kosterman et al., 1997, 2001; Rueter, Conger & Ramisetty-Mikler,
1999; Spoth et al., 1995; Spoth, Redmond & Shin, 1998); protective
factors (e.g., parent-child attachment, peers with prosocial norms)
(Park et al., 2000; Spoth et al., 1996a, 1996b); initiation of substance
use (Guyll et al., 2004; Mason et al., 2003; Park et al., 2000;
Spoth et al., 1999, 2004; Spoth, Redmond & Shin, 2001); and
delinquency (Ellickson, 1996; Mason et al., 2003). However, one
study did not find significant effects of PDFY regarding the ability
of parents to proactively manage their families, reduce family conflict,
or help their children learn skills to resist antisocial peer influences
(Park et al., 2000).
DARE Program: Burke (2002) notes
that although DARE is the most widely implemented youth drug prevention
program in the United States, research studies indicate poor results
of this program. Multiple studies could not find any significant
effects of the program on use of a number of substances (e.g., alcohol,
cigarettes, marijuana, inhalants) (Becker, Agopian & Yeh, 1992;
Britt & Jachym, 1996; Harmon, 1993; Thombs, 2000; Wysong, Aniskiewicz
& Wright, 1994) for students ranging from fifth-grade to undergraduate
college students or on such things as attitudes about police, coping
strategies, attachment and commitment to school, resistance to peer
pressure, delay of experimentation with drugs, rebellious behavior,
or self-esteem (Dukes, Ullman & Stein 1996; Harmon, 1993). Seventh-graders
in an "All Stars" program, developed to address four mediators
of high-risk behaviors, had significantly better outcomes on each
mediator compared to seventh-graders who received the DARE program
(Hansen, 1996). Hansen and McNeal (1997) found that the primary
effect of DARE on eighth- then ninth-graders was a change in commitment
not to use substances, but the magnitude of the effect was relatively
small.
On the positive side, Miller-Heyl, MacPhee and
Fritz (1998) found DARE to have result in significant, persistent
increases in parental self-appraisals and democratic child-rearing
practices, parent satisfaction with social support, enhanced children's
developmental levels, with a corresponding decrease in harsh discipline
and oppositional behavior. Furthermore, Donnermeyer and Wurschmidt
(1997) found that 286 fifth- and sixth-grade educators highly rated
overall DARE program quality and the impact it had on students.
Rural, suburban and urban parents' views of DARE indicated that
parent involvement and knowledge of the program was high, and generally,
parents were very positive about it, especially when they viewed
the DARE officer as an effective educator (Donnermeyer, 2000). Finally,
in comparing 341 fifth-grade DARE students to 367 non-DARE students,
Harmon (1993) found significant differences for alcohol use in the
last year, belief in prosocial norms, association with drug-using
peers, positive peer association, attitudes against substance use,
and assertiveness. Thus, it appears that individuals' views of the
DARE program, as well as some results, are in conflict with significant
data indicating that the actual effectiveness of the program is
limited or non-existent, depending on what is being measured.
Other Programs
The current literature contains information on
a number of other prevention programs that typically share similar
goals to PDFY or DARE. These will be briefly summarized here. Pilgrim
and colleagues (1998) evaluated a program called "Families
in Action - Meeting the Challenge of Junior High and Middle School"
(FIA) that was designed to increase positive attachment to family,
schools and peers; use of counseling services as necessary and appropriate
attitudes toward substance use by minors. The results indicated
that girl- and boy-program graduates were more willing to seek counseling
services at the follow-up, as were their parents. Program participation
was more beneficial for boys than for girls, and increased parent
activities at their child's school compared to non-participants.
Short-term program effects found for parent graduates only included
greater curriculum knowledge, higher family cohesion, and an increase
in the age considered appropriate for alcohol consumption. The FIA
program goals were slightly altered for students and parents, with
results indicating that student participants, as compared to nonparticipants,
had higher family cohesion, less family fighting, greater school
attachment, higher self-esteem and believed that alcohol should
be consumed at an older age at the one year follow-up (Abbey et
al., 2000).
Miano, Forest and Gumaer (1997) evaluated a university
and school collaborative project that provided individual counseling,
group counseling, couples counseling and family counseling, as well
as a day and evening program to a secondary school population and
the larger community of a rural locality in Southwest Virginia.
The purpose was to reduce the dropout rate and improve at-risk students'
attendance and school achievement. Over approximately six years,
the dropout rate went from 7.09 percent to 3.32 percent.
Johnson and colleagues (1996) evaluated the Creating
Lasting Connections, a five-year demonstration project, designed
to delay onset and reduce frequency of alcohol and other drug use
among high-risk 12 to 14 year old youth by positively impacting
resiliency factors in church community, family and individual (youth).
Results showed that the program successfully engaged church communities
in substance abuse prevention activities and produced positive direct
effects on family and youth resiliency, as well as moderating effects
on onset and frequency of alcohol and other drug use.
Results from the Community Health Demonstration
Project (CHDP), which was organized to develop, implement, and evaluate
substance abuse prevention programming in a resource-poor rural
Appalachian area, included increased awareness and knowledge of
problems associated with alcohol, tobacco and other drug (ATOD)
use during pregnancy and postpartum; new services adopted by local
agencies and organizations; more cooperative efforts to provide
presentation programs for all ages throughout the community; a range
of new or expanded programs to enhance development and a reduction
in ATOD use during and after pregnancy by women in this rural area
(Vicary et al., 1996).
Stevens, Mott and Youells (1996) tested two approaches
to substance prevention in The New Hampshire Substance Abuse Prevention
Study, which included a cohort of 4,406 rural public school children
in elementary school, junior high school, or in the 10th grade.
It included a comprehensive school curriculum implemented in grades
1 through 12, a parent communication course, a community task force,
and delayed intervention control. Some positive prevention results
were achieved for cigarettes, marijuana, other illicit drugs and
spitting tobacco, but no effects were found for any of the three
levels of alcohol use (initiation, drinking, drunkenness) at 36
months follow-up.
Rural Substance Abuse Prevention Strategies
Karim (1997) offers an interdisciplinary approach
to prevention in rural areas. First, the local context should drive
the design and development of prevention programs. Specifically,
there must be an investigation into the nature of substance abuse
in a particular place, including a needs assessment and development
of a prevention curriculum that is based (in part) on an evaluation
of how community members view substance use and abuse issues. This
information will help make the prevention message meaningful. Second,
prevention practitioners must disseminate materials that are significant,
relevant, and interesting to youth. This includes using the most
effective instruction methods and ways in which young people learn
best.
Karim (1997) argues that the traditional prevention
paradigm needs to abandon program-driven approaches (i.e., those
based on risk/resiliency, risk and protective factors, self-esteem
and health models) in favor of a broad, unified, research-based
understanding of substance abuse issues that is woven into an overall
school- reform or school-improvement plan. Stand-alone programs
will be unsuccessful if the bulk of the prevention responsibility
is based on their successful implementation. For further information
on substance abuse prevention strategies, see Biglan and colleagues
(1997).
Service Delivery & Treatment Issues
Treating substance abuse in rural America involves
many of the same complications noted for mental health treatment
generally, especially regarding co-occurring disorders. These include
1) rural substance abuse programs seem to be based on urban models,
2) a fragmented system of services, 3) centralized services in a
large geographic area, 4) overly restrictive regulations, 5) conceptual
differences in treatment approaches, 6) different value-orientations
between providers and clients 7) confidentiality and stigma in a
rural culture and 8) academic and professional isolation of mental
health workers, leading to high turnover and a shortage of staff
having appropriate training and experience to work with persons
with dual diagnoses (Howland, 1995; Wagenfeld et al., 1997).
This last point is buttressed by results from
a survey of licensed psychologists in Idaho about their training
and provision of substance abuse services. Of 144 respondents, nearly
all (89 percent) had contact with substance abusers, yet most rated
their graduate training as inadequate preparation for practice.
Rural psychologists reported seeing a high percentage of substance
abusers, but many limited their treatment to self-help group referral
(Celluci & Vik, 2001).
Using 1994-1996 indicator data, McAuliffe and colleagues (2003)
estimated State substance abuse treatment needs and service gaps.
There were large inter-state variations in the rates of drug and
alcohol deaths, arrests and treatment services, which appeared to
reflect real and substantial differences among State populations
in their alcohol and drug treatment needs. Maps of the indexes showed
that drug treatment needs were greatest in the urban Northeast,
on the West Coast and in States bordering Mexico. Moderately high
levels of drug treatment needs were also found in southern States
(Mississippi, South Carolina, Georgia and Louisiana). The lowest
levels of relative drug treatment needs were clustered in rural
States of the northern plains and in New England. Alcohol treatment
needs were greatest in the West; North Carolina had the highest
alcohol needs in the East. The lowest alcohol treatment needs were
in Hawaii, selected southern and Midwestern States and urban East
Coast States.
Comparison of Substance Abuse Treatment index
scores with the Substance Abuse Need index scores revealed that
States varied substantially in the extent to which current treatment
needs are being met. The States with the greatest relative treatment
gaps were clustered in the South (Mississippi, Georgia, Arkansas,
Tennessee, North Carolina and West Virginia), Southwest (Arizona,
Nevada, Texas and New Mexico), and the most northern tier of plains
and mountain States (Idaho, Montana, North Dakota, Minnesota and
Wisconsin). The States with the most favorable combined service
rates relative to substance abuse need were also mostly in two clusters:
1) New York, Massachusetts, Rhode Island, Connecticut, Maryland,
Maine and Delaware and 2) Colorado, Utah, Nebraska, Kansas, and
Iowa.
Anderson and Huffine (2003) studied treatment
needs and service use of 177 rural adolescents with mental and substance
use disorders who were served in community-based settings. The results
indicated that two-thirds of adolescents with co-occurring disorders
did not receive the recommended treatment based on widely supported
guidelines, leaving this group's service needs unmet.
Regarding the location of services, Vaughan-Sarrazin, Hall and Rick
(2000) evaluated effects of the Iowa Case Management Project (ICMP)
for Rural Drug Abuse on the utilization of substance abuse, medical
and mental health services by rural substance abuse treatment clients
subsequent to initiating residential treatment. Clients who volunteered
for the program were randomly assigned to one of four case management
conditions: 1) an ICMP case manager located at the substance abuse
treatment facility, 2) an ICMP case manager located at a facility
independent of the substance abuse agency, 3) an ICMP case manager
who provided case management through a computer-based telecommunication
system, or 4) standard substance abuse treatment.
Results indicated that ICMP participants assigned
to case managers housed in the treatment facility used more aftercare,
outpatient services and medical services upon completion of the
residential program than clients with no case manager, suggesting
that key components to the success of a case management program
are integration of case managers into the treatment organization
and accessibility to clients (Vaughan-Sarrazin, Hall and Rick, 2000).
However, the authors note that these results should be interpreted
with caution, as the study relied on self-report data, difficulty
defining specific types of services (e.g., physician contact, surgical
procedure), missing data and attrition. Furthermore, they did not
have data regarding the treatment styles of case managers.
Farrell and associates (1999) report the results
of a comprehensive study of predictors influencing continuity of
care for individuals discharged from State hospitals to communities.
The results indicate that although someone discharged from a State
hospital to a rural CMHC is twice as likely to have continuity of
care compared to those discharged to an urban CMHC, a primary diagnosis
of substance abuse strongly predicts low continuity of care.
In terms of particular kinds of treatment and
their effectiveness, a meta-analysis and literature review concluded
that family-oriented therapies were superior to other treatments
and enhanced the effectiveness of other treatments (Stanton &
Shadish, 1997). Multisystemic family therapy in particular was found
to be effective in reducing alcohol, substance use and other severe
behavioral problems among adolescents (Pickrel & Henggeler,
1996).
Killeen and Brady (2000) report outcome data from
a study of a residential substance abuse treatment program for women
and young children in rural South Carolina. Data were collected
regarding addiction severity, parenting and child emotional and
behavioral development at six and twelve months following discharge
from the program. Results showed that women who completed treatment
had better scores on addiction severity and parental stress, and
their children had improved behavioral and emotional functioning
at the six- and twelve-month follow-ups. Additionally, program completion
and longer length of stay may be associated with improvement in
the women's ability to function as parents.
Leukefeld and colleagues (2002) developed a therapy
for rural drug and alcohol users that incorporated social skills
training, motivational interviewing, case management and thought
mapping. A primary basis for this type of therapy was that, in rural
areas, there is a strong emphasis on independence and self-sufficiency,
which makes it difficult to talk about substance abuse problems,
especially with strangers. Additionally, fatalism (the belief that
one must cope with unsolvable problems) persists. Thus, social skills
training was taught in the context of cognitive-behavioral therapy
via structured stories. The stories provided context, highlighted
difficulties, and served as a starting point for describing negative
thinking patterns and substituting positive for negative self-talk
as described by cognitive-behavioral therapy.
Clark, Leukefeld, and Godlaski (1999) presented
a model of case management with rural clients entering drug and
alcohol treatment. As part of a larger treatment protocol called
Structured Behavioral Outpatient Rural Therapy, behavioral contracting
was combined with strengths perspective case management to help
rural clients motivate themselves to engage and complete drug and
alcohol treatment. This approach was designed to continually communicate
and teach an "A-B-C" cognitive-behavioral approach to
problems-solving and change. The Strengths Perspective of Case Management
was developed to help clients identify resources despite the view
that few exist, and to help clients overcome attitudes that feed
denial as well as avoid change (Rapp et al., 1996).
Monti and colleagues (1997) adapted coping skills
training (CST), a promising treatment approach for alcoholics, for
use with cocaine abusers and evaluated the effects on outcomes.
The cocaine-specific CST intervention was conducted in individual
sessions and involved CST based on functional analysis of high risk
situations. Clients who received CST had significantly fewer cocaine-use
days, and the length of their longest binge was significantly shorter
at the three-month follow-up period compared to clients in the control
condition. CST did not affect relapse rates or use of other substances.
Methamphetamine
Starting in the 1990s,
methamphetamine abuse and dependence has risen to near-epidemic
levels in some parts of the country (Cunningham & Thielemier,
1995); therefore, it requires special attention in this chapter.
A startling statistic indicates that emergency room admissions due
to methamphetamine increased 261 percent from 1991 to 1994 (Drug
Abuse Warning Network, 1997). While State substance abuse or behavioral
health divisions have increased efforts to identify the prevalence
of methamphetamine use, the task is difficult for several reasons,
especially in rural areas.
For instance, Montana and Hawaii exemplify the
difficulties found in large isolated or geographically separated
areas, which have limited health care services, privacy issues related
to disclosure of illicit drug use, lack of drug testing capability
and failure of patients to report the problem (Freese et al., 2000).
However, available data in Hawaii indicated that treatment agencies
were reporting methamphetamine as the primary drug of abuse at entry
for 38 percent of clients (ONDCP, 1997). An average of 55 percent
of clients at treatment entry used the drug, and a significant number
are single women with dependent children, half of whom were receiving
public assistance (Joe, 1995).
Freese and colleagues (2000) note that determining
key elements for effective treatment of methamphetamine abuse and
dependence is complex, as use patterns are variable, the drug can
be taken in multiple ways, and triggers for cravings and use vary
widely. While specific populations affected by abuse of this substance
can be identified according to a continuum of geography, culture,
sexual orientation, and other circumstances leading to treatment,
treatment programs must be accessible and understanding of these
particular clients. The authors suggest that the Matrix Model Treatment
Program (Rawson et al., 1991), a standardized relapse prevention
treatment format that provides a comprehensive framework to learn
recovery skills and facilitates participation in recovery activities,
may be the means through which providers can identify key elements
for successful treatment.
Special Populations
Despite the growth in literature regarding specific
populations, such as ethnic minority groups, women and the elderly,
an ongoing problem is the limited research regarding these populations
in rural areas. Nevertheless, this section will cover literature
produced since the last publication of this book regarding the populations
noted, as well as jail inmates and prisoners.
Ethnic Minority Populations
African Americans
Dawkins and Williams (1997) review literature
on substance abuse in rural African American populations and note
that most of the research has focused on alcohol problems. Among
the small proportion of studies regarding rural black populations,
three areas covered are 1) ethnographic studies describing the integration
of alcohol in rural black culture, 2) community surveys of blacks
and whites to determine racial differences in drinking behavior,
attitudes and problems and 3) regional and national survey findings
for areas of the country where rural blacks are concentrated. In
general, existing literature suggests that patterns of use for substances
such as alcohol and cigarettes are either similar between rural
blacks and whites or somewhat lower for blacks, but health and social
consequences are worse for rural blacks. Also, problems associated
with use of illicit drugs, such as heroin, marijuana, and cocaine
persist (Dawkins & Williams, 1997).
Albrecht, Amey and Miller (1996) used data from
the most recently available Monitoring the Future survey to examine
the role of race and residence in affecting substance abuse patterns
among 12,168 high school seniors self-described as black or white.
Between the two groups, blacks had substantially lower reported
use of all types of drugs compared to whites in both urban and rural
settings. Indeed, rural versus urban residence differences were
modest, but access and opportunity were important for facilitating
drug use. Also, family factors, self-esteem and involvement in activities
such as church attendance play important protective roles.
Dawkins (1996) examined the extent to which substance
use perceptions and behavior of African American youth and adolescents
are influenced by social environmental contexts. The findings indicated
that there are both similarities and differences in perceptions
and patterns of substance use, as well as the prediction of alcohol
and marijuana use in metropolitan (urban and suburban) and nonmetropolitan
(rural) social contexts.
The major similarities were that 1) alcohol or
illegal drugs were rated among the top three problems at school
by youth in early adolescence (eighth-grade) in both metropolitan
and nonmetropolitan settings; 2) by the time these youth reached
12th grade, patterns of marijuana use were similar across social
contexts; and 3) there was a relatively strong influence of peers
and early substance use on later substance use within each of the
three settings.
The major differences were that 1) rural eighth-graders
were more likely than metropolitan youth to perceive alcohol use
as a problem at school and, as 12th-graders, were more likely to
exhibit patterns of heavy alcohol involvement and more frequent
current use; 2) in the rural setting, the strong direct effect of
being male on alcohol use is consistent with previous research on
drinking patterns of black men. However, being recognized for receiving
good grades operated as a protective factor which decreased alcohol
use in the rural setting only; 3) the urban context may provide
a setting where substance use is more likely to be linked to violation
of conventional norms and family, school and community values; 4)
prior cigarette use was the most powerful predictor of marijuana
use among rural youth.
Mexican Americans
Castro & Gutierres (1997) provide an overview
of the literature regarding Mexican American substance use and abuse.
They note that little research exists, but that studies of alcohol
use in rural Mexico found that men were most likely to be heavy
alcohol consumers, whereas women were most likely to be abstinent.
Rural Mexican men who move to cities tend to reduce their alcohol
consumption, which is the opposite pattern from that of the United
States. The authors indicate that research regarding substance use
for rural Mexican American youth is mixed, as some has shown similar
use rates between these and white youth, whereas others have shown
higher drug use rates for Mexican-American females. Issues of traditionalism
and acculturation are thought to potentially influence different
use rates.
Vega and colleagues (1998) report data from the
Mexican American Prevalence and Services Survey, which presents
lifetime prevalence rates for 12 DSM-III-R psychiatric disorders
in a sample of 3,012 adults (non-institutionalized persons aged
18 to 59 years of age) of Mexican origin. Comparing these results
with those of population surveys conducted in the United States
and Mexico, Mexican immigrants had lifetime rates similar to those
of Mexican citizens, while rates for Mexican-Americans were similar
to those of the national population of the United States. A higher
prevalence for any disorder was reported in urban (35.7 percent)
compared with town (32.1 percent) or rural (29.8 percent) areas.
Despite very low education and income levels, Mexican Americans
had lower rates of lifetime psychiatric disorders compared with
rates reported for the U.S. population by the National Comorbidity
Survey.
Native Americans
Rural Native Americans do not differ from urban
Native American populations in rates of alcohol abuse, which are
higher than the population at large. However, rural Native Americans
tend to have more episodes of binge drinking (National Rural Health
Association, 1999).
Based on interviews with 212 children (115 boys
and 97 girls) from three American Indian reservations located in
the upper Midwest, Whitbeck and colleagues (2002) identified a profile
among the fifth- to eighth-grade American Indian adolescents who
report gang involvement. The profile is that of a male or female
who engages in delinquent behaviors and/or substance abuse and lives
in a single-mother household where the mother has a history of antisocial
behavior. The adolescent is probably not doing well academically
and has experienced multiple life transitions or losses in the past
year.
Rowe (1997) reported results from a five-year
CSAP-funded community substance abuse prevention program that was
launched in a small (550 member), rural Native American communities
in Washington State that had a history of serious alcohol and drug
problems. The Chi-e-thee ("workers") grass-roots program
sought to address substance abuse by using community collaboration
between tribal agencies, community empowerment and education, cultural
enhancement and development of support networks and services for
people engaged in healing and recovery.
This program was successful in sponsoring over
215 cultural and educational events, and resulted in 96 community
members making a commitment to sobriety, a community-wide change
in norms about wellness and substance abuse, the creation of new
networks of communication and collaboration and new tribal policies
and enforcement practices to curtail drug and alcohol abuse. The
number of clean and sober individuals was determined to have increased
from 25 percent of the adult population in 1992 to 40 percent of
the adult population in 1996.
Asian-Americans
Despite growing literature addressing mental health
and substance use issues among the many populations that have Asian
origin, the authors could find no research regarding substance use
issues for Asians in mainland rural areas. This is likely due, at
least in part, to very limited numbers of Asians in most rural areas
of America. However, Waitzfelder, Engel and Gilbert (1998) studied
substance abuse in Hawaii, including 1) the magnitude of the statewide
substance abuse problem, 2) the unmet needs of the State's substance
abuse treatment system and 3) the features of the problem unique
to Hawaii's many ethnic and other subgroups.
The study targeted 55 human service organizations
most burdened by the substance abuse problem. Respondents perceived
the magnitude of the Hawaii substance abuse problem to be at least
comparable to that of the mainland United States. Although most
respondents viewed the problem using a medical model, the problem
was generally thought to be exacerbated by a community context in
which substance abuse is accepted, excused or denied. Increasing
use of crystal methamphetamine and heroin were cited as the most
worrisome trends.
Systems issues identified were similar to those
of rural areas (e.g., unstable funding, lack of services, transportation,
outreach). Cultural alienation, exacerbated by the State's prevailing
multiculturalism, was thought to contribute to the substance abuse
problem among all ethnic groups, but especially among Native Hawaiians.
Cultural factors were thought to have a major impact on seeking
care and subsequent acceptance of such care.
Women
Boyd (2000) conducted a study to identify risk
factors that predict substance abuse and primary comorbid psychiatric
disorders in rural women. Two factors-alcohol beliefs and threats
of minor violence-correctly identified substance abusing women from
nonsubstance abusing women, and women with nonsubstance use psychiatric
disorders from those with no psychiatric disorder. Women who abuse
alcohol, as well as those who predominately abuse drugs, have significantly
more positive expectations for alcohol use than those who do not drink
or abuse alcohol. Victimization and other forms of traumatic experiences
affect women's beliefs in personal invulnerability, perceptions of
a meaningful world and positive self-views. The assault on these important
beliefs often leads to symptoms of hopelessness, helplessness, self-defeating
coping strategies and alienation. Boyd and Mackey (2000) found that
factors contributing to women's sense of alienation included a background
of emotional, physical, and sexual abuse.
Boyd and Hauenstein (1997) describe efforts to
diagnose co-occurring disorders in rural women. They used the Michigan
Alcoholism Screening Test (MAST; Selzer, 1971), Center for Epidemiologic
Studies Depression Scale (CES-D; Radloff, 1977) and the National
Institute of Mental Health (NIMH) Diagnostic Interview Schedule,
Version III (DIS; Robins, Helzer, Croughan & Ratcliff, 1981).
The results indicate that the MAST and CES-D are effective screening
tools for alcoholism and depression among rural women, and because
these instruments are relatively short, they can be easily incorporated
into regular health screening.
Prisoners/Inmates
Warner and Leukefeld (2001) examined differences
between urban and rural drug use patterns and treatment utilization
among chronic drug abusers to determine whether, and in what ways,
rurality may affect substance abuse and treatment seeking. Findings
showed that chronic drug abusers from rural and very rural areas
have significantly higher rates of lifetime drug use, as well as
higher rates of drug use in the 30 days prior to their current incarceration
than chronic drug abusers from urban areas. However, being from
a very rural area decreased the likelihood of having ever been in
treatment.
Using interview data collected at seven county
jails in both urban and rural areas of Ohio, Lo and Stephens (2002)
examined factors associated with arrestees' subjective perception
of substance treatment needs and evaluated whether relationships
between these factors and perceived needs for treatment were identical
in urban and rural areas.
Results indicated that motivation for substance-specific
treatment differed among urban and rural arrestees only regarding
perceived treatment needs for cocaine, with urban arrestees more
likely to see a need for treatment. However, respondents identified
as currently dependent on alcohol, cocaine, opiates or marijuana
were more likely than nondependent respondents-across the urban-rural
spectrum-to show motivation for substance-specific treatment. The
results show that having a romantic partner was linked to perceived
needs for marijuana treatment. In addition, being employed full
time increased perceived needs for cocaine treatment among urban
arrestees. In contrast, full-time employment decreased this perception
among rural arrestees.
Stohr and colleagues (2002) evaluated residential
substance abuse and treatment (RSAT) programs developed to address
the drug and alcohol treatment needs of inmates in prisons. Typically,
such programs range from six to twelve months, have an Alcoholics
Anonymous and/or Narcotics Anonymous component, occur in a therapeutic
community environment and some programs include a cognitive self-change
component. Inmate participation in their programming is crucial
to the success of a therapeutic community treatment environment.
Participants in two RSAT programs were generally positive in their
perceptions of most of the program components. However, those who
were in the program longest were less positive about several aspects
of it, whereas those who were heavy alcohol users were more positive
about other aspects.
Godley and colleagues (2000) described a case
management model for individuals involved with the criminal justice
system who had significant, co-occurring mental illness and substance
abuse disorders. During the three-year project, 54 out of 115 screened
were accepted into the project. Of the clients accepted into the
program, 44 (81 percent) were terminated from the program (61 percent
successfully, 39 percent unsuccessfully) and 10 (19 percent) remained
active at the end of the pilot period.
Program evaluation data indicated that six months
after entering the program, clients had fewer legal problems and
appeared to have symptom relief. However, measures did not reveal
significant improvements in drug or alcohol composite scores. Clients
perceived themselves as better off in most areas than the previous
year, were generally satisfied with the case-management program,
but had some dissatisfaction in the area of employment. Qualitative
reviews from two probation officers and a judge who referred to
the project were positive.
Elderly
The Surgeon General's Report on Mental Health
(1999) included a section on alcohol and substance use disorders
in older adults. The report Stated that older people are not immune
to the problems associated with improper use of alcohol and drugs,
but misuse of alcohol and prescription medications appears to be
more common than abuse of substances. However, few studies have
focused on incidence and prevalence of substance abuse for older
adults, and these studies had methodological problems, suggesting
that this popular perception may be misleading.
A persistent research problem has been that diagnostic
criteria for substance abuse were developed and validated on young
and middle-aged adults. For example, DSM-IV criteria include increased
tolerance to the effects of the substance, which results in increased
consumption over time. However, changes in pharmacokinetics and
physiology may alter drug tolerance in older adults-decreased tolerance
to alcohol for older individuals may lead to decreased consumption
of alcohol with no apparent reduction in intoxication. Criteria
that relate to the impact of drug use on typical tasks of young
and middle adulthood (e.g., school and work performance) may be
largely irrelevant to older adults. Thus, abuse and dependence among
older adults may be underestimated (Ellor & Kurz, 1982; Miller
et al., 1991; King et al., 1994).
Seriously Mentally Ill (SMI)
In a cross-sectional study of 1,551 clients receiving
care in 10 community-based rural mental health care systems, Barry
and colleagues (1996) assessed problem behaviors and psychiatric
symptoms among three groups of SMI clients: those with a current
substance abuse problem, those with a history of substance abuse
but no current problem and those with no history of substance abuse
problems. Results indicated that clients with a current substance
abuse problem were younger, had more 1) symptoms of anger, 2) trouble
with the law and 3) suicidal threats than clients in the other two
groups.
Mueser and colleagues (2001) evaluated the differences
between two cohorts of patients with SMI (schizophrenia-spectrum
or bipolar disorder) and co-occurring substance-use disorders, living
in either predominantly rural (New Hampshire) or urban areas (two
cities in Connecticut). The two study groups were compared on demographic
characteristics, housing, legal problems, psychiatric and substance
use diagnoses, substance use and abuse, psychiatric symptoms and
quality of life. The urban group had higher rates of cocaine-use
disorder, more involvement in the criminal justice system, more
homelessness and was more likely to have a minority background.
This group also had a higher proportion of patients with schizophrenia,
more severe symptoms, as well as lower rates of marriage, educational
attainment and work. Alcohol-use disorder was higher in the rural
group.
Summary
The growing literature on substance abuse in rural
America reflects data indicating increases in substance use disorders
in these areas. Co-occurring mental health and substance abuse disorders
for both children and adults has become a major focus of providers,
administrators and policy makers in the 21st Century. We now have
a better understanding of the developmental pathways toward substance
abuse, but are still limited in our knowledge of the larger social
context in which such disorders are cultivated. Part of the difficulty
is the wide variability from one rural area to the next across the
country and outlying States (i.e., Alaska and Hawaii). There are
many different kinds of people, living in vastly different geographical
and geological places, each with unique cultures.
Attempts to prevent the development of substance
abuse disorders have had mixed results, but some programs, such
as Preparing for the Drug Free Years, have been shown to
have positive effects for parents and children. Other programs that
adopt similar principles and objectives have also demonstrated success,
but the long-term effects of all such programs still require more
research.
Treating substance abuse in rural America involves
the same problems noted for mental health, such as rural programs
based on urban models, fragmented service systems, large geographic
areas, confidentiality and stigma in a rural culture, to name just
a few. Research regarding specific populations in rural areas, such
as ethnic minorities, women and the elderly are still lacking. However,
initiatives such as the President's New Freedom Commission on
Mental Health have rural America as a primary area of focus,
and will undoubtedly impel our knowledge and effectiveness forward.
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4
Mental Health Service Delivery
in Rural America: Organizational and Clinical Issues
Earlier chapters have
provided a context for a discussion of mental health service delivery
issues in rural America. "Rural America comprises 2,305 counties,
contains 83 percent of the nation's land, and is home to just over
60 million Americans, 25 percent of this country's total population"
(McCabe & Macnee, 2002). Rural communities must address an equivalent
prevalence of serious mental illnesses and clinical complexities
in comparison to urban areas. The overall numbers of individuals
with serious mental illnesses may be small (Gale & Deprez, 2003),
but these individuals often live across vast areas, making coordinated
service delivery challenging.
At the same time, rural communities generally
have fewer services and mental health professionals than their urban
counterparts. In many areas the number of mental health professionals
is actually decreasing (Kane & Ennis, 1996), further exacerbating
the issue of limited core services, such as case management, inpatient
service, crisis response and continuity of care (Kane & Ennis,
1996; Rohland et al., 1998; Shelton & Frank, 1995). Limited
resources are usually directed toward acute care needs, as opposed
to prevention and health promotion (Gale & Deprez, 2003). In
fact, Shelton and Frank (1995) found that rural community general
hospitals provide more emergency psychiatric services than do their
urban counterparts. Clearly, barriers to workforce development,
as well as funding shortages are ever-present challenges.
To not only survive but also provide quality care,
rural mental health systems are required to become increasingly
creative in the assessment and provision of services. There has
been little research done on what organizational structures and
partnerships are most effective in meeting rural need (Amundson,
2001). Local decision-makers are struggling with how to transform
fragmented care into coordinated service delivery systems (Gale
& Deprez, 2003). Specialty practices are often not feasible,
pushing communities to explore cross-system partnerships to meet
consumers' individualized needs.
Mental health consumers generally seek services
through the path of least resistance, which is often emergency rooms,
primary care physicians, schools, the criminal justice system and
natural support systems (e.g., faith-based organizations). These
various service sectors may become components of a community's integrated
mental health system. More specifically, many communities are establishing
partnerships with primary care and schools, establishing multidisciplinary
teams using assertive community treatment (ACT) or ACT-like models
and utilizing paraprofessionals on treatment teams (Gale & Deprez,
2003; Kane & Ennis, 1996).
As indicated in previous chapters, rural areas
are often perceived as homogeneous. However, there is actually a
rich diversity among rural communities in terms of geography and
culture. In this sense, service delivery systems need to match the
unique history and qualities of different communities (Mulder et
al., 2003). Some rural communities are able to optimize the natural
strengths and supports they possess (Kane & Ennis, 1996).
Culturally, rural communities may rely much more
on institutions outside of the traditional mental health system
for mental health issues (Sears et al., 2003). Funding levels are
typically anemic for mental health care, but dollars are not the
only driver of services in many communities. Talents, infrastructure
and even geographical features can be community assets over and
above general funding levels (Mulder et al., 2003). However, there
has been little work done on how rural communities may most effectively
scan and then optimize these local assets.
Calls for the integration of service sectors and
community assets are frequent, but a number of potential hurdles
exist. Different professional groups may have conflicting philosophies
and practices, communication may be ineffective, there may be disagreement
regarding roles and regulations may discourage service flexibility
(Van Hook & Ford, 1998). Rural successes and barriers are presented
below as information for communities exploring service delivery
alternatives for mental health.
Community Mental Health Centers
The Community Mental Health Centers Act of 1963
and amendments in 1975 created CMHCs in many rural areas. These
CMHCs were required to provide a range of services, including outpatient,
inpatient, consultation and education, partial hospitalization and
emergency/crisis intervention. Federal regulations also required
linkages to the community and other community agencies.
For many, this brought a mental health service
presence to areas that had previously been lacking. In some cases,
this service presence appears stronger in rural areas than it does
in urban localities. For example, Farrell and colleagues (1999)
found that persons discharged from State hospitals to rural CMHCs
were twice as likely to have continuity of care compared to urban
areas. In this study, continuity of care was operationalized as
demonstrating sufficient communication and planning between CMHCs
and hospitals and services offered within two weeks of discharge.
Although rural communities have benefited from
the CMHC system, traditional centers are unable to sufficiently
address the level of current need. CMHCs are considering ways to
form relationships with other health services to leverage resources
to adequately meet this need (Hargrove & Keller, 1997).
Alternative Service Models and Treatment Settings
Multidisciplinary Teams
Urban case management models may not be viable
in rural areas due to inconsistent and inappropriate training, restrictions
regarding the roles of paraprofessionals and other healthcare workers
and general limited service availability. Alternative models are necessary.
Some rural communities are developing multidisciplinary healthcare
teams comprised of case managers, mental health professionals, social
workers, health educators and/or community outreach workers and a
primary care clinician (Amundson, 2001).
Mental health service teams require the participation
of existing community provider organizations and agencies. This
model has had initial positive results, but full utilization and
systems outcome evaluations are in early stages of development.
Early findings suggested that these multidisciplinary teams can
be established by utilizing the existing range of mental health
professionals within fairly simple community organizational structures,
while optimizing community predispositions to integrated services
(Amundson, 2001).
Assertive Community Treatment (ACT), an evidence-based
practice (EBP) for persons with serious mental illness, is one example
of using multidisciplinary treatment teams. While communities have
been importing models of multidisciplinary care that have varying
levels of fidelity to ACT, historically, ACT and other EBPs have
been created and tested in urban, predominantly White treatment
environments, and the availability of these service models have
varied greatly.
EBP programs and policy are routinely based upon
urban models and experiences, and scaled-down to fit rural settings
(Gamm, 2002; Mohatt, 2000). Although ACT has been in existence for
many years, there are only a small number of studies that have explored
whether or not ACT can be effectively integrated into rural settings
and across race/ethnicity. Accordingly, the challenges and pitfalls
of adapting this EBP have been well documented (Lachance, 1996;
McDonel, 1997; Santos, 1993).
Several studies provide emerging data regarding
ACT models in rural America. Lachance and Santos (1995) discuss
how to modify ACT models for use in rural areas and suggest the
need to keep six basic elements: 1) multi-service teams, 2) 24-hour
service availability, 3) small caseloads that do not vary in composition,
4) ongoing and continuous services, 5) assertive outreach and 6)
in-vivo rehabilitation.
McGrew, Pescosolido & Wright (2003) evaluated
73 ACT teams' ratings on the benefit of 16 activities and importance
of 27 possible critical ingredients of the ideal team. Having a
full-time nurse on the team was rated as the most important ingredient,
and medication management was rated as the most beneficial clinical
activity. The ratings of teams from urban and rural settings were
highly correlated. The most under-implemented critical elements
included the presence of a full-time substance abuse specialist,
a psychiatrist's involvement on the team, team involvement with
hospital discharge and working with a client support system.
Santos and colleagues (1993) evaluated the effect
of an ACT program on rates of hospital utilization and cost of care
and found a 79 percent decrease in hospital days per year, a 64
percent decrease in the number of admissions per year, a 75 percent
decrease in the average length of stay per admission, and a 52 percent
reduction in estimated direct cost of care.
Fekete and colleagues (1998) assessed the effectiveness
of ACT compared to traditional mental health services in four rural
communities regarding hospitalization use, quality of life, level
of functioning, attitudes toward medication and residential, vocational
and legal involvement. Experimental differences on staff rating
of quality of life, level of functioning and symptoms favored ACT
clients. There were no experimental differences in hospital use,
but ACT clients exhibited less residential stability than control
clients.
In a three-year controlled comparison between
urban and rural integrated service agencies in California, communities
utilized interdisciplinary teams similar to those in ACT programs
within a capitated service delivery system (Chandler et al., 1996).
The study found that those receiving the intervention had less hospital
care, greater workforce participation, fewer group and institutional
housing arrangements, less use of conservatorship, greater social
support, more leisure activity, less family burden and greater client
and family satisfaction. It is noteworthy that urban participants
also faired better than rural participants in financial stability,
personal well-being and friendship.
School-Based Programs
Across the nation, there is a focus on school-based
and school-linked initiatives. The value of schools to mental health
care includes access to youth, geographic proximity and linkage to
local policymakers and health professionals (Sears et al., 2003).
These initiatives usually take the form of multidisciplinary approaches
within school settings.
For example, more than 20 pilot schools in largely
rural areas in South Carolina created integrated school-based mental
health services models (Motes et al., 1999). One study surveyed
62 school administrators from rural, suburban and urban and found
that suburban and rural schools provided more health and mental
health services than urban schools. Even so, across all sites, physical
health services still far outnumbered mental health services (Weist
et al., 2000).
Partnerships between higher education and rural
mental health systems have been successfully implemented in several
States through Cooperative Extension Programs (Sears et al., 2003).
The Institute for Social and Behavioral Research at Iowa State University
has collaborated with Iowa State University Extension Services since
the early 1990s in the creation and delivery of the Strengthening
Families Program, a parenting skills and substance use prevention
program that has shown promising results. This collaborative effort
has supplied training and dissemination of the Strengthening Families
Program to 30 counties.
A second collaborative model of mental health
service delivery is found in Florida. In response to the psychological
effects of Hurricane Andrew in 1992, the University of Florida Rural
Psychology Program collaborated with the Department of Clinical
and Health Psychology and the North Florida Area Health Education
Center to improve access of mental health education and services
for rural residents. The collaborative also sought to train health
practitioners who in turn might foster local sustainability. There
is growing evidence in support of these collaborative models of
mental health service delivery (Sears et al., 2003).
The Physical and Behavioral Health Linkage
Primary care physicians (PCPs) provide most mental
health treatment in rural areas (Badger et al., 1999), as they are
usually the first medical professionals to encounter patients' mental
health problems (Bray et al., 1997). Sears and colleagues (2003)
reviewed studies investigating prevalence of psychiatric disorders
in rural primary care settings and found that 34 to 41 percent of
patients had a mental health disorder. Other authors have suggested
that more than half of all people suffering from mental disorders
seek help through primary care, yet the majority of their conditions
remain inappropriately diagnosed (Badger et al., 1999).
Integration of behavioral and physical health
matches many patients' preferences for the environment in which
they wish to receive mental health services. From a resource management
perspective, integrated models also reduce or eliminate duplicated
assessment and treatment efforts (Badger et al., 1999). Integrated
services allow a multidisciplinary team to efficiently treat the
comorbid conditions that the majority of mental health consumers
present.
Because most PCPs do not have the training to
adequately diagnose mental health issues, a large number of individuals
are not receiving appropriate or adequate treatment. Rural areas
need to determine what proportion of mental health consumers are
served through primary care and what particular integrated care
models might be efficiently incorporated into local community health
infrastructures. There is a wide spectrum of integrated models ranging
from full onsite integration (almost always housed in a primary
care setting) to more formalized linkage and referral systems (Badger
et al., 1999; Bird et al., 1998).
McCabe and Macnee (2002) found that communities
implementing integration plans moved through a series of stages,
from parallel behavioral and physical health systems, to overlapping
services, and finally to a synthesized system. Bird and colleagues
(1998) studied 53 primary care organizations in 22 States and found
that four integration models were identified: 1) diversification,
2) linkage, 3) referral and 4) enhancement, with communities typically
using a combination of these strategies.
Although a number of viable alternatives exist,
linking primary care and mental health care in rural areas remains
difficult. A persistent problem is that primary care and mental
health providers differ in terms of their patients, reimbursement
and treatment philosophies (Lambert & Hartley, 1998). Additionally,
primary care and mental health professionals may have long-standing
modes of communication that are not advantageous to integrated care
models. For instance, PCPs may be accustomed to consults at a distance
(e.g., telephone), and they may receive little information back
when referring out to mental health specialists. In part, this ineffective
feedback loop is due to historical concerns regarding the balance
between confidentiality and treatment partnerships (Little et al.,
1998). In theory, integrated models are applauded by both the behavioral
and physical health sectors, while in practice there are a multitude
of details that must be worked through as communities forge innovative
treatment partnerships.
Among the 53 successfully linked (i.e., integrated)
programs Lambert and Hartley (1998) identified nationally, efforts
ranged from small, local projects to sophisticated multi-county
networks. The authors found that organizations cooperate with each
other when it is in their self-interest and that motivation to integrate
cannot be mandated. To overcome natural avoidance of change, community
champions will need to identify and market the value-add that integrated
models hold for all involved service sectors.
An essential element of outreach and marketing
will be the clear message that integrated services are either cost
neutral or, in the best case scenarios, lead to cost savings. At
the same time, cost benefits will not be sufficient (Lambert &
Hartley, 1998). There are inherent disadvantages to integrated care
that must be addressed. For example, benefits to mental health consumers
and cost savings may lead to individual organizations losing some
autonomy. Also, sites may no longer enjoy the same levels of independence
regarding budgets and accountability.
The Linkages Project is an example of a demonstration
project that addresses many integration issues. The project trained
psychologists and family physicians for collaborative practice and
also focused on cultural differences between professional practices;
differences between medical specialties and strategies for success,
such as practice styles and issues, confidentiality and sharing
patient records between the professions, stereotypes and emotional
factors that impede collaborative practice, linkage and referrals,
financial arrangements, methods for developing collaborative practice
and nontraditional mental health practice (Bray et al., 1997).
Another study looked at the results of placing
28 mental health staff in general rural health care settings (Van
Hook & Ford, 1998). The study found that benefits of the model
included increased access and coordination and promotion of an integrated
vision of health care. Barriers were also apparent. The partnering
organizations needed to surmount space limitations, differences
among health disciplines and administrative logistical problems.
These and other studies of integrated care models will be instructive
as communities tackle rural service delivery concerns such as healthcare
professional shortages and the prevalence of mental health issues
seen in primary care settings.
Safety Net Providers in Rural Areas
Various provider types (i.e., public hospitals
and Community Health Centers) are often mentioned when discussing
safety net providers. These two providers are responsible for a
large portion of the safety net care in underserved communities
(Hartley & Gale, 2003). The Community Mental Health Centers
Act of 1963 provided Federal funding to develop satellite clinics
in rural or remote areas (Geller et al., 1997). The number of these
clinics has declined since 1981 due to shifts in government funding
and with the growth of managed care systems (Geller et al., 1997).
Rural hospitals are more likely to be government-owned
than urban hospitals (Mohr et al., 1999). Other differences exist
between rural and urban hospitals. According to the Medicare Payment
Advisory Committee (2001), rural hospitals, in general, have a lower
Medicare inpatient margin (4.1 percent in 1999) when compared to
urban hospitals (13.5 percent). Rural hospitals tend to be more
dependent on Medicare and have a smaller percentage of patients
who pay with private insurance (Medicare Payment Advisory Committee,
2001). Although urban hospitals have a large, publicly-funded patient
base, they have a larger tax-base and have more clinicians to deliver
the care (Hartley & Gale, 2003).
Federally Qualified Health Centers (FQHCs) are
another type of safety net provider. According to Farley and colleagues
(2002), as of 1998, 42 percent of the 1,890 FQHCs were located in
rural counties.
A third type of safety net provider is public
mental health departments. However, certain specialty services (e.g.,
prenatal care and HIV/AIDS treatment) are often not available in
rural areas (Hartley & Gale, 2003; Ricketts, Slifkin & Silberman,
1998).
The Federal Government has established providers
designed specifically for rural areas, including Rural Health Clinics
(RHC) and Critical Access Hospitals (CAH) (Hartley & Gale, 2003).
RHCs were created in 1977 to help recruit medical practitioners
to rural communities (Gale & Coburn, 2003). RHCs are mandated
to serve Medicaid patients but are not obligated to serve all uninsured
patients (Hartley & Gale, 2003). CAHs were created by the Medicare
Rural Hospital Flexibility Act (1997), which allows hospitals in
rural areas to offer more acute inpatient services. A CAH facility
must meet the following criteria: 1) be located in a State that
has an approved rural health plan; 2) be located in a rural area
more than a 35-mile drive from any other hospital or CAH (15 miles
in mountainous terrain or in areas with only secondary roads) and
3) maintain an average acute care length of stay of 96 hours or
less; limit their bed size to 25 acute care beds (Hagopian &
Hart, 2001).
Programs Supporting Rural Health Care
Hartley and Gale (2003) delineate several Federal
programs that support the delivery of health care services in rural
areas.
- The National Health Service Corps (NHSC)
provides for assignments of Federally employed and/or service-obligated
physicians, dentists and other health professionals. The program
provides scholarship and loan repayments to health professionals
who agree to serve in the NHSC in Health Professions Shortage
Areas (HPSAs). 1
- The Area Health Education Center Program
addresses the maldistribution of health professionals in medically
underserved areas by linking communities with academic health
centers to promote cooperative solutions to local health problems.2
- The Rural Health Clinics Program provides
enhanced Medicare and Medicaid reimbursement for services provided
by physicians, physician assistants, nurse practitioners, certified
nurse midwives, clinical social workers and clinical psychologists
practicing in clinics in rural HPSAs, Medical Underserved Areas
(MUAs), or Governor Designated Shortage Areas (GDSAs).3
- Medicare Incentive Payment for Physician
Services Furnished in HPSAs gives a 10 percent bonus payment
to physicians providing Medicare-reimbursable services within
geographic HPSAs.4
- Medicare Reimbursement for Teleconsultations
are provided for teleconsultations originating in nonmetropolitan
counties or primary care geographic HPSAs in metropolitan areas.5
- Public Health Service Grant Programs
support innovations and targeted expansions in health professions,
education and training. They emphasize increasing the diversity
of the health care workforce and preparing providers to serve
diverse populations and to practice in the Nation's 3,000 medically
underserved communities.6
- Community Health Center grant funds
support the development and operation of health centers that provide
preventive and primary health services to medically underserved
areas or populations. Priorities are focused on providing services
in the most medically underserved areas and maintaining existing
centers that are serving high-priority populations.7
- Federally Qualified Health Centers (FQHCs)
qualify systems of care as FQHCs, if they meet the definition
of a community health center contained in Section 330 of the Public
Health Service Act, but are not funded under that section, and
are serving a designated MUA or MUP. This designation provides
cost-based reimbursement of services to qualifying facilities.8
- J-1 Visa Waiver Program allows graduates
of foreign medical schools to obtain a waiver of the J-1 visa
"home-residence" requirement, in return for providing primary
care or general mental health care in Federally designated rural
and urban communities that have shortages of primary care physicians
or psychiatrists.9
Summary
Models of mental health care have predominantly
been designed in urban locales in coordination with academic centers.
The dissemination of these models to rural communities may be a
mismatch in terms of resource allocation and culture. It is critical
that rural mental health administrators and decision makers not
only explore workforce development but the structure in which mental
health services are embedded. Some mental health systems are successfully
leveraging their resources by coordinating care with other service
sectors, such as the schools and primary care, as well as natural
systems of supports (e.g., faith-based and philanthropic organizations).
The thoughtful linkage of service systems may increase service access
to rural residents, while also acknowledging cultural norms leading
persons to seek services outside of a traditional CMHC structure.
Rural service delivery advances are challenging, but the available
literature suggests that communities do have pragmatic options.
References
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communities as crucibles for clinical reform: Establishing collaborative
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Lambert, D. and Hartley, D., (1998). "Linking
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McCabe, S. and Macnee, C. L., (2002). "Weaving
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of assertive community treatment and on its implementation. Psychiatric
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Mohatt, D. F. (2000). "Access to mental
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Motes, P. S., Melton, G., et al. (1999). "Ecologically
oriented school-based mental health services: Implications for
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391-401.
Mulder, P. L., Linkey, H., et al. (2003). Needs
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guide. B. H. Stamm. Washington, D.C., American Psychological Association:
67-79.
Ricketts T, Slifkin R, Silberman P. The
Changing Market, Managed Care and the Future Viability of Safety
Net Providers-Special Issues for Rural Providers. Background
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Center for Health Services Research, University of North Carolina
at Chapel Hill; 1998.
Rohland, B. M., Rohrer, J. E. et al., (1998).
"Broker model of case management for persons with serious
mental illness in rural areas." Administration & Policy
in Mental Health 25(5): 549-553.
Santos, A.B., Deci, P.A., Lachance, K.R., et
al. (1993). Providing assertive community treatment for severely
mentally ill patients in a rural area. Hospital and Community
Psychiatry, 44, 34-39.
Sears, S. F., Evans, G. D. , et al. (2003).
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Rural behavioral health care: An interdisciplinary guide. B. H.
Stamm. Washington, D.C., American Psychological Association: 109-120.
Shelton, D. A. and R. Frank (1995). "Rural
mental health coverage under health care reform." Community
Mental Health Journal 31(6): 539-552.
Van Hook, M. P. and Ford, M. E., (1998). "The
linkage model for delivering mental health services in rural communities."
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school mental health services: Assessing needs related to school
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Notes for Chapter 4
1. http://nhsc.bhpr.hrsa.gov
2. http://bhpr.hrsa.gov/ahec/
3. http://www.cms.hhs.gov/manuals/Downloads/bp102c13.pdf
4. http://www.cms.hhs.gov/hpsapsaphysicianbonuses/
5. http://www.cms.hhs.gov/transmittals/downloads/B000260.PDF
6. http://bhpr.hrsa.gov/Grants/Default.htm
7. Community
Health Center
8. http://www.bphc.hrsa.gov/CHC/
9. http://www.globalhealth.gov/waiverannouncement.shtml
5
Workforce Development
The Scope and Nature of Workforce Shortages
in Rural America
Mental health workforce shortages have been
a fact of life in rural America for decades (Flax, Wagenfeld,
Ive & Weiss, 1979; Murray & Keller, 1991). For instance,
consider these statistics identified from the President's New
Freedom Commission on Mental Health, Subcommittee on Rural Issues
report:
Map 1: Mental Health Professional Shortage
Areas (generated at http://datawarehouse.hrsa.gov/)

- More than 85 percent of 1,669 Federally
designated mental health professional shortage areas are rural
(Bird, Dempsey & Hartley, 2001).
- Holzer and colleagues (2000) found that
few psychiatrists, psychologists, or clinical social workers
practice in rural counties and that the ratio of these providers
to the population worsens as rurality increases.
- For the past 40 years, approximately 60
percent of rural America has been underserved by mental health
professions.
- The National Advisory Committee on Rural
Health (1993) noted that across the 3,075 counties in the
United States, 55 percent had no practicing psychiatrists,
psychologists, or social workers, and all of these counties
were rural.
- These workforce shortages are even worse
for specialty areas, such as children's mental health, older
adult mental health and minority mental health.
The report goes on to describe factors that
have impeded workforce development, which generally included
an intricate mix of training, professional, organizational and
regulatory issues. (For more details, see the report at http://www.mentalhealthcommission.gov/papers/Rural.pdf).
Bird, Dempsey and Hartley (2001) offer other
data that buttresses these statistics. For instance, the lack
of mental health professionals is likely a key factor in explaining
differences in access and use of mental health services in rural
compared to urban areas. Additionally, it is difficult to translate
methods for estimating workforce adequacy from health to mental
health, as the mental health workforce is characterized by a
considerable overlapping of roles. The authors suggest that
baseline data on the reality of the mental health workforce
in rural areas are needed in order to make adequate projections
and/or comparisons. They encourage national and State mental
health professional associations to participate in the collection,
verification, and analysis of workforce data. State Medicaid
agencies are also viewed as a potential resource for workforce
data.
In a National Health Policy Forum (NHPF) Issue
Brief, Koppelman (2004) describes the shortage of qualified
providers to address children's mental disorders, possible causes,
the relationship of managed care to practice patterns and difficulties
deciding which providers are most qualified to deliver what
care. In brief, she identifies issues similar to what has been
discussed. For instance, the mental health workforce is described
as "in flux," with practice boundaries between psychiatrists,
psychologists, counselors and other mental health professionals
becoming increasingly blurry to consumers and payers. Some of
these professions are described as redefining their roles, which
makes it difficult to determine how many more mental health
professionals are needed to boost supply.
Furthermore, different mental health disciplines
require different levels of training, have different areas of
expertise and have different salaries (Koppelman, 2004). Indeed,
money is noted to be a fundamental issue regarding the development
of an adequate workforce. Education is expensive, health plans
favor lower-paid providers and mental health professionals in
the public system often get paid less.
The Western InterState Commission for Higher
Education (WICHE) Mental Health Program analyzed data (from
http://higheredinfo.org/)
regarding population projections from 2000 to 2025 for its 15
member States (Alaska, Arizona, California, Colorado, Hawaii,
Idaho, Montana, Nevada, North Dakota, New Mexico, Oregon, South
Dakota, Utah, Washington and Wyoming). If these projections
are accurate, only four States-Alaska, California, Hawaii and
New Mexico-will have more people entering or in the workforce
than leaving it.
Specifically, the 15-WICHE member States will
average an 18 percent increase in persons age 18 to 64 (range
of 1.4 percent in North Dakota to 37.8 percent in Hawaii) between
2000 and 2025. However, in the same time period, these States
will average a 122 percent increase in those entering their
retirement years (i.e., 65 years and older) (range of 72.6 percent
in South Dakota to 159.7 percent in Utah).
While this is by no means an exhaustive list
of issues that define the workforce shortage problem in rural
America, one can get a good sense of its scope. Problems such
as these will not be solved immediately, but work to address
them is underway.
Policy Options & Goals for Rural Workforce
Development
Three policy options regarding workforce development
in rural America are offered in the New Freedom Commission,
rural subcommittee report:
- "Policy Option 8: The Secretary of HHS is
urged to convene a cross-agency work group to examine existing
workforce enhancement programs and make recommendations for
ensuring and enhancing their collaborative focus on rural mental
health needs" (p. 10).
- "Policy Option 9: The Subcommittee
encourages the Secretary of HHS to support an effort to articulate
a rural mental health workforce strategy that includes a realistic
use of and support of mid-level and alternative providers of
mental health services" (p. 11).
- "Policy Option 10: The Subcommittee
proposes that the Administrator of SAMHSA ensure the support
of programs that specifically support the training, deployment
and continuing education of rural mental health professionals.
Such support might focus on strengthening the capacity and competency
of the workforce to support an evidence-based practice care
delivery system" (p. 11).
Furthermore, three specific
goals in the final report to the President directly addressed
workforce issues, especially for rural America. These included:
GOAL 3 Disparities in Mental Health Services
Are Eliminated:
- 3.2 Improve access to quality care in rural
and geographically remote areas.
GOAL 5 Excellent Mental Health Care Is Delivered
and Research Is Accelerated:
- 5.3 Improve and expand the workforce providing
evidence-based mental health services and supports.
GOAL 6 Technology Is Used to Access Mental Health
Care and Information:
- 6.1 Use health technology and telehealth
to improve access and coordination of mental health care, especially
for Americans in remote areas or in underserved populations.
Additionally, consistent with the six goals
of transforming the mental health system established by the President's
New Freedom Commission on Mental Health, SAMHSA's Action Plan
for Mental Health Systems Transformation includes as key activities
in 2005 the creation and implementation of a National Strategic
Workforce Development Plan.
Bird, Dempsey and Hartley (2001) make these
recommendations:
- The National Health Service Corps (NHSC)
should allocate resources specifically reserved for mental health
workforce development to State loan repayment programs;
- Managed care and managed behavioral health
organizations should experiment with ways of offering limited
behavioral health credentials to primary care practitioners,
especially in rural areas;
- Credentialing standards should reflect the
realities of rural service delivery by recognizing the important
contributions of non-physical mental health professionals at
all levels (Bachelors and Masters) and
- CHCs, RHCs, and CMHCs should make judicious
use of non-professional and paraprofessional mental health workers,
especially for outreach and prevention activities.
Rural Mental Health Workforce
A number of organizations, agencies and entities
have been undertaking workforce development efforts for the past
several years. Among these are SAMHSA, HRSA, the National Center
for Health Workforce Information and Analysis (a part of HRSA's
Bureau of Health Professions), the Annapolis Coalition on Behavioral
Health Workforce Education, the Western InterState Commission
for Higher Education Mental Health Program, the National Association
for Rural Mental Health (NARMH), Edmund S. Muskie School of Public
Service, the MacArthur Foundation, the Criminal Justice/Mental
Health Consensus Project, the Council on Graduate Medical Education
(COGME), the Quentin N. Burdick Rural Health Interdisciplinary
Program, as well as the Child Healthcare Crisis Relief Act (H.R.
1359, 2003). Each of these organizations or legislative initiatives
will be discussed in turn.
Substance Abuse and Mental Health Services
Administration (SAMHSA): Some of the efforts of SAMHSA have
been documented above. However, Bird, Dempsey and Hartley (2001)
point out that the Center for Mental Health Services (CMHS) in
SAMSHA currently administers most of the programs relevant to
mental health workforce development and the mental health needs
of underserved rural communities. For instance, in partnership
with the Annapolis Coalition, SAMHSA has launched a new "Science
to Service Agenda" initiative to promote best practices in
mental health care (Koppelman, 2004). The initiative includes
ongoing development of a national registry of effective programs
and practices in mental health and substance abuse. So far, 150
programs are listed (see www.modelprograms.samhsa.gov). SAMHSA
is also offering a range of grants to help public mental health
systems implement evidence-based practice and develop the most
effective ways to reduce service gaps.
Health Resources and Services Administration
(HRSA): HRSA directs programs that improve the Nation's health
by expanding access to comprehensive, quality health care for
all Americans. HRSA works to train a health workforce that is
both diverse and motivated to work in underserved communities
by offering a number of funding mechanisms for health professions
training. Two other major programs are the National Center for
Health Workforce Information and Analysis and the National Health
Services Corps (NHSC), which are described below.
National Center for Health Workforce
Information and Analysis:
Provides access to in-depth profiles regarding the supply, demand,
distribution, education and use of health personnel. Estimated
numbers of workers indicate the size of the State's health workforce.
Per capita ratios facilitate comparisons with other States and
the Nation. Each Profile has three sections: 1) a brief overview
of residents' health status and health services that influence
supply of and demand for health workers, 2) health care employment
by place of work, including hospitals, nursing homes and other
settings and 3) health care employment in more than 25 health
professions and occupations, including mental health (see http://bhpr.hrsa.gov/healthworkforce/reports/profiles/).
National Health Service Corps (NHSC):
Committed to improving the health of the Nation's underserved
by uniting communities in need with caring health professionals
supporting communities' efforts to build better systems of care,
the NHSC provides comprehensive team-based health care that
bridges geographic, financial, cultural and language barriers.
The NHSC forms partnerships with communities, States, educational
institutions and professional organizations; recruits caring,
culturally competent clinicians for communities in need; provides
opportunities and professional experiences to students through
scholarship and loan repayment programs and a SEARCH (Student/Resident
Experiences and Rotations in Community Health) program; establishes
systems of care that remain long after an NHSC clinician departs,
and shapes the way clinicians practice by building a community
of dedicated health professionals who continue to work with
the underserved even after their NHSC commitment has been fulfilled
(see http://nhsc.bhpr.hrsa.gov/).
The Annapolis Coalition on Behavioral Health
Workforce Education: The Coalition, which receives SAMHSA
funding, was founded by the American College of Mental Health
Administration, a multidisciplinary body, and the Academic Behavioral
Health Consortium, a nonprofit group comprised of university departments
of psychiatry. In 2003, the Coalition recommended to the President's
New Freedom Commission on Mental Health that the Federal government
use a number of strategies to improve the behavioral health workforce;
including instituting policies in Federally funded health plans
to promote appropriately prepared and supervised trainees. As
noted earlier, they are also involved in SAMHSA's "Science
to Service Agenda." They currently have a number of position
papers regarding children's workforce issues, evidence-based teaching
strategies, innovation in workforce education, behavioral health
competencies (development & assessment) and best practices
in workforce education (see http://www.annapoliscoalition.org/position_papers.php
or http://www.annapoliscoalition.org/index.php).
The Western InterState Commission for Higher
Education (WICHE) Mental Health Program: The Mental Health Program
at WICHE was established in 1955 by the Western Regional Council
of State Governments. It is governed by the Mental Health Oversight
Council (MHOC), composed of the State mental health directors
from the 15 WICHE States, plus special advisors and WICHE Commissioners.
The mission of the program is twofold: 1) to assist States in
improving systems of care for mental health consumers and their
families and 2) to advance the preparation of a qualified mental
health workforce in the West. The program collaborates with States
to meet the challenges of changing environments through regional
research and evaluation, policy analysis, program development,
technical assistance and information sharing.
During 2004, the Mental Health Program worked
with the University of Alaska (UA) system and the Alaska Division
of Behavioral Health in a strategic planning effort to enhance
collaboration between higher education and the public mental health
system. This work evolved from existing efforts in Alaska, which
were further focused by a WICHE Mental Health Program sponsored
policy roundtable on rural mental health workforce issues held
in Reno, Nevada in September 2003.
The Alaska work resulted in the creation of
shared goals among the Division of Behavioral Health and University
of Alaska system, as well as funding to achieve them. The goals
fell into four categories (collaboration, education, funding and
research & evaluation) and among them were:
- Develop a behavioral health workforce vision
and action plan;
- Create collaborations to develop more rural-specific
training and continuing education opportunities at all levels
of competency;
- Explore how UA should respond to the integration
of mental health and substance abuse disciplines;
- Support innovative approaches using distance
education to expand access to continuing education that enables
rural persons to obtain professional training;
- Support the development of an articulated
career pathway from paraprofessional through post-graduate training;
- Offer financial incentives for graduates
to return to or remain in Alaska to practice in rural and underserved
areas;
- Collect and analyze more data regarding articulation
of coursework and training among UA behavioral health programs,
as well as workforce needs;
- Analyze factors that increase enrollments
and declared majors, as well as factors that promote retention
and degree completion.
WICHE is currently working on a project similar
to Alaska's in Arizona.
In South Dakota and Wyoming, the Mental Health
Program is actively engaged in training initiatives for community
mental health staff to promote a shift to integrated care for
children with serious emotional disturbances.
In Idaho, the WICHE Mental Health Program provided
training to primary care providers on behavioral health care.
Like in Alaska, the Mental Health Program is working with the
Division of Mental Health to enhance collaboration between higher
education and the public mental health system to ensure an adequate
workforce.
National Association for Rural Mental Health
(NARMH): The Center for Mental Health Services, Substance
Abuse and Mental Health Services Administration (CMHS, SAMSHA)
is currently collaborating with NARMH to review successful rural
mental health outreach practices. It should be noted that some
rural programs have developed innovative outreach efforts; however,
more outreach approaches are still necessary. The most important
finding that surfaced by the CMHS, SAMSHA and NARMH workgroup
was the successful outreach efforts targeting the needs of consumers
as defined by them (the consumers) and that the services are situated
in the context of that community (Lambert et al., 2001).
Maine Rural Health Research Center (Edmund S.
Muskie School of Public Service): Established in 1992, the Maine
Rural Health Research Center (MRHC) draws on the multidisciplinary
faculty and research resources and capacity of the Institute for
Health Policy within the Edmund S. Muskie School of Public Service,
University of Southern Maine. Rural health is one of the primary
areas of research and policy analysis focus within the Institute
for Health Policy. The Center builds upon the Institute's strong
record of research, policy analysis and policy development that
addresses critical problems in health care financing and delivery.
The MRHC's mission is to inform health care
policymaking and the delivery of rural health services through
high quality, policy relevant research, policy analysis and technical
assistance on rural health issues of regional and National significance.
The Center is committed to enhancing policymaking and improving
the delivery and financing of rural health services by effectively
linking its research to the policy development process through
appropriate dissemination strategies. The Center builds upon a
strong record of rural health services research that addresses
critical problems in health care financing and delivery and which
capitalizes on the health services research and health policy
capacity and experience of the University of Southern Maine's
Muskie School of Public Service.
Recent publications from MHRC regarding rural
mental health workforce address such topics as the role of advanced
practice psychiatric nurses (2004), CMHCs as rural safety nets
(2002) and the impact of State licensure laws on workforce (2002)
(see http://muskie.usm.maine.edu/ihp/ruralhealth/papers.jsp
for more; see also http://muskie.usm.maine.edu/ihp/ruralhealth/
for more information on MRHC's other activities).
MacArthur Foundation: The MacArthur Foundation
is funding a major effort, the Network on Youth Mental Health,
which is reviewing the evidence for therapies to treat the most
common childhood disorders and testing methods of delivering evidence-based
practices in community mental health centers. The initiative is
also studying organizational and payment policies that discourage
providers from practicing evidence-based care and will use this
knowledge to develop ways to share evidence-based practices with
a variety of clinics and providers (Koppelman, 2004).
Criminal Justice/Mental Health Consensus
Project: As described at their Web site (http://www.consensusproject.org/about-the-project/history_methodology_ab),
the Council of State Governments (CSG) developed the Criminal
Justice/Mental Health Consensus Project in response to requests
from State government officials for recommendations to improve
the criminal justice system's response to people with mental illness.
Among the reasons for the undertaking were tragedies involving
people with mental illness that seemingly could have been prevented
and the enormous strain on criminal justice and State budget resources
resulting from the current approach to responding to people with
mental illness.
CSG partnered with six organizations: 1) the
Police Executive Research Forum (PERF), 2) the Pretrial Services
Resource Center (PSRC), 3) the Association of State Correctional
Administrators (ASCA), 4) the National Association of State Mental
Health Program Directors (NASMHPD), 5) the Bazelon Center for
Mental Health Law and 6) the Center for Behavioral Health, Justice
and Public Policy. Together, staff from these organizations formed
the Consensus Project Steering Committee, which two legislators
(Rep. Mike Lawlor of Connecticut and Sen. Robert Thompson of Pennsylvania)
co-chaired. The Steering Committee designed an 18-month initiative
to build on the ideas developed during the first two working group
meetings, to broaden the support base for these recommendations,
and to identify efforts in jurisdictions across the country that
could help inform the implementation of the recommendations.
Their recommendations include:
- Plan to increase the supply of skilled and
experienced mental health providers;
- Promote the employment of current and former
clients in the provision of mental health services;
- Provide training that specifically addresses
the consumer and family experience of mental illness and
- Plan to increase the supply of skilled and
experienced mental health providers in rural areas.
Quentin N. Burdick
Rural Health Interdisciplinary Program: The goal of this program
is to provide or improve access to health care in rural areas.
Specifically, projects funded under this authority shall be designed
to: 1) use new and innovative methods to train health care practitioners
to provide services in rural areas; 2) demonstrate and evaluate
innovative interdisciplinary methods and models designed to provide
access to cost-effective comprehensive health care; 3) deliver
health care services to individuals residing in rural areas, 4)
enhance the amount of relevant research conducted concerning health
care issues in rural areas and 5) increase the recruitment and
retention of health care practitioners from rural areas and make
rural practice a more attractive career choice for health care
practitioners. The program provides about $5 to 6.5 million a
year in support to demonstration programs that offer interdisciplinary
learning experiences for clinicians in training and practice (see
http://bhpr.hrsa.gov/interdisciplinary/rural.html
for more information).
The Child Healthcare Crisis Relief Act (H.R.
1359, 2003): In March 2003, Rep. Patrick Kennedy (D-RI) introduced
H.R. 1359, which would use educational incentives to lure more
students into the children's mental health professions. The bill
would extend Medicare graduate medical education funding to child
psychiatry training programs and create a loan forgiveness program
for child and adolescent psychiatrists. The bill would also offer
scholarships and loan forgiveness to bolster the numbers of school
psychologists and social workers, school counselors and psychiatric
nurses (Koppelman, 2004).
Taken together, these organizations, agencies
and initiatives are making significant strides in addressing strategies
to ensure an available and competent rural mental health workforce.
Summary
The troubling reality of mental health workforce
shortages in rural America is well-documented and has persisted
for decades. However, it is significant that the New Freedom Commission,
Subcommittee on Rural Issues report has been one of the first
to be released. Indeed, as of this writing, only four of 16 subcommittee
reports have been released thus far. Rural America and issues
facing rural residents are "back on the map." Moreover,
a solid number of organizations, government agencies, advocacy
groups and policy initiatives have taken up the call to ensure
that workforce shortages will become not a fact of the present,
but one of history.
References
Bird, D. C., Dempsey, P. & Hartley, D.
(2001). Addressing mental health workforce needs in underserved
rural areas: Accomplishments and challenges. Portland, ME:
Maine Rural Health Research Center, Muskie Institute, University
of Southern Maine.
Flax, J. W., Wagenfeld, M. O., Ive, R. E. &
Weiss, R. J. (Eds.). (1979). Mental health and rural America:
An overview and annotated bibliography (DHEW Publication No.
78-753rd ed.). Washington, DC: U.S. Government Printing Office.
Holzer, C.E. III, Goldsmith, H. F. & Ciarlo,
J.A. (2000). The availability of health and mental health providers
by population density. Journal of the Washington Academy of
Sciences, 86(3), 25-33.
Koppelman, J. (2004). The provider system for
children's mental health: Workforce capacity and effective treatment.
NHPF Issue Brief No. 801, National Health Policy Forum, George
Washington University. Washington, D.C.
Murray, J. D. & Keller, P.A. (1991). Psychology
and rural America. American Psychologist, 46(3): 220-231.
National Advisory Committee on Rural Health.
(1993). Sixth Annual Report on RuralHhealth. Rockville,
MD: Office of Rural Health Policy, Health Resources and Services
Administration, HHS.
New Freedom Commission
on Mental Health. Subcommittee of Rural Issues: Background
Paper. DHHS Pub. No. SMA-04-3890. Rockville, MD: 2004.
6
Where to Go From Here: Rural
Mental Health in the 21st Century
Information in previous chapters presents two
basic ideas. First, rural mental health in the 21st century faces
significant challenges. Second, these challenges are being more
widely recognized and addressed by organizations and agencies
at local, State, regional and Federal levels.
The President's New Freedom Commission on
Mental Health (2003) has provided a vision and framework for
mental health care across the country. The Commission's six overarching
goals are:
- Americans understand that mental health is
a critical part of overall health;
- Mental health is consumer and family driven;
- Disparities in mental health services are
eliminated;
- Early mental health screening, assessment
and referral to services are common practice;
- Excellent mental health care is delivered
and research is accelerated; and,
- Technology is used to access mental health
care and information.
Specific to rural issues, three sub-goals are
identified:
- Improve access to quality care in rural and
geographically remote areas.
- Improve and expand the workforce providing
evidence-based mental health services and supports.
- Use health technology and telehealth to improve
access and coordination of mental health care, especially for
Americans in remote areas or in underserved populations.
Looking to the future
of rural mental health care, Sawyer and Beeson (1998), Stated
that issues remain consistent and include (but are not limited
to):
1) increasing needs and limiting resources;
2) geographic and cultural challenges to service delivery; 3)
lack of available staff; 4) urban models applied to rural areas
and 5) misunderstanding of rural communities by policy makers.
In creating a strategy to address these problems
and improve care, Sawyer and Beeson (1998) propose a "Five
Cs" approach: Consumers, Competence, Cost, Communicating
and Connecting.
Consumer and family involvement is essential
to ameliorating mental health services in rural communities. It
is critical to identify consumer and family advocates who can
articulate rural mental health needs to policy makers at all levels.
Consumers should also be active participants in the planning of
mental health services.
Second, it is important to understand that delivering
care in rural areas requires a specific set of knowledge, skills
and abilities in order to meet the unique needs of rural residents.
In addition, best practices and evidence-based practice guidelines
need to be identified and applied to the provision of mental health
services in rural areas.
Third, rural mental health service providers
must accurately estimate actual service delivery costs and operate
a mental health system that is efficient and responsive to the
target population.
Fourth, rural mental health providers who have
successfully implemented innovative programs need to increase
their communication about these programs with other providers,
as well as policy makers.
Finally, rural mental
health providers need to link with other organizations to create
a viable and solid network of support. This will help to ensure
service sustainability and will present a united front to potential
funders. It will be important for rural mental health systems
to be mindful of and proactive in increasing the visibility of
rural mental health needs.
In a report by the Institute
of Medicine (IOM), Wakefield (2004), as one of the authors, outlined
a 5-pronged strategy to address unique quality challenges in rural
communities, which overlaps with the model just described. In
addition to enhancing human resource capacity, ensuring financial
stability and integrating services, she recommends a prioritized
approach to addressing health needs, establishing quality improvement
mechanisms and building an information and communications technology
infrastructure.
Taking these models together,
one can see connections to the three primary issues facing rural
mental health care described earlier: availability, accessibility
and acceptability. Bearing these themes in mind, four primary
areas of work in rural mental health arise: 1) Education and Training,
especially as related to licensing; 2) Clinical Programs and Services;
3) Administration, particularly funding and 4) Research and Evaluation.
It is very difficult
to determine which of these areas should take precedence, as they
are intricately intertwined. Thus, it seems most appropriate to
recommend strategies that, to the extent possible, include parallel,
interconnected activities at each level. Short of such an approach,
organizations or agencies taking on these tasks must decide for
themselves which requires the most immediate or primary attention,
as determined by available evidence.
Education and Training
Education and training efforts regarding rural
mental health apply to two populations: clinicians and consumers.
Mental health clinicians in rural areas encounter
a variety of cultural norms, values and ethics, as well as unique
ethical dilemmas. However, at present, most clinicians working
in rural areas learn about rural culture "on the job,"
and then only partially if they commute from more urban settings.
The most logical place to acculturate clinicians in rural issues
is academic institutions, especially universities in largely rural
States. In particular, academic institutions offering specialized
training in rural mental health, priority placement for projects
with a rural emphasis and providing financial assistance to students
either from rural areas or those who have a desire to work in
rural communities could help meet workforce needs (Mulder et al.,
2000).1
Situating some of these educational and training
programs in rural communities cannot only help to acculturate
students, but also provide them with a larger system of care context
in which to understand their training and clinical experiences.
Universities or colleges with rural-focused programs can also
enter into partnerships with community organizations or agencies
in rural areas that offer field training opportunities that include
inter- or multidisciplinary experiences with an integrated continuum
of services (e.g., collaborations among primary and preventive
health care, mental health, substance abuse and social service
agencies) (Mulder et al., 2000).
Additionally, all rural mental health academic
and training programs should be conducted in a culturally competent
manner that recognizes and provides academic and experiential
training regarding indigenous and other ethnic groups (NRHA, 1999).
In addition to strengthening clinicians' rural
and cultural competency, strategies are needed to increase the
number of rural mental health providers. While there have been
some attempts to recruit and retain mental health professionals
to rural areas, more effective recruitment efforts and incentives
must be provided to attract professionals to these mental health
professional shortage areas. The National Health Service Corps
offers incentives to students in the form of loan repayment in
return for service in a professional shortage area. More programs
with financial incentives are needed to motivate mental health
professionals to specialize in rural mental health. Academic institutions
can play a role in outreaching to rural communities to attract
applicants. This is particularly true for mid-level and paraprofessional
mental health providers, who are likely to become the main group
of providers of mental health care in rural areas.
Consumers of mental health services and their
families, or persons with mental health problems not currently
receiving services, need education about the nature of their difficulties
and where to get help. As discussed in previous chapters, rural
residents tend to enter treatment later in the course of their
disorders, usually in States of significant distress. On the one
hand, many may not recognize symptoms or signs of mental health
problems, or ascribe them to non-mental health causes. Those who
do recognize a problem may be hesitant to pursue treatment for
fear of stigma or ostracism, or because they are unsure about
where and what treatment is available.
Effective educational and outreach campaigns
designed for rural residents would go a long way in helping to
connect care with those who need it. Organizations such as the
National Alliance for the Mentally Ill (NAMI), the Federation
of Families for Children's Mental Health (FFCMH), and numerous
other State or local agencies (e.g., UPLIFT in Wyoming) have been
instrumental in both educating and advocating for consumers and
their families.
Although this section has focused on education
for clinicians and consumers, it is very important to recognize
the significant need for education campaigns regarding mental
health and substance abuse problems for the general public. Indeed,
as indicated at the beginning of this chapter, a large public
education campaign is the number one goal of the New Freedom
Commission.
Furthermore, the Center for Mental Health Services
in the Substance Abuse and Mental Health Services Administration
(CMHS, SAMSHA) collaborated with the National Association of Rural
Mental Health (NARMH) to review successful rural mental health
outreach practices. Although some rural programs have developed
innovative outreach efforts, a wider variety of approaches are
still necessary. The most important finding that surfaced by the
CMHS, SAMSHA and NARMH work group was that successful outreach
efforts target consumers' needs as defined by consumers,
and that such efforts are situated in that community (Lambert
et al., 2001).
The American Psychological Association (APA)
has been instrumental in drawing increased attention to rural
health issues by the formation of several advocacy groups including
the Rural Task Force, the Committee on Rural Health and the Rural
Women's Work Group. These advocacy groups all incorporate similar
goals, including disseminating information to members, legislative
bodies, consumers, professionals and other relevant agencies (Mulder
et al., 2000).
At the annual APA conference, the Rural Health
Forum is a valuable place for mental health professionals to dialogue
and strategize about the needs of rural communities. Additional
efforts can be made with the publication of professional literature
in traditional journals or on-line professional journals. In addition,
APA has recognized the need for research on rural populations
(Mulder et al., 2000).
A major legislative factor that bears on mental
health professionals generally, especially in terms of provider
mobility, is State licensure. At present, although most States
have similar licensure criteria, there are still difficulties
for mental health professionals moving from one State to another.
As Jonason and colleagues (2003) indicate, local licensing laws
have not embraced the reality that an increasing amount of business
is conducted across jurisdictional lines, including mental health
professions. Psychology, for example, has taken steps to facilitate
mobility through InterState reciprocity (Kim & VandeCreek,
2003) with some level of success, but as yet there are no assurances
that other States will recognize and grant equal status (Merrill,
2003).
Kim and VandeCreek (2003) describe efforts to facilitate mobility
for psychologists. These include:
- In February of 2001, the Committee for the
Advancement of Professional Practice (CAPP) was given formal
approval by the American Psychological Association (APA) Council
of Representatives to continue with plans for the development
of professional mobility mechanisms.
- The Association of State and Provincial Psychology
Boards (ASPPB) and State licensure boards have developed a reciprocity
agreement. As of March 2003, 11 States and provinces were participating.
Three States are in the process of implementing the reciprocity
agreement.
- ASPPB has also developed an endorsement mechanism
to facilitate mobility: the Certificate of Professional Qualification
in Psychology (CPQ). As of March 2003, 26 States and provinces
had implemented the CPQ, and an additional 14 States and provinces
are in the process of implementing it.
- The National Register of Health Service Providers
in Psychology credentials individuals who submit education and
training information relevant to licensure. As of February 2003,
10 States and all 11 Canadian jurisdictions had approved the
register's credential as a mobility mechanism.
- The American Board of Professional Psychology
(ABPP) awards certification to individuals who demonstrate competency
in a specialty area of psychology, and five States accept an
individual's certification by this board as a mobility mechanism,
typically by waiving one or more licensing board requirements.
Licensure, mobility and reciprocity for
healthcare disciplines are made more complex in the age of telemedicine
or telehealth, which has been acknowledged by the Federal government.
For example, Jonason and colleagues (2003) reported that the Telehealth
Improvement Act of 1999 and the Comprehensive Telehealth Act of
1999 created a Joint Working Group charged with compiling data
on the number of health care providers performing telehealth services
across State lines and tracking efforts to develop uniform national
sets of standards for telehealth licensure. The authors indicated
that a provision of these legislative proposals is that if States
are not making progress in facilitating telehealth services across
State lines by eliminating unnecessary requirements and adopting
reciprocal licensing arrangements for such services, then the
Secretary of Health and Human Services should make recommendations
concerning the scope and nature of Federal actions required to
do so.
These issues also impact training. As Deleon, Crimmins, and Wolf
(2003) observe, professional schools will likely develop innovative
distance-learning (i.e., Web-based) oriented degrees or continuing
education modules. Thus, these authors argue that "Telehealth
compels us to conceive of boundaries in other than geographical
terms" and psychology's elected leaders at the State and
national association levels will have to address licensure mobility.
Delivering Education & Training
Whether one is targeting rural clinicians, consumers,
or the general public, education and training can be difficult
for all the reasons noted throughout this book (e.g., geographical
distance, lack of funding and so forth). However, the use of technology
and distance learning programs is beginning to show promise in
breaking down these barriers. For example, clinical treatment
via telemedicine has been growing for over a decade. Frontier
States, such as Alaska, use distance learning approaches to train
Alaska Natives in remote areas.
The WICHE Mental Health Program, through funding
from SAMHSA, has been offering a series of live grand rounds webcasts
on clinical topics via the internet. In effect, the internet serves
as an "E-Classroom" in which speakers and participants
can interact in real-time to discuss issues. Presentations can
also be stored for later viewing, which helps busy rural providers
get needed information as it fits their schedules.
Clinical Programs & Services
One of the most significant trends in mental
health generally, as well as, in rural areas is the emphasis on
outcome-driven service delivery models. Within the context of connecting
science to service, the New Freedom Commission identified the need
to increase the use of evidence-based practices (EBPs). Evidence-based
practice is "an approach to classifying health care outcome
research according to the quality and quantity of empirical evidence
supporting a particular intervention" (Anthony, Rogers &
Farkas, 2003). It has also been defined by the Institute of Medicine
as "the integration of best research evidence with clinical
expertise and patient values." The mental health community
strives to define practices and treatment interventions that have
been demonstrated to be effective in clinical services research
(Torrey et al., 2001).
At present, there is a significant time delay
between scientific discovery and service delivery. The Commission
recommends the use of EBPs via dissemination and demonstration
projects, and developing a public-private partnership to guide
this process. This recommendation is buttressed by the recent
Institute of Medicine (IOM; 2005) report, which endorses using
demonstration projects in rural communities, as such locations
are smaller and have unique characteristics. Methods for introducing
EBPs into service delivery systems include educating clinicians
and consumers about the short- and long-term benefits of EBPs,
support and promotion by leadership and reimbursement policies
to increase EBP use.
The Commission also recommended that the Federal
government create a partnership with private, interested funding,
advocacy and professional organizations. Potential funding entities
may be more willing to provide financial and other resources if
evidence-based practices are explained and proposed. However,
it is important to consider the need for clearer understanding
regarding the degree to which EBPs generalize to different rural
areas.
According to the Office of Rural Health Policy
(1997), telepsychiatry is one of the five most common applications
for telemedicine in rural hospitals. Technology has the potential
to decrease the gap in services by increasing education, support
and connectedness between the client and the provider. Telemedicine
technology allows for two-way interactive physician/patient interviews
to take place across long distances (Graham, 1996). The Internet
can potentially provide a viable alternative to traditional office
visits for rural residents with mental health issues (Ferrell
& McKinnon, 2003).
Telemedicine can also be used for purposes other
than therapy including case management, medication management,
psychiatric consultations and psychiatric referrals (Rost et al.,
2002). Evaluations of provider-patient encounters via interactive
two-way video have generally demonstrated that the reliability
of psychiatric assessment is comparable to that of face-to-face
interviews (Baer et al., 1995; Baer et al., 1997; Baigent et al.,
1997; Doniger et al., 1986; Rost et al., 2002; and Zarate et al.,
1997).
A study by Graham (1996) found preliminary evidence
that telehealth consultations between a psychiatrist and a client
diagnosed with serious mental illness decreased the incidence
of patient re-hospitalization.
Administration
Administrators in mental health agencies are
primarily concerned with two issues: 1) delivering high quality,
cost-effective services and 2) securing and managing funding or
reimbursement for those services.
Service Content and Structure
Delivering high quality, cost-effective care
requires attention to service content and structure. Service content
refers to the specific kinds of treatments available (e.g., individual
or group therapy, residential programs), whereas service structure
regards the formal administrative and clinical relationships of
providers.
As discussed in an earlier section of this chapter,
evidence-based practices are becoming an increasingly important
type of treatment. Such treatments are not only based on research
indicating their effectiveness, but often involve the use of multiple
providers (e.g., Assertive Community Treatment). In this regard,
collaborative, inter- or multidisciplinary care is being promoted
as a primary form of successful service structures.
A broad framework in which providers, researchers,
rural community leaders and policy makers can understand collaborative
care is the System of Care model (Dekraai, 2004; Stroul &
Friedman, 1986). Although systems of care usually regard services
for children and families, the core values and principles can
be appropriately applied to adult services. The core values of
a system of care are that it is:
- Child-centered and family-focused (or, in
the case of adults, client-centered), with the needs of the
child and family (or client) dictating the types and mix of
services provided;
- Community-based, with the locus of services
as well as decision-making responsibility resting at the community
level and
- Culturally competent, with agencies, programs
and services that are responsive to and respective of the cultural,
racial, ethnic, language and value differences of the populations
they serve.
The principle components of a System of Care
are:
- Access to an extensive array of services
that address physical, emotional, social and educational needs;
- Individualized treatment that matches the
unique needs of clients;
- Services are provided in the least restrictive,
most natural environment;
- Families and/or main social support are participants
in care;
- Integrated services with linkages to other
service agencies for planning, developing and coordinating services;
- Case management to ensure coordination of
services;
- Early identification and intervention to
increase the likelihood of positive outcomes;
- Ensure smooth transition to other services;
- Rights of clients should be protected and
advocacy efforts should be promoted;
- Culturally competent and
- Community-based.
Implementing these principles will increase
the likelihood of a seamless system of mental health care. Forming
community partnerships and relationships should include funders,
service providers, consumers and family members, as well as community
and faith-based organizations (Dekraai, 2004). However, it is
complex and time consuming to facilitate the creation of relationships
between agencies that often have different priorities, policies
and funding streams.
In terms of specific relationships among various
provider groups, there is solid evidence that many rural residents
in need of mental health services are initially seen by primary
care physicians (PCPs) or other medical professionals (e.g., nurse
practitioners, physician's assistants). If mental health professionals
cannot be adequately recruited to rural areas, then PCPs will
continue to provide the majority of mental health care. Thus,
training that increases PCPs skills in identifying signs and symptoms
of mental health and/or substance abuse problems is very important.
Increased collaboration between mental health
providers and primary health providers would improve efficiency
and effectiveness when providing mental health treatment or streamlining
referral processes. To help promote collaboration between these
provider groups, interdisciplinary training programs should be
developed and supported (National Rural Health Association [NRHA],
1999). For example, several programs run through the Health Resources
and Services Administration (HRSA) may provide avenues for interdisciplinary
training, including the Quentin N. Burdick Rural Interdisciplinary
Training Grant Program, Area Health Education Centers and Geriatric
Education Centers.
Due to the high prevalence of substance use
by people with serious mental illness, the NRHA (1999) suggested
that programs provide simultaneous mental health and addiction
treatment to rural residents with co-occurring disorders. The
New Freedom Commission, Subcommittee on Rural Issues (2004)
added that these services need to be linked to primary care settings,
where most rural persons turn for assistance. Services can be
more efficient if they are streamlined and integrated.
A curriculum for a community-based rural model
of training has been published by the American Psychological Association
(APA) (1995). Federal and State grants are needed to develop rural
mental health services systems through such community-oriented
training (NRHA, 1999). Although there are logistical issues in
implementing collaborative training (e.g., different disciplines,
funding and other resources), cross-training would ultimately
foster collaborative relationships between these two groups.
Another potentially effective service structure
is the use of telemedicine. Due to the geographical isolation
of many rural communities, telehealth strategies may help address
transportation and distance barriers faced by rural residents.
If transportation services are offered by agencies, they consume
part of the budget not incurred by urban services. While research
has shown telemedicine's positive impact on access to mental health
services (NFC-SRI, 2004), further research is necessary to demonstrate
its effectiveness with rural mental health issues. The results
of this research can then be used to advocate for increased funding
and equipment for rural area service providers. Telehealth cannot
only provide increased access for patients requiring care, but
also for mental health professionals who may feel isolated in
rural areas.
Despite the potential value of telemedicine
technology, there are barriers to the successful integration of
these advances from an administrative perspective. Graham (1996)
detailed some of these obstacles, which include 1) initial and
continuing operating costs of technology, 2) professional issues
that require the field to reframe the doctor-patient relationship
and 3) legal and confidentiality issues. Furthermore, census data
indicate that Americans' access to usage of the internet varies
greatly depending on socioeconomic level. Urban residents are
more than two times as likely to have internet access as those
in rural areas at the same lower income levels (Ferrell &
McKinnon, 2003).
Funding
Mohatt, LaLumia and Yennie (2004) indicate that
before the rural mental health system can be expected to improve,
there needs to be an examination of the larger mental health system.
In terms of current governance issues present in the United States'
mental health system, they report that the major entities providing
mental health care (e.g., State psychiatric hospitals, community-based
general hospitals, community mental health centers) routinely
lack any fiscal or management integration and often operate in
virtual isolation from each other. The result is non-shared accountability
for ensuring access to care, discontinuity of care, and/or poor
use of limited fiscal and human resources. In other words, the
system is "complex, confusing, and fragmented" (New
Freedom Commission on Mental Health, 2003).
As a part of reform efforts, two strategies
have been commonly employed to address the lack of access and
integration in mental health systems: 1) developing a single funding
envelope that integrates diverse funding streams and 2) establishing
a single authority (i.e., organization) accountable for administration
and management of public mental health care for a defined geographic
area or population (Mohatt, Lalumia & Yennie, 2004).
Decisions affecting the provision of rural mental
health care are likely to be made outside of rural communities.
This trend requires mental health providers to be fiscally stable
and connected to a strong network of resources (Sawyer & Beeson,
1998). Currently, Federal strategies for sustaining mental health
infrastructure are non-existent (NFC-SRI, 2004). While
a myriad of enhanced financing options are available for rural
health care (e.g., Critical Access Hospital Program, Rural Health
Clinics Program), no such options to tailor rural financing strategies
in mental health exist.
Rural mental health has a long history of being
dependent on public sources of funding. However, there has been
an increasing trend toward the semi-privatization of mental health
services (e.g., transfer of Medicaid programs from government
to managed care companies). There are several ramifications with
the privatization of mental health services, including the inability
of small employers to provide adequate benefit packages and the
inability of some rural Americans to afford the cost of health
care insurance.
Nevertheless, there are programs that have financial
resources to support health care in rural areas. The Federal Office
of Rural Health Policy (ORHP) coordinates a series of grants designed
to increase access to and improve the quality of health care in
rural areas (for further information, see http://ruralhealth.hrsa.gov/funding/).
Parity
Another major effort
underway since the early 1990s is to achieve full parity in both
private (individual and employer-based) and public (Medicare,
Medicaid and other government-sponsored) insurance coverage for
mental illnesses.3 Involved in this effort are
nationally organized groups, such as the National Alliance for
the Mentally Ill (NAMI), Bazelon Center for Mental Health Law,
the Mental Health Liaison Group and the Mental Health Association
of America, to name just a few.
A fact sheet regarding parity is provided at
the Mental Health Liaison Group website (http://www.mhlg.org/parity_4-03.pdf),
which provides findings about the costs associated with lost productivity
due to mental illness, whether or not mental health parity is
affordable, as well as the rationale of and legislative efforts
to achieve parity. In brief, the fact sheet indicates that parity
in coverage for mental illness can save money, does not result
in a significant increase in cost and would end a type of discrimination.
The 1996 Domenici-Wellstone Mental Health Parity
Act (MHPA), which prevents employer-sponsored health plans from
imposing lifetime and annual dollar limits on mental health benefits
that differ from those imposed on medical/surgical benefits, was
a first national step toward insurance parity, but fell short
of the final goal. For instance, findings from the U.S. General
Accounting Office (2000) report titled Compliance with the
Mental Health Parity Act of 1996: Effects/Costs of Implementation
included:
- Eighty-six percent of employers comply with
the Federal parity requirements set forth in the MHPA of 1996.
However, this does not apply to individuals outside of a group
plan, plans with 50 or fewer employees, or plans whose claims
costs have increased at least one percent due to compliance.
- Despite a high percentage of compliance,
employers continue to limit their mental health benefits. More
specifically, 87 percent of those who comply end up restricting
other mental health services in their health plans.
- Initial concerns that the 1996 Act would
increase claims costs by more than one percent seem to be unconfirmed.
In fact, premium increases were estimated at 0.16 percent and
0.12 percent by Congressional Budget Office (CBO) and Coopers
& Lybrand, respectively.
- Several States have already enacted parity
laws that exceed the Federal parity requirements. Premium cost
increases for full parity are estimated to be between two percent
and four percent, both nationally and for individual States.
- Loopholes and limited scope of the MHPA of
1996 continue to impede overall access to mental health services.
Currently at the Federal level, Senators
Pete Domenici (R-NM) and Edward Kennedy (D-MA) and Reps. Jim Ramstad
(R-MN) and Patrick Kennedy (D-RI) introduced the Senator Paul
Wellstone Mental Health Equitable Treatment Act of 2003. This
would expand existing law by addressing limits on deductibles,
co-insurance, co-payments, other cost sharing and limitations
on the total amount that may be paid with respect to benefits
under the plan or health insurance coverage. However, despite
widespread support in Congress and by President Bush, the updated
legislation has not yet passed.
Other Funding Opportunities for Rural
Hartley & Gale documented potential funding
opportunities for rural communities (available online at http://www.ahrq.gov/data/safetynet/hartley.htm),
which include:
- The Rural Health Services Outreach Grant
Program: emphasizes the expansion of service delivery through
networking strategies to encourage the development of new health
care delivery systems in rural communities.
- The Network Development Grant Program:
designed to strengthen collaborative relationship between
health care organizations by funding rural health networks that
focus on strengthening their infrastructure by integrating clinical,
administrative and financial systems.
- The Network Development Planning Grant
Program: provides one year of financial support to rural
communities needing assistance in the development of an integrated
health care network. The planning grants are to be used to develop
a formal network with the purpose of improving the coordination
of health services in rural communities and strengthening the
rural health care system as a whole. Preference is given to
applicants who serve medically underserved populations or in
which at least 50 percent of the service area covered by the
network is located in a health professional shortage area or
medically underserved community.
- The Mississippi Delta Rural Development
Initiative: targets the Delta region, which covers 205 rural
counties in Alabama, Arkansas, Illinois, Kentucky, Louisiana,
Missouri, Mississippi and Tennessee. The program includes two
components: a grant program to fund the creation of networks
that improve access to primary care services and the development
of a technical assistance program to help small rural hospitals
improve their operations and financial performance.
- The Small Rural Hospital Improvement Grant
Program: provides funding to small rural hospitals for any
one of the following activities: a) costs related to the implementation
of Prospective Payment Systems; b) compliance with provisions
of the Health Insurance Portability and Accountability Act;
or c) reducing medical errors and support quality improvement.
The ORHP also administers two additional grant
programs created to support State involvement in meeting State
and local rural health needs:
- The State Offices of Rural Health Grant
Program: has created offices of rural health in all 50 States.
The mission of these offices is to help individual rural communities
build health care delivery systems.
- The Rural Hospital Flexibility Grant
Program (Flex Program): a
Federal initiative that provides funding to State governments
to strengthen rural health. This program: a) allows small hospitals
the flexibility to reconfigure operations and be licensed as
Critical Access Hospital (CAHs), b) offers cost-based reimbursement
for Medicare acute inpatient and outpatient services, c) encourages
the development of rural-centric health networks and d) offers
grants to States to help implement a CAH program in the context
of broader initiatives to strengthen the rural health care infrastructure.
Research & Evaluation
Current definitions of "rural" often
fail to capture the relationship between rural characteristics
and mental health service use (National Institute of Mental Health,
Office of Rural Mental Health Research, 2003). Lewis (2003) indicated
that the word "rural" suggests a cultural uniqueness
that leads people to see "rurality" more as an abstract
concept than a specific region. Others have emphasized that a
rural area is not only a physical place but also a social place
(Weisheit, Wells & Falcone, 1994). The concept of rural areas
as social places requires the application of sensitive approaches
to their cultural qualities (Lewis, 2003).
While there may not be one definition of "rural"
that is acceptable to everyone, it is critical to, at a minimum,
develop a set of definitions that are consistent and understandable
when used in different contexts. The New Freedom Commission
on Mental Health, Subcommittee on Rural issues (2004) Stated
that a formalized process to define rural would be helpful in
collecting richer data to use for planning rural initiatives (e.g.,
workforce development, recruitment, or program development). This
would involve going beyond the simple population-based definitions
that currently exist and would seek to operationalize other variables
(e.g., available mental health services). This process would ultimately
help to narrow the definition and offer more specificity when
researching different rural communities.
Rural communities have many unique properties
that need to be incorporated into and better captured by the research.
Rural mental health research needs to be grounded in the rural
context and experience. While traditional randomized clinical
research allows for causal relationships of factors that influence
change, qualitative methods (e.g., ethnographic, process analyses)
can more fully demonstrate participant and community perceptions
and experiences (Anthony, Rogers & Farkas, 2003). Qualitative
methodology (e.g., correlational and quasi-experimental) can be
used to guide the development of studies using more traditional
research methods (Anthony et al., 2003). It is more important
that the quantitative and qualitative research methods employed
are complementary and not duplicative (Office of Behavioral and
Social Sciences Research, 2001; Anthony et al., 2003).
One rural classification system that captures
many of the aspects of rural, especially in relation to more urban
areas, is the United States Department of Agriculture Economic
Research Service (ERS) Rural-Urban Commuting Area (RUCA) codes.
A full description of the RUCA codes can be found at http://www.ers.usda.gov/briefing/Rurality/RuralUrbanCommutingAreas/.
It is beyond the scope of this book to go into
elaborate detail of the RUCA codes. However, in brief (and from
the Web site), RUCA codes "are based on the same theoretical
concepts used by the Office of Management and Budget (OMB) to
define county-level metropolitan and micropolitan areas...[applying]
similar criteria to measures of population density, urbanization,
and daily commuting to identify urban cores and adjacent territory
that is economically integrated with those cores." However,
the RUCA codes use census tracts-the smallest geographic units-instead
of counties as their building blocks to provide "a different
and more detailed geographic pattern of settlement classification."
More specifically, the RUCA codes are composed
of 10 primary and 30 secondary codes. The primary codes refer
to either the primary or single largest commuting share and "offer
a relatively straightforward and complete delineation of metropolitan
and nonmetropolitan settlement based on the size and direction
of primary commuting flows." The secondary codes identify
areas where settlement classifications overlap, based on the size
and direction of the secondary, or second largest, commuting flow.
Research Agendas and Questions
The NIMH's Office of Rural Mental Health Research
(ORMHR) conducted a meeting in 2003 that sought to delineate a
rural research agenda. The meeting included researchers, consumers
and policy analysts interested in improving mental health services
in rural areas. There was consensus that a common definition of
"rural" is needed to use consistently in the research.
However, as described in an earlier chapter, the Office of Management
and Budget (OMB) has developed new definitions of metropolitan
and non-metropolitan (or rural) areas (see Chapter 1 for more
information).
It was also stressed that research in rural
areas is often plagued by small sample sizes and insufficient
power to confidently use the "community" as an explanatory
variable. Community factors are often "nested" within
the layers of a rural community and frequently exert powerful
influence over the residents within that community.
ORMHR encouraged researchers to utilize the
following methodologies in an attempt to better capture the characteristics
and dynamics within a rural community: 1) multi-level studies
that represent individuals within communities and communities
within regions; 2) multivariate analysis, including structural
equations and modeling and 3) methods for analyzing small samples
(e.g., longitudinal data, hierarchical linear modeling) that estimate
between-community and within-community characteristics (ORMHR,
2003). Six suggestions to improve the research that will eventually
inform mental health service delivery in rural areas:
- Encourage researchers to use conceptual and
theoretical models in order to advance rural mental health research.
- Conduct a meta-analysis of databases to inform
the development of a typology for identifying rural communities
at high risk for increased prevalence of mental illness and/or
underutilization of mental health services.
- Commission a "white paper" to examine frameworks
and typologies for identifying rural communities at risk for
disorder and/or service underutilization. These typologies could
for example help to a) categorize epidemiological and services
studies and b) prioritize research.
- Encourage researchers to study the factors
that comprise the typologies.
- Conduct a four-day "Summer Institute" with
senior-level rural mental health investigators and new or emerging
investigators to encourage individuals to pursue a rural mental
health research career.
- Recruit senior- and junior-level rural mental
health services researchers on the NIMH Services Research Initial
Review Group (IRG). Encourage the Scientific Review Administrators
to assemble ad hoc review teams with rural expertise.
The Evaluation Initiative at the National Assistance
Center for Children's Mental Health was developed in response
to a need for performance measurement, outcomes and system accountability
for children's services. This program is housed at the Georgetown
University Center for Child and Human Development. Although this
initiative was created to address children's mental health services,
it can be adapted to evaluate other mental health services. The
following goals and tasks were modified to be used with other
evaluation projects targeting different populations with various
mental health needs.
- Facilitate the capacity-building of States
and local communities in their evaluation of mental health services;
- Identify promising practices in the design
and implementation of effective evaluation programs and integrated
information systems and
- Guarantee quality technical assistance services
and products.
The Evaluation Initiative also detailed ongoing
tasks in order to further the goals listed above:
- Identify State and community evaluators;
- Support evaluation efforts and develop integrated
information systems;
- Showcase promising practices in the design
and implementation of evaluation programs and outcomes reporting;
- Disseminate information regarding mental
health services evaluation that are relevant and easily understood
to stakeholders and
- Assess the usefulness and impact of technical
assistance activities. Evidence-Based
Practices, Evaluation, and Management Information Systems.
The rural mental health system could replicate
some of these evaluation priorities. It would be useful for rural
mental health professionals in partnership with Federal, State
and local stakeholders to create standards and indicators of quality
care to make the evaluation process more standardized. In addition,
the Evaluation Initiative is exemplary in their efforts to be
accountable to stakeholders. The ability to provide evidence on
how and why services are effective or ineffective
is critical to any evaluation project.
Particular research designs including epidemiology,
morbidity, provider availability and provider access are more
likely to yield useful information on rural residents. In addition,
other methodologies including clinical community research (e.g.,
needs assessment, identification of community resources, program
evaluation and efficacy of prevention-based services) may be beneficial
in demonstrating the needs of specific communities. Lastly, it
is essential to include community leaders and other community
consumers as key informants to help ensure culturally sensitive
and relevant research initiatives (Mulder et al., 2000).
Finally, Rost and colleagues (2002) identified
seven areas for further research specific to the rural mental
health agenda. Research suggestions were separated into two groups:
1) identifying and addressing rural-urban disparities in use,
quality and outcomes of care and 2) continuing to improve use,
quality and outcomes of care in rural areas. The research areas
are presented in the form of questions.
Future Research to Identify and Address Rural-Urban
Disparities in Use, Quality & Outcomes of Care
- Compared to their urban residents, are rural
residents of vulnerable or underserved populations (e.g., the
impoverished, minority groups, the elderly, youth) less likely
to seek care when they need it? If so, what modifiable factors
associated with living in rural areas clarify this disparity?
- Does living in a rural area increase the
probability that an individual entering mental health treatment
will not remain in treatment? If so, what interventions can
be developed to achieve comparable rates of sustained engagement
in treatment between rural residents with serious mental illness
and urban residents struggling with similar mental health issues?
- Do seriously mentally ill individuals living
in rural areas receive a lower quality of care? If so, what
are the relative contributions of the provider (e.g., provision
of less evidenced-based care) and the patient (e.g., failure
to stay engaged in care) to these poor outcomes? What are some
characteristics of the rural individual, the health plan or
the service system that can be most cost-effectively modified
to decrease disparities in outcome?
- How do total and out-of-pocket expenditures
for mental health care differ for rural and urban individuals
with psychiatric disorders? How have these differences changed
over time? Do differences in health benefits explain these differences?
What policies can be initiated to equalize the cost-sharing
burden for rural individuals with psychiatric disorders?
- How does managed behavioral health care function
in rural compared to urban areas? Does carving-out mental health
benefits differentially impact entry in to treatment and/or
quality of care in rural individuals with psychiatric disorders
compared to urban residents? How do rural-urban differences
in credentialing, selective contracting and risk sharing moderate
the impact of managed behavioral health care?
Continuing to Improve Use, Quality & Outcomes
of Care in Rural Areas
- Can entry into treatment by rural individuals
with psychiatric disorders be increased by direct marketing
campaigns or by better utilizing the unique characteristics
of the rural social network to increase the perceived need for
and/or access to services?
- Can quality of care and outcomes be enhanced
by redesigning successful urban initiatives for rural primary
and mental health care settings? What unique initiatives need
to be developed to improve quality and outcomes for rural individuals
with psychiatric disorders?
Summary
Rural mental health has been elevated
to a higher priority status within the mental health community.
In particular, Federal interest in rural mental health initiatives
has helped to increase attention to the needs of rural communities.
At the Federal level, the New Freedom Commission on Mental
Health, Subcommittee on Rural Issues was one of only four
subcommittee reports (out of 16) to be released, and overall goals
of the Commission directly target rural issues. There are the
Office of Mental Health Research at the National Institute of
Mental Health (NIMH) and the Office of Rural Health Policy in
the Health Resources and Services Administration (HRSA). These
programs have been responsible for creating research and service
delivery opportunities. However, there is a lot of work to be
done at multiple levels to create and sustain viable mental health
systems in rural areas.
Four areas of future activity in rural mental
health are education and training, clinical programs and services,
administration, as well as research and evaluation. Education
and training for clinicians and consumers in rural areas should
regard evidence-based practices (EBPs), collaborative care and
knowing when and how to access services. EBPs are continuing to
be a focus of service delivery across mental health systems in
the U.S., but the applicability of these treatments to rural still
needs to be determined. The emergence of telehealth has made progress
in linking rural mental health consumers with providers in urban
areas, especially psychiatrists. The Internet is also becoming
a vehicle for increased communication in rural areas. New developments
in health care financing (e.g., managed care and for-profit health
care corporations) are restructuring delivery systems. Specifically,
the semi-privatization of public health insurance programs (e.g.,
Medicaid and Medicare) has created more incentives for corporate
health care providers and insurance companies to enter rural markets.
A consistent theme emphasized in the literature
is the importance of involving consumers in research and the planning
of services. While this makes intuitive sense, it is common that
consumers are left out of the planning processes for transforming
mental health delivery systems. Rural communities and consumers
should be allowed to speak authentically about their perspectives
of their own needs. In order to advocate for the needs of rural
communities to policy-makers, it is critical that solid research
identifying the most effective services for rural residents is
available. Outcome data based on current model programs will also
be helpful in marketing the needs of rural communities.
References
Anthony, W., Rogers, E.S. & Farkas, M. (2003).
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101-114.
Baer, L., Elford, D.R. & Cukor, P. (1997).
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Deleon, P.H., Crimmins, D.B. & Wolf, A.W.
(2003). Afterword-The 21st Century has Arrived. Psychotherapy:
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Farrell, S.P. & McKinnon, C. (2003). Technology
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Graham, A.M. (1996). Telepsychiatry in Appalachia.
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Health Policy Technical Assistance Meeting of the Rural Health
Research Centers, Center for Rural Health.
Jonason, K. R., DeMers, S. T., Vaughn, T. J.
& Reaves, R. P. (2003). Professional Mobility for Psychologists
Is Rapidly Becoming a Reality. Professional Psychology: Research
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Kim, E. & VandeCreek, L. (2003). Facilitating
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Lambert, D., Donahue, A., Mitchell, M. &
Strauss, R. (2001). Mental health outreach in rural area: Promising
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Lewis, S.H. (2003). Unspoken crimes: Sexual
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Mohatt, D.F., LaLumia, D., Yennie, H. (2004)
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Notes for Chapter 6
1. A listing of psychology
training programs and internships with a rural emphasis can be
found on the American Psychological Association Web site: http://www.apa.org/rural/.
2. The 2005 IOM report takes
this recommendation from an earlier IOM report, titled Fostering
Rapid Advances in Health Care: Learning from System Demonstrations.
3. A
brief history of these efforts can be found at Parity in Insurance
Coverage.
A User's
Guide to the Annotated Bibliography
For readers wishing to stay abreast
of developments in rural mental health, we recommend several journals.
Some are specifically focused on rural mental health or human
services, while others deal with rural health or rural life, with
an occasional article on mental health. Some have devoted special
issues or sections to rural mental health. Finally, as anyone
who wades through the entire bibliography will note, other professional
journals will, on occasion, publish an article on rural mental
health. Without getting overly precise or making any claims to
completeness, in roughly descending order of focus on rural mental
health or related issues, they are as follows.
Journal of Rural Community Psychology
Human Services in the Rural Environment
The Journal of Rural Health
Rural Sociology
Journal of Health Care for the Poor and Underserved
American Journal of Community Psychology
American Psychologist
Journal of Community Psychology
Rural Sociologist
New Directions for Mental Health Services
Hospital and Community Psychiatry
Community Mental Health Journal
Journal of Public Health Policy
Of those listed, the American Journal
of Community Psychology, American Psychologist, New Directions
for Mental Health Services, and the Journal of Rural Community
Psychology have had special issues or devoted sections to
the problems of mental health and rural Americans.
References by Topics
To make this annotated bibliography more user
friendly, we have arranged the references in terms of topics or
key words that correspond roughly to the organization of the overview
volumes. A reference can appear under more than one heading.
I. Aspects of Rural Life
A. Demography: 160, 168, 169, 276, 281, 282,
320, 335, 378, 381, 383, 392, 393, 395
B. Characteristics of Rural Life: 060, 071,
085, 091, 103, 104, 110, 120, 127, 132, 160, 161, 206, 244, 265,
272, 273, 275, 298, 320, 335, 336, 340, 358, 383, 392, 395, 403,
414
II. Epidemiology, Prevalence and Correlates
of Disorder
A. Alcohol and Other Drugs: 001, 008, 012, 013,
025, 026, 028, 029, 033, 042, 044, 045, 046, 047, 049, 056, 062,
063, 068, 072, 078, 079, 083, 087, 089, 096, 097, 098, 101, 102,
106, 108, 118, 129, 139, 145, 151, 155, 156, 171, 179, 180, 181,
191, 192, 198, 199, 210, 227, 229, 240, 246, 262, 269, 279, 283,
286, 292, 293, 301, 304, 305, 306, 310, 323, 341, 349, 350, 351,
352, 353, 354, 355, 356, 369, 372, 382, 395, 401
B. Mental Disorder: 013, 016, 019, 020, 030,
044, 073, 128, 134, 135, 139, 144, 152, 171, 172, 173, 189, 191,
214, 221, 226, 244, 306, 310, 322, 368, 395
C. Special Populations/Topics
1. Adolescents and Children: 002, 006, 008,
012, 013, 026, 040, 049, 056, 058, 068, 074, 075, 076, 077, 078,
079, 081, 084, 087, 088, 089, 093, 096, 097, 098, 100, 102, 106,
108, 110, 114, 117, 138, 147, 148, 150, 151, 152, 155, 156, 159,
163, 164, 179, 180, 181, 187, 192, 197, 198, 199, 215, 216, 217,
220, 226, 227, 228, 240, 245, 250, 278, 279, 286, 287, 288, 292,
293, 295, 298, 307, 328, 341, 343, 344, 349, 350, 351, 352, 353,
354, 355, 356, 369, 374, 375, 391, 414
2. Severely Mentally Ill: 016, 017, 025, 039,
073, 082, 093, 115, 118, 130, 165, 174, 175, 183, 184, 190, 200,
208, 234, 262, 315, 317, 330, 362
3. Black/African Americans: 008, 013, 038, 039, 087, 088, 223,
384
4. Hispanic Americans: 004, 009, 062, 384, 387,
388
5. Native American/Alaskan Native: 323, 384,
408
6. Elderly: 024, 030, 051, 052, 053, 054, 064,
070, 092, 109, 137, 195, 196, 207, 222, 266, 274, 275, 302, 303,
311, 318, 335, 346
7. Women: 042, 044, 045, 046, 047, 057, 080,
093, 131, 154, 172, 185, 187, 212, 263, 326, 333, 399
8. Inmates/Prisoners: 185, 215, 216, 217, 364
9. Immigrants/Refugees: 107, 224, 225, 379
10. Men: 209
11. Veterans: 043, 219
12. Homeless: 270
13. Suicide: 176, 357
14. Religious/Spiritual: 060, 125, 164, 337,
390
III. Administrative Issues
A. Program Development: 011, 014, 055, 059,
117, 119, 162, 175, 236, 239, 245, 248, 254, 256, 257, 259, 260,
264, 280, 282, 291, 293, 294, 298, 320, 323, 325, 330, 332, 337,
338, 346, 349, 350, 351, 352, 353, 354, 355, 356, 362, 367, 372,
376, 395, 404, 405, 406, 409
B. Reviews and Overviews: 026, 031, 035, 105,
143, 236, 273, 276, 296, 298, 310, 321, 331, 383, 395, 396, 415
C. Needs Assessment: 005, 194, 272, 306, 331,
395, 410, 411
D. Health/Mental Health Linkage: 019, 034, 041,
048, 065, 066, 089, 113, 133, 203, 214, 230, 235, 258, 285, 298,
320, 367, 368, 385, 386, 395
E. Funding: 003, 015, 061, 065, 067, 093, 099,
146, 148, 162, 200, 202, 211, 213, 233, 237, 238, 241, 244, 249,
251, 252, 253, 255, 261, 271, 272, 280, 281, 302, 308, 313, 314,
315, 316, 317, 327, 331, 336, 338, 339, 340, 359, 361, 365, 367,
371, 372, 380, 400
IV. Issues and Models in Services Delivery:
018, 020, 021, 022, 037, 050, 059, 072, 075, 080, 100, 117, 123,
124, 126, 133, 136, 140, 142, 148, 157, 165, 170, 174, 179, 186,
198, 199, 201, 204, 205, 230, 232, 235, 249, 251, 252, 253, 254,
257, 267, 273, 276, 284, 290, 291, 295, 299, 300, 301, 306, 309,
310, 313, 314, 315, 316, 317, 320, 321, 322, 327, 331, 332, 334,
336, 337, 338, 340, 342, 346, 347, 348, 358, 360, 362, 367, 376,
377, 380, 385, 386, 390, 393, 394, 395, 396, 397, 398, 400, 402,
412
A. Alcohol and Other Drugs: 001, 008, 012, 013,
025, 026, 028, 029, 033, 036, 042, 044, 045, 046, 047, 049, 056,
062, 063, 068, 072, 078, 079, 083, 087, 088, 096, 097, 098, 101,
102, 106, 118, 129, 139, 145, 147, 148, 151, 152, 154, 156, 171,
179, 180, 181, 191, 192, 195, 198, 199, 210, 215, 227, 229, 245,
246, 248, 256, 262, 269, 279, 283, 286, 292, 293, 301, 304, 305,
306, 310, 323, 325, 349, 350, 351, 352, 353, 354, 355, 356, 360,
363, 364, 373, 389, 395, 398, 401, 413
B. Mental Disorder: 016, 019, 020, 030, 044,
045, 073, 128, 135, 139, 144, 152, 171, 172, 173, 189, 191, 214,
221, 226, 239, 245, 306, 310, 322, 368, 395
C. Special Populations/Topics
1. Adolescents and Children: 008, 012, 013,
026, 040, 049, 056, 058, 068, 074, 075, 076, 077, 078, 079, 081,
085, 087, 088, 089, 093, 097, 098, 099, 100, 102, 106, 110, 114,
119, 138, 151, 155, 156, 159, 163, 179, 180, 181, 187, 192, 197,
198, 199, 216, 217, 220, 226, 227, 228, 245, 248, 259, 260, 268,
278, 279, 286, 291, 292, 293, 298, 307, 325, 333, 338, 349, 350,
351, 352, 353, 354, 355, 356, 359, 363, 397, 413
2. Severely Mentally Ill: 016, 017, 019, 025,
039, 073, 082, 093, 115, 118, 130, 165, 174, 175, 183, 184, 190,
200, 208, 234, 236, 239, 313, 315, 316, 330, 362, 416
3. Black/African Americans: 008, 013, 038, 039,
087, 088, 223, 384
4. Hispanic Americans: 004, 009, 062, 223, 384,
387, 388
5. Native American/Alaskan Native: 223, 323,
384, 408
6. Elderly: 024, 030, 051, 052, 053, 054, 064,
070, 092, 109, 137, 195, 196, 207, 218, 222, 266, 274, 275, 302,
303, 311, 318, 335, 346, 347
7. Women: 042, 044, 045, 046, 047, 057, 080,
093, 131, 154, 172, 185, 188, 212, 263, 326, 333, 399
8. Inmates/Prisoners: 185, 215, 216, 217, 364
9. Immigrants/Refugees: 023, 107, 224, 225,
379
10. Veterans: 043, 121, 219, 319, 329
11. Homeless: 270
12. Suicide: 158, 176
13. Health/Mental Health Linkage: 019, 034,
041, 048, 065, 066, 089, 113, 133, 150, 203, 214, 230, 235, 258,
285, 299, 320, 367, 368, 385, 386
14. Telehealth/Tele-Mental Health: 020, 021,
022, 069, 090, 095, 110, 116, 142, 182, 193, 205, 247, 312, 345,
370, 377, 407, 416
V. Human Resources
A. Training: 063, 086, 096, 097, 167, 242, 243,
265, 276, 285, 327, 342, 393, 395, 400
B. Recruitment, Retention, Work Satisfaction:
111, 149, 166, 167, 178, 197, 242, 243, 276, 393, 395, 400
Annotations
- Abbey, A., Pilgrim, C., Hendrickson,
P. & Buresh, S. (2000). Evaluation of a family-based substance
abuse prevention program targeted for the middle school years.
Journal of Drug Education, 30(2), 213-228.
A family-based substance
abuse prevention program which emphasizes family cohesion, school
and peer attachment, self-esteem, and attitudes about adolescent
use of alcohol and tobacco was evaluated. Baseline surveys were
conducted with students and parents in four schools. Surveys
were re-administered one year later. Analyses of covariance
indicated that student participants, as compared to non-participants,
had higher family cohesion, less family fighting, greater school
attachment, higher self-esteem, and belief that alcohol should
be consumed at an older age at the one year follow-up. Strategies
for involving parents in prevention programs are discussed.
- Adelsheim, S., Carillo, K. & Coletta,
E. (2001). Developing school mental health in a rural State: The
New Mexico School Mental Health Initiative. Child & Adolescent
Psychiatric Clinics of North America, 10(1), 151-159.
This article discusses
New Mexico's School Mental Health Initiative, a creative and
innovative approach to developing the infrastructure to improve
access to services as well as technical assistance to even the
most isolated communities in this rural State. Topics covered
include (1) development of the State-level school mental health
infrastructure, (2) collaborative workgroups, (3) expanded school-based
mental health services, (4) training for teachers and other
school professionals, (5) school/community collaborative pilot
sites, (6) collaboration with parents and higher education and
(7) adequate underwriting for essential capacity building.
- Agency for Healthcare Research and Quality
(2000). Medical Expenditure Panel Survey: MEPS HC-011, 1996.
Preliminary Person Level Expenditure File. [Electronic data
file].
The 1996 Medical Expenditure
Panel Survey Household Component (MEPS HC) data collection instrument
is comprised of 44 separate sections that are divided according
to specific topics. Each section contains a series of Computer
Assisted Personal Interviewing (CAPI) computer screens with
questions, interviewing instructions, and skip patterns based
on the specific topics. During the household interview, the
1996 Showcards assist MEPS respondents by providing them with
paper copy versions of definitions or response categories
that pertain to specific questionnaire items throughout CAPI.
- Aguilar-Gaxiola, S.A., Zelezny, L., Garcia,
B., Edmondson, C., Alejo-Garcia, C. & Vega, W.A. (2002). Mental
health care for Latinos: Translating research into action: Reducing
disparities in mental health care for Mexican Americans. Psychiatric
Services, 53(12), 1563-1568.
This article describes
a case study in which epidemiologic research findings were translated
for multiple stakeholders and applied to reduce disparities
in mental health services for Mexican Americans in Fresno County,
California. The aim of this evidence-based process was to educate
the community and mobilize action, to translate research for
multiple stakeholders to inform practitioners and policy makers
about the need for improved mental health care for minorities,
and affect regional policy changes to increase and improve the
availability, accessibility and appropriateness of mental health
care for Mexican Americans.
- Ahr, P.R. & Halcomb, W.R. (1985).
State mental health directors' priorities for mental health care.
Hospital and Community Psychology, 36, 39-45.
This article provides useful information from
the survey conducted in the 1980s by the National Association
of State Mental Health Program Directors. The survey was sent
via mail to all State mental health directors to determine a
national priority for mental health care. The article summarizes
the findings and rank orders the most important issues. The
results hilights the top two priorities: providing services
and supporting programs in the community for the chronically
mentally ill.
- Akers, R. L. (1977). Deviant behavior:
A social learning approach (2nd ed.). Belmont, CA: Wadsworth
Press.
This book describes
deviant behavior in the context of social learning theory. Specifically,
Akers believed individuals learned aggressive acts through operant
conditioning. In this process, the aggression is acquired through
direct conditioning and modeling others' actions. He believes
that positive rewards and the avoidance of punishment reinforced
aggression.
- Akers, R. L. (1994). Criminological
Theories: Introduction and Evaluation. Los Angeles: Roxbury
Publishing.
Akers and Sellers review
and evaluate the principal criminological theories on the basis
of their empirical validity. For this fourth edition, they add
separate chapters on biological and psychological theories,
and expanded treatment of areas including peer groups, religious
factors, behavioral genetics and evolutionary theory, and restorative
justice. The book can be used as a text for courses in criminology,
juvenile delinquency, deviance, and criminal behavior.
- Albrecht, S.L., Amey, C. & Miller,
M.K. (1996). Patterns of substance abuse among rural black adolescents.
Journal of Drug Issues, 26, 751-781.
The authors used data
from the most recently available Monitoring the Future survey
to examine the role of race and residence in affecting substance
abuse patterns among high school students. Overall, rural vs.
urban residence differences were modest. Additionally, compared
with Whites, Blacks were much less likely to report drug use.
In the bivariate analysis, major correlates of use included
gender, family structure, religious attendance, GPA, and availability
of unearned income. In the multivariate analysis, race, family
structure, religious attendance, GPA, and unearned income remained
significant.
- Alegria, M., Canino, G., Rios, R., Vera,
M., Calderon, J. Rusch, D. & Ortega, A.N. (2002). Mental health
care for Latinos: Inequalities in use of specialty mental health
services among Latinos, African Americans, and non- Latino Whites.
Psychiatric Services, 53(12), 1547-1555.
The authors investigated
whether there are disparities in the rates of specialty mental
health care for Latinos and African Americans compared with
non-Latino Whites in the US. Data were analyzed from the 1990-1992
National Comorbidity Survey; with 8,098 English-speaking subjects
(Ss) aged 15-54 years. Ss included 695 Latinos, 987 African
Americans and 6,026 non-Latino Whites. Poor Latinos (family
income of less than $15,000) had lower access to specialty care
than poor non-Latino Whites. African Americans who were not
classified as poor were less likely to receive specialty care
than their White counterparts, even after adjustment for demographic
characteristics, insurance status and psychiatric morbidity.
- American Psychological Association (1995).
Caring for the rural community: An interdisciplinary curriculum.
Washington, D.C.: Rural Health Office
This curriculum offers
suggestions for psychologists and other mental health professionals
who are working in rural areas. While psychologists are often
the most highly trained mental health providers in rural areas,
their numbers are often small. This document was created to
increase effectiveness and sensitivity when providing mental
health services to rural residents.
- Amundson, B. (2001). America's rural
communities as crucibles for clinical reform: Establishing collaborative
care teams in rural communities. Families, Systems & Health,
19(1): 13-23.
This paper describes
the development of multidisciplinary health care teams ("Family
Health Teams"; FHTs) in rural communities. The successful
establishment of multidisciplinary teams through the participation
of existing community provider organizations and agencies is
described together with essential training and support systems
for their establishment. A number of positive results are described
and limiting factors are delineated. Providers and patients
are supportive of the contribution of local FHTs to the coordination
and management of patients with complex and multiple health
problems.
- Anderson, R. L. & Huffine, C. (2003).
Child & adolescent psychiatry: Use of community-based services
by rural adolescents with mental health and substance use disorders.
Psychiatric Services, 54, 1339-1341.
This column, by Dr.
Anderson from the College of Public Health at the University
of Iowa, deals with the conundrum of dual diagnosis among adolescents.
The problems Dr. Anderson describes are all the more daunting
because of the real-life issues of finding services in a rural
setting. Her paper, which represents an overview of mental health,
substance abuse, and public health, fits well with the column's
theme of collaboration and building systems of care.
- Angold, A., Erkanli, A., Farmer, E.M.Z,
Fairbank, J.A., Burns, B.J., Keeler, G. & Costello, E.J. (2002).
Psychiatric disorder, impairment, and service use in rural African
American and White youth. Archives of General Psychiatry,
59(10), 893-904.
The authors examined
the prevalence of DSM-IV psychiatric disorders and correlates
of mental health service use in rural African American and white
youth. Prevalence was similar in African American and white
youth. The only ethnic difference was an excess of depressive
disorders in white youth. White youth were more likely than
African American youth to use specialty mental health services,
but services provided by schools showed very little ethnic disparity.
The effect of children's symptoms on their parents was the strongest
correlate of specialty mental health care. In this rural sample,
African American and white youth were equally likely to have
psychiatric disorders, but African Americans were less likely
to use specialty mental health services. School services provided
care to the largest number of youths of both ethnic groups.
- Anthony, W., Rogers, E.S. & Farkas,
M. (2003). Research on evidence-based practices: Future Directions
in an Era of Recovery. Community Mental Health Journal,
39(2), 101-114.
Many mental health
systems are trying to promote the adoption of what has come
to be known as evidence-based practices while incorporating
a recovery vision into the services they provide. Unfortunately,
much of the existing, published research on evidence-based practices
was conceived without an understanding of the recovery vision
and/or implemented prior to the emergence of the recovery vision.
As result, evidence-based practice research that has been published
to date is deficient in speaking to a system being built on
a recovery philosophy and mission; these deficiencies are detailed,
and suggestions are advanced for new directions in evidence-based
practice research.
- Armstrong, S.C. & Took, K.J (1993).
Psychiatric managed care at a rural MEDDAC. Military Medicine,
158(11), 717-721.
Mental health costs
at General Leonard Wood Army Community Hospital (GLWACH) have
risen every year. Gateway to Care, a plan of coordinated managed
care conceived by Health Services Command, was initiated at
GLWACH to give the commander and providers more flexibility
to control costs and improve access to care. Five major changes
were made under GLWACH's mental health coordinated care project.
In the first full year of the project, CHAMPUS net costs were
reduced while more comprehensive care was provided to beneficiaries.
Cost reduction came primarily from dramatically increasing the
size and scope of outpatient care to reduce inpatient admissions.
- Ax, R.K., Fagan, T.J. & Holton, S.M.B.
(2003). Individuals with serious mental illnesses in prison: Rural
perspectives and issues. Stamm, B. Hudnall (Ed). Rural behavioral
health care: An interdisciplinary guide. (pp. 203-215). Washington,
D.C., US: American Psychological Association.
This article discusses
issues specific to the treatment of persons with serious mental
illness in rural prisons and jails. Telehealth technology has
particular relevance to treatment in these facilities. Ideally,
a range of community services would reduce the initial involvement
of individuals with serious mental illness in the criminal justice
system. If rehabilitation is once again to be a priority in
American prisons, mental health professionals must become reinvolved
in policymaking.
- Bachman, S.S., Drainoni, M., Strickler,
G., Dittmar, N.D. & Shon, S.P. (1996). Utilization of a State
hospital by urban and rural local mental health authorities. Administration
& Policy in Mental Health, 23(5), 439-454.
The authors gathered
information about clients admitted to a State hospital in Texas
from both a rural and an urban local mental health authority
(LMHA) to determine if there are differences in the populations
admitted to the hospital from these settings, and if the two
authorities utilized the State hospital differently. Results
suggest that despite several similarities, clients from the
urban setting had different types of encounters with the State
mental health hospital than did clients from the rural setting.
Urban clients were younger, and were more likely to be persons
of color, to have never married, and to have both admitting
and ongoing forensic commitments. Results also suggest that
LMHAs utilized the State hospital differently.
- Backlar, P. (1996). The three Rs: Roles,
Relationships, and Rules. Community Mental Health Journal,
32(5), 505-509.
This article discusses
boundary issues in community mental health programs. The difficulty
of defining boundaries in the therapeutic relationship is mentioned.
The variations and changes in delivery and practice of mental
health services are seen as one reason for the difficulty in
defining boundaries. Relationship boundaries are presented and
discussed as a unique problem for rural mental health providers.
- Badger, L., Robinson, H. & Farley,
T. (1999). Management of mental disorders in rural primary care:
A proposal for integrated psychosocial services. Journal of
Family Practice, 48(10), 813-818.
It is proposed that
in the best interest of physicians and their patients, fully
integrated psychosocial services in rural primary care settings
would reduce the burden of time-consuming mental health care,
conform to patient preference for immediate on-site care, reduce
nonproductive medical care use, and eliminate duplication of
effort by physicians and mental health professionals. The treatment
model that is proposed would provide multiple arenas for psychosocial
intervention-with the individual, the family, and the community-based
on the patient's self-identified needs.
- Baer, L., Cukor, P., Jenike, M.A., Leahy,
L., O'Laughlen, J. & Coyle, J.T. (1995). Pilot studies of
telemedicine for patients with obsessive-compulsive disorder.
American Journal of Psychiatry, 152(9), 1383-1385.
The authors assessed
thereliability of rating scales administered in person and over
video topatients with obsessive-compulsive disorder. Rating
scales forobsessive-compulsive, depressive, and anxiety symptoms
were administered inperson (N = 16) and by means of narrow-bandwidth
video transmission over one digital telephone line (N = 10).
Reliability was excellent in both conditions, and there was
no degradationin reliability when the assessment was conducted
over video.
- Baer, L., Elford, D.R. & Cukor, P.
(1997). Telepsychiatry at forty: What have we learned? Harvard
Review of Psychiatry, 5(1), 7-17.
This article includes
a literature review of articles describing video applications
of telemedicine for psychiatry (i.e., "telepsychiatry").
Although the conclusions of all studies reviewed recommended
the use of telepsychiatry, evidence currently available is insufficient
to suggest its widespread implementation. The authors called
for further studies in order to determine when and for what
age groups and conditions telepsychiatry is an effective way
to deliver psychiatric services, and whether it is cost-effective.
The authors recommended that telepsychiatry be employed on a
limited basis and be restricted to research settings and underserved
communities (where it may be the only option) until further
support is available.
- Baigent, M.F., Lloyd, C.J., Kavanagh,
S.J., Ben-Tovim, D.I., Yellowlees, P.M., Kalucy, R.S. & Bond,
M.J. (1997). Telepsychiatry: 'tele' yes, but what about the 'psychiatry'?
Journal of Telemedicine and Telecare, 3(1), 3-5.
The authors compared the interrater
reliability between two psychiatrists interviewing 63 subjects
in an observer/interviewer split configuration in a same-room
and telepsychiatry settings to investigate what might be lost
or gained during psychiatric evaluations that take place via
telepsychiatry. The measures used were the BPRS and interviewer
ratings from a semi-structured interview. Patients also rated
their experience. There were some clear differences between
the telepsychiatry and same-room evaluations. Despite these
variations, diagnoses were as reliably made by telepsychiatry.
Patient acceptance of telepsychiatry was high.
- Baker R. (1992). Psychosocial consequences
for tortured refugees seeking asylum and refugee status in Europe.
In M. Basoglu (Ed.), Torture and its consequences: Current
treatment approaches (pp. 83-101). Cambridge: Cambridge University
Press.
This chapter explores the "triple
trauma paradigm of the tortured refugee." It focuses on the
nature of refugee experience and its long-term psychosocial
implications; the particular impact of torture on refugees;
and the further trauma of the tortured refugee who seeks asylum
and refugee status in Western Europe, and in particular the
UK. It also discusses the present procedural and sociopolitical
barriers facing refugees in Europe and identifies three repeating
behavioral coping patterns. These are tentatively described
as negative, adaptive and constructive forms of survival in
the long term
- Bane, S.D. & Bull, C. (2001). Innovative
rural mental health service delivery for rural elders. Journal
of Applied Gerontology, 20(2), 230-240.
This article describes
rural mental-health service delivery models identified in a
1995 year-long search by the National Resource Center for Rural
Elderly for innovative programs. The leadership role of a single
individual, palatability to a rural elderly clientele, and flexibility
are found to be shared characteristics of successful direct
service models. Successful educationally oriented models are
characterized by ongoing involvement of community leaders, development
of specialized rurally specific curricula, and marketing that
enabled programs to survive beyond their initial demonstration
project funding. It is concluded that successful rural models
of mental health care must be based on information that is germane
to rural community life, specific training of mental health
professionals to work in rural settings, engagement of rural
elders as peer counselors in outreach, and strong linkages with
existing services and programs.
- Barry, K.L., Fleming, M.F., Greenley,
J.R., Kropp, S.; et al. (1996). Characteristics of persons with
severe mental illness and substance abuse in rural areas. Psychiatric
Services, 47, 88-90.
The authors examined
the prevalence of substance abuse problems (SBPs) among 1,551
clients with severe mental illness (ages 18-74) receiving care
in community based mental health programs in rural areas, and
developed a profile of characteristics to help case managers
identify Ss at risk for SBP. High rates of current SBPs were
found among the Ss. Those with a current SBP were younger than
those with no such history and had more symptoms of anger, trouble
with the law, and more suicidal threats than Ss in the other
two groups.
- Bazelon Center (2000). Relinquishing
Custody: the Tragic Result of Failure to Meet Children's Mental
Health Needs. http://www.bazelon.org
This book describes
the reality that many children in the United States are uninsured
or underinsured for mental health care. In addition, some children
who do have coverage often cannot access the care they need.
When private or public insurance plans will not pay, many parents
face a difficult dilemma: to get the mental health treatment
their child needs, they must turn their son or daughter over
to the child welfare or juvenile justice system. Frequently,
the child is then put in institutional care far from home. Studies
confirm that the practice of requiring custody relinquishment
occurs in at least half of the States, affecting as many as
20 percent of families of children with serious emotional disturbance.
- Becker, H.K., Agopian, M.W. & Yeh,
S. (1992). Impact evaluation of Drug Abuse Resistance Education
(DARE). Journal of Drug Education, 22, 283-291.
This assessed the impact
of the Drug Abuse Resistance Education (DARE) program and the
impact of the lack of such a program in approximately 3,000
fifth graders in California. DARE did not significantly change
the amount of drug use, which is minimal at the fifth-grade
level. In general, Ss receiving DARE during the study period
maintained existing levels of drug abuse and did not experiment
with new illicit substances. DARE was unable to prevent a broad
variety of substance use (e.g., cigarettes, alcohol, inhalants)
by the Ss. It is concluded that administrative decision making
must consider program effectiveness and curriculum time constraints.
- Becker, L., Barga, V., Sandberg, M.,
Stanley, M. & Clegg, D. (1999a). 1999 county profile on
risk and protection for substance abuse prevention planning in
Ferry County. Olympia, WA: Division of Alcohol and Substance
Abuse, Research and Data Analysis, Department of Social and Health
Services.
This publication offers
a comprehensive collection of county data related to substance
use and abuse, and the risk factors that predict substance use
among youth. Data are organized and presented within a risk
and protective factor framework used across the State by substance
abuse prevention planners. Data was collected from 1990-1997,
some for 1998 for the August 1999 issue. All county data was
summarized in the 2000 State report: "Profile on Risk and
Protection for Substance Abuse Prevention Planning in Washington
State." Available online: http://www1.dshs.wa.gov/rda/research/4/33/default.shtm
- Bedford, S., Melzer, D., Dening, T.
& Lawton, C. (1996). What becomes of people with dementia
referred to community psychogeriatric teams? International
Journal of Geriatric Psychiatry, 11(12), 1051-1056.
This monitors a broad
range of process and outcome indicators in joint health and
social service community psychogeriatric teams in a six-month
follow-up of new referrals to four teams in Cambridge, England.
Results showed that rates of referral to urban teams were double
of that of rural rates. The dementia group was significantly
more dependent and received more informal and formal care, and,
after six months, only 54 percent were alive and living outside
institutional care, compared to 79 percent in the functionally
ill group. Unmet needs were more common in the dementia group,
and related principally to residential care and care respite.
- Beeson, P.G., Britain, C., Howell, M.L.,
Kirwan, D. & Sawyer, D.A. (1998). Rural mental health at the
millennium. In R.W. Manderscheid & M.J. Henderson (Eds.),
Mental Health United States 1998 (pp. 82-97). Rockville,
MD: Center for Mental Health Services, SAMHSA, U.S. Department
of Health and Human Services.
This book summarizes
statistical information related to health care reform, including
managed care and policy considerations, lessons learned from
behavioral managed care approaches, and the status of managed
behavioral health care in America. It includes information on
epidemiological data, mental health in Medicare and Medicaid
programs, and mental health services in rural areas. This chapter
reviews trends in rural mental health up to the point of publication.
- Bergland, B. (1988). Rural mental health:
Report of the National Action Commission on the Mental Health
of Rural America. Journal of Rural Community Psychology,
9, 2-29.
The problems that rural Americans
have faced in the 1980s have taken serious emotional and psychological
tolls. To understand this phenomenon better, the National Mental
Health Association created the National Action Commission of
the Mental Health of Rural Americans. The commission's activities
have resulted in the 18 action recommendations discussed here.
- Biglan, A., Duncan, T., Irvine, A.B.,
Ary, D., Smolkowski, K. & James, L. (1997). A drug abuse prevention
strategy for rural America. In: Roberson, E.B.,Sloboda, Z., Boyd,
G.M., Beatty, L, and Kozel, N.J., eds. Rural Substance Abuse:
State of Knowledge and Issues. National Institute on Drug
Abuse; U.S. Department of Health and Human Services; National
Institutes of Health: NIH Publication No. 97-4177. Rockville,
MD.
This chapter describes
a range of issues involved in developing a drug abuse prevention
strategy for rural America, including a contextual definition
of "rural" and a number of risk or protective factors for youth
and adolescents (e.g., association with deviant peers). They
recommend a comprehensive approach that involves, schools, parents
and community agencies. Use of media outlets is considered very
helpful to getting prevention ideas and practices out.
- Bird, D.C., Lambert, D., Hartley, D.,
Beeson, P.G. & Coburn, A.F. (1998). Rural models for integrating
primary care and mental health services. Administration &
Policy in Mental Health, 25(3), 287-308.
This identified and
described models for integrating primary care and mental health
services in rural communities. Data were obtained from telephone
interviews with staff at rural primary care sites around the
country. Findings were based on the responses of 53 primary
care organizations in 22 States. Four integration models were
identified: diversification, linkage, referral, and enhancement,
which appeared to exist in combination, rather than as pure
types. The proposed analytic framework outlines aspects of integration
that are readily amenable to study.
- Bird, D. C., Dempsey, P. & Hartley,
D. (2001). Addressing mental health workforce needs in underserved
rural areas: Accomplishments and challenges. Portland, ME:
Maine Rural Health Research Center, Muskie Institute, University
of Southern Maine.
This paper reviews efforts to address
mental health workforce needs in underserved rural areas. In
obtaining information, the authors relied on a review of the
relevant literature, an analysis of Federal regulations and
data, and interviews with experts on mental health workforce
and rural mental health issues. Available online: http://muskie.usm.maine.edu/Publications/rural/wp23.pdf
- Blank, M.B., Chang, M.Y., Fox, J.C.,
Lawson, C.A. & Modlinski, J. (1996). Case manager follow-up
to failed appointments and subsequent service utilization. Community
Mental Health Journal, 32(1), 23-31.
This compares the relative
effectiveness of follow-up techniques, including letters, phone
calls, and home visits on subsequent service utilization. Follow-ups
did result in better compliance with the next appointment and
fewer emergency contacts. Letters were used most frequently
(21.3 percent), followed by phone calls (18.7 percent), and
then home visits (3.3 percent). Clients who received letters
or phone calls were more likely to attend the subsequent appointment
than those who received no follow-up. Although home visits were
utilized the least, due to cost and time restrictions, those
clients did not fail the next appointment and did not need later
emergency services.
- Blank, M.B., Fox, J.C., Hargrove, D.S.
& Turner, J.T. (1995). Critical issues in reforming rural
mental health service delivery. Community Mental Health Journal,
31(6), 511-524.
This discusses the
reforming of mental health service delivery system (MHSD) in
rural areas. It is argued that exclusive focus on health care
financing reform fails to include obstacles to effective MHSD
in rural areas, which should focus on issues of availability,
accessibility, acceptability and accountability, as well as
adequate diagnosis and treatment of mental disorders including
costs of health care. Rural MHSD may be reformed by outreach
treatment modalities and development of in-home services and
existing rural organizations should be consulted.
- Blank, M.B., Mahmood, M., Fox, J.C. &
Guterbock, T. (2002). Alternative mental health services: The
Role of the Black Church in the South. American Journal of
Public Health, 92(10), 1668-1672.
This article examined
the extent to which churches in the southern U.S. provide mental
health and social services to congregations, and investigated
any established linkages with formal systems of care. Results
show that black churches reported providing many more services
than did white churches, regardless of urban or rural location.
Few links between churches and formal provider systems were
found, regardless of location or racial composition.
- Blank, M.B., Tetrick, F.L, Brinkley,
D.F., Smith, H.O; et al. (1994). Racial matching and service utilization
among seriously mentally ill consumers in the rural south.
Community Mental Health Journal, 30(3), 271-281.
This examined racial
matching between case manager and client for 198 Caucasian and
479 African-American seriously mentally ill consumers served
through a rural community mental health center. Client-case
manager dyads were more likely to be of the same race than of
different races. Same-race dyads tended to have greater service
utilization as indicated by a greater number of made appointments
over the study period. An interaction was found for failed appointments
where African Americans in same-race dyads were more likely
to fail appointments, while Caucasian consumers in same-race
dyads were less likely to fail appointments.
- Blankenship, B.L., Eells, G.T., Carlozzi,
A.F., Perry, K. & Barnes, L.B. (1998). Adolescent client perceptions
and reactions to reframe and symptom prescription techniques.
Journal of Mental Health Counseling, 20(2), 172-182.
This article examined
the extent to which the level of reactance of adolescent clients
served as a mediating factor for counselor ratings and two paradoxical
intervention techniques: reframe and symptom prescription. Ss
were 86 adolescent clients (aged 13-20 years) in a rural mental
health center. Multivariate analysis of variance (MANOVA) results
revealed a significant interaction effect for level of reactance
and intervention type. Results suggest that the level of reactance
moderates perceptions of paradoxical interventions and also
affects counselor ratings and treatment acceptability ratings.
- Blount, Alexander (Ed) (1998). Integrated
primary care: The future of medical and mental health collaboration.
Integrated primary
care unifies medical and mental health care in a primary care
setting. This book explains this practice as the most fully
realized form of collaboration between medical and mental health
providers and presents several different models for its practical
application. Contributions to this book describe best practices
in integrated care and spend as much effort showing how to successfully
develop and implement these programs in different settings as
they do arguing for their usefulness.
- Booth, B.M. & McLaughlin, Y.S. (2000).
Barriers to and need for alcohol services for women in rural populations.
Alcoholism: Clinical & Experimental Research, 24(8),
1267-1275.
This reviews and summarizes
the research on alcohol problems and issues related to alcohol
services for rural women. The authors discuss the prevalence
of alcohol problems, help-seeking behavior and barriers to help-seeking
for rural women, and suggest directions for future research
for rural women with alcohol problems. The authors also address
key methodological issues in measuring rurality that must be
considered when designing research on rural women.
- Borowsky, S.J., Nelson, D.B., Nugent,
S.M., Bradley, J.L., Hamann, P.R., Stolee, C.J. & Rubins,
H.B. (2002). Characteristics of veterans using Veterans Affairs
community-based outpatient clinics. Journal of Health Care
for the Poor & Underserved, 13(3), 334-346.
This article examined
factors that may be related to veterans' desire to transfer
care from Veterans Affairs (VA)-based to community-based outpatient
clinics. Results show that 54 percent of Ss requested community-based
outpatient clinic care. Ss who were less satisfied with VA care
were more likely to request a transfer to a community clinic,
whereas health was not strongly associated with requests for
community-based outpatient clinic care. Ss who had more VA clinic
visits were less likely to request community-based outpatient
clinic care. The likelihood of requesting also varied across
VA facilities and by VA eligibility level.
- Boyd, M.R. & Hauenstein, E.J. (1997).
Psychiatric assessment and confirmation of dual disorders in rural
substance abusing women. Archives of Psychiatric Nursing,
11, 74-81.
This article describes
the difficulties encountered in screening and diagnosing dual
disorders in 34 rural women (aged 20-52 years) with an alcohol
or drug abuse disorder. All Ss were screened for depression
and alcohol abuse using the Center for Epidemiologic Studies
Depression Scale (CES-D) and the Michigan Alcohol Screening
Test (MAST), respectively. The National Institute of Mental
Health Diagnostic Interview Schedule (DIS), Version III was
used to determine the presence of a psychiatric disorder. Based
on the findings, it is concluded that incorporating the MAST
and CES-D into routine health screening may identify women who
need a more in-depth diagnostic interview for substance abuse
and depression.
- Boyd, M.R. (2000). Predicting substance
abuse and comorbidity in rural women. Archives of Psychiatric
Nursing, 14, 64-72.
The purpose of this
study was to identify risk factors that would predict substance
abuse and primary comorbid psychiatric disorders in rural women.
Discriminant function analysis identified two factors, alcohol
beliefs and threats of minor violence, which correctly identified
substance abusing women from nonsubstance abusing women, and
women with nonsubstance use psychiatric disorders from those
with no psychiatric disorder. These two functions correctly
classified 69 percent of women in the study.
- Boyd, M.R. & Mackey, M.C. (2000).
Alienation from self and others: The psychosocial problem of rural
alcoholic women. Archives of Psychiatric Nursing, 14, 134-141.
This examined women's
perspectives in becoming and being alcohol dependent. Using
grounded theory techniques, 14 adult black and white women receiving
treatment for alcohol addiction at rural substance abuse centers
participated in an intensive interview. Data analysis focused
on the identification of the basic psychosocial problem and
the process of becoming alcohol dependent. The results are presented
in two parts. This article focuses on the basic psychosocial
problem faced by women in becoming alcohol dependent.
- Boyd, M.R. & Mackey, M.C. (2000).
Running away to nowhere: Rural women's experiences of becoming
alcohol dependent. Archives of Psychiatric Nursing, 14(3),
142-149.
The purpose of this study was to
describe women's perspectives in becoming and being alcohol
dependent. Part 1, "Alienation From Self and Others,"
on page 134 in this issue of Archives, describes the study methods,
the sample, and the basic psychosocial problem faced by rural,
alcoholic women. Part 2, "Running Away to Nowhere,"
focuses on the basic psychosocial process that women used to
resolve the pain caused by their "Alienation From Self
and Others." The article concludes with suggestions for
nursing intervention.
- Bray, J.H., Enright, M.F., et al. (1997).
Collaboration with primary care physicians. Practicing psychology
in rural settings: Hospital privileges and collaborative care.
J. A. Morris. Washington, D.C., American Psychological Association.
This book covers the
history of psychology's advancement in hospital settings. Contributors
also describe successful collaborative models with physicians
and community mental health service providers and highlight
the challenges and rewards of working in rural areas. This volume
illustrates the greater quality of care that can be achieved
when psychologists are made part of an interdisciplinary health
care team-a model of care that will benefit both patient and
hospital.
- Britt, M.A. & Jachym, N.K. (1996).
Cigarette and alcohol use among fourth and fifth graders: Results
of a new survey. Journal of Alcohol & Drug Education,
43, 44-54.
This is a survey regarding
factors affecting the use of cigarettes, tobacco and alcohol
among fourth- and fifth-graders. Information was also collected
from teachers regarding the students' participation in the Drug
Abuse Resistance Education (DARE) program. While it was found
that experimentation rates for cigarette use was low, use increased
significantly from fourth to fifth grade. Use of alcohol was
much higher than cigarettes, and it also increased significantly
from fourth to fifth grade. Variables most strongly related
to cigarette use were both peer use of cigarettes and peer pressure
to smoke. Sibling use of cigarettes and a child's belief in
the harmfulness of smoking were weakly related to cigarette
use. Alcohol use was best predicted by peer use and peer pressure
to drink. Exposure to the DARE program showed no significant
relationship to either cigarette or alcohol use.
- Brown, H.N. & Herrick, C.A. (2002).
From the guest editors-Rural America: A call for nurses to address
mental health issues. Issues in Mental Health Nursing,
23(3), 183-189.
This article introduces
a special issue of Issues in Mental Health Nursing that examines
the mental health needs of special populations residing in rural
America. The authors believe that a new model for mental health
care delivery must be developed that is sensitive to the cultural
norms of the rural community, while addressing the needs of
the local population.
- Buckwalter, K. (1992). Mental and
social health of the rural elderly. Paper presented at the
Health and Aging in Rural America: A National Symposium, San Diego,
CA.
This provides an overview
of mental health services for older adults in America.
- Buckwalter, K.C., Abraham, I.L., Smith,
M. & Smullen, D.E. (1993). Nursing outreach to rural elderly
people who are mentally ill. Hospital & Community Psychiatry,
44(9), 821-823.
This describes two
nurse-led outreach models of care designed to provide services
to rural elderly residents who are mentally ill. One program
serves a relatively homogeneous elderly population in Iowa,
and the other serves a more culturally diverse white and minority
clientele in Virginia. Although the models differ in some important
respects, both are multidisciplinary, emphasize geographical
appropriateness of services, promote utilization of existing
community resources, coordinate diverse services and offer supportive
programs such as those for caregivers. Because the areas served
are demographic, economic and epidemiologic microcosms of the
rural Midwest and the rural Southeast, the programs are replicable
models of rural geriatric mental health care.
- Buckwalter, K., Smith, M. & Caston,
C. (1994). Mental and social health of the rural elderly. In R.
Coward, N. Bull, G. Kulkulka, and J. Gallager (Eds.), Health
services for rural elders. New York: Springer Publishing Co.
This provides an overview
of geriatric mental health services in rural America, including
an examination of the need for services, obstacles to delivering
those services, costs and service provider issues, regional
and cultural variations, factors that influence mental health
services to the rural elderly, and innovative programs that
have successfully reached the rural elderly population. Research,
policy, educational, and program development issues were also
identified
- Buckwalter, K. (1996). Interventions
for family caregivers of patients with Alzheimer's disease in
community-based settings: Items for consideration. International
Psychogeriatrics, 8(Suppl 1), 121-122.
This article discusses
the need for more rigorous evaluation research on existing services
for Alzheimer's disease (AD) in rural areas. The needs, resources,
and responses of rural caregivers, and the development, implementation,
and evaluation of innovative services where they do not exist
are of particular interest. Improved accessibility of diagnostic
services in rural areas (e.g., mobile or traveling diagnostic
clinics, coordinated by local health care professionals, with
referral to local resources for follow-up) is needed.
- Bull, C.N., Bane & S.D. (2001). Program
development and innovation. Journal of Applied Gerontology,
20(2), 184-194.
This article argues
that in the face of geographic isolation, economic deprivation,
the lack of a well-defined human infrastructure, and limited
economies of scale, innovation and flexibility must be the catchwords
to ensure the adequate development of mental health services
and programs in rural areas. The adaptation of urban models
is possible, especially if rural cultural values are taken into
account. The major components that should be part of a rural
model of mental health service delivery are reviewed, focusing
on the barriers of distance, individuals' privacy, the coordination
and use of the present but often weak human infrastructure,
and coordination between agencies and across political boundaries.
- Burke, M.R. (2002). School-based substance
abuse prevention: Political finger-pointing does not work. Federal
Probation, 66, 66-71.
This describes the poor evaluation
results of the Drug Abuse Resistance Education (D.A.R.E.) program,
the most widely implemented youth drug prevention program in
the United States, and recent speculation that adolescent drug
use may again be on the rise, has focused much attention on
substance abuse prevention programs administered in school settings.
It is not uncommon to find school-based prevention in the spotlight,
as schools have traditionally been the site of both alcohol
and drug education and the collection of adolescent substance
use data.
- Bushy, A. (1993). Rural women: Lifestyles
and health status. Nursing clinics of North America, 28(1),
187-197.
This article presented a "snapshot"
of the concerns and issues confronting America's rural women.
The discussion highlighted demographic, economic, and sociocultural
factors that impact the health status of women living in diverse
rural environments. Recommendations were proposed to assist
nurses to better address the health concerns of these women.
- Bussing, R., Zima, B.T. & Belin,
T.R. (1998). Differential access to care for children with ADHD
in special education programs. Psychiatric Services, 49(9),
1226-1229.
This Article examined
access to treatment in the general health, specialty mental
health, and informal care sectors for children with attention-deficit
hyperactivity disorder (ADHD). Special education of second to
fourth grade students in a Florida school district were screened
for ADHD. Children identified as high-risk and their parents
completed diagnostic and services assessment interviews. Female
gender, minority status and rural residence lowered the probability
of ADHD service use in the general health sector. Use of services
in the mental health and informal sectors was predicted by a
child's need for services.
- Campbell, C., Richie, S.D. & Hargrove,
D.S. (2003). Poverty and rural mental health. In: Stamm, B. Hudnall
(Ed). Rural behavioral health care: An interdisciplinary guide.
(pp. 41-51). Washington, D.C.: American Psychological Association.
The purpose of this
chapter is to explore the impact of poverty on the mental health
of rural Americans and on the type and quality of mental health
services that are available. The authors address prenatal care
and care of children first, followed by care of adolescents
and adults, and finally, the elderly. Several recommendations
within a systems paradigm are offered: utilize and strengthen
educational resources, increase people's options through vocational
counseling, strengthen and increase community-based mental health
resources, and tailor prevention and intervention activities
to specific communities.
- Campbell, C.D., Gordon, M.C. & Chandler,
A.A. (2002). Wide open spaces: Meeting mental health needs in
underserved rural areas. Journal of Psychology & Christianity,
21(4), 325-332.
The significant mental
health needs and inadequate psychological services of rural
communities are described. Many rural residents are highly religious
and most espouse Christian beliefs. These residents are likely
to turn to their pastors or primary care physicians for help
with mental, emotional, and relational problems. It is recommended
that Christian doctoral psychology programs collaborate with
local clergy, physicians, and teachers to more adequately meet
the mental health needs of rural residents.
- Caplan, C. & Brangan, N. (November
2004). Prescription Drug Spending and Coverage Among Rural
Medicare Beneficiaries in 2003. AARP Public Policy Institute:
Washington, D.C. Available online: http://www.aarp.org/ppi.
This report by the AARP Public Policy
Institute Data Digest identifies the projected out-of-pocket
spending on prescription drugs by age 65+ Medicare beneficiaries
living in rural areas in 2003. The report also highlights differences
in income and prescription drug coverage among rural and urban
beneficiaries.
- Castro, F.G. & Gutierres, S. (1997).
Drug and alcohol use among rural Mexican Americans. In: Roberson,
E.B., Sloboda, Z., Boyd, G.M., Beatty, L, and Kozel, N.J., eds.
Rural Substance Abuse: State of Knowledge and Issues. National
Institute on Drug Abuse; U.S. Department of Health and Human Services;
National Institutes of Health: NIH Publication No. 97-4177. Rockville,
MD.
This chapter reviews
literature related to the prevalence and incidence of substance
abuse in the Mexican American population. Comparisons are made
between those still living in Mexico, in either rural or urban
areas, and those living in either location in the United States.
It also discusses differences between adults and youth, males
and females, and issues associated with substance abuse, such
as cultural values and acculturation.
- Cellucci, T. & Vik, P. (2001). Training
for substance abuse treatment among psychologists in a rural State.
Professional Psychology - Research & Practice, 32,
248-252.
Licensed psychologists in Idaho were surveyed about
their training and provision of substance abuse services. Of
144 respondents (66 percent return rate), nearly all (89 percent)
had contact with substance abusers, yet most rated their graduate
training as inadequate preparation for practice. Rural psychologists
reported seeing the highest percentage of substance abusers.
Many psychologists limited their treatment to self-help group
referral. Continuing education offers the most immediate solution
and might be related to certification efforts. Pre-doctoral
training of generalist psychologists, especially in rural areas,
is advocated with an emphasis on integrated behavioral health
care.
- Chalifoux, Z., Neese, J., Buckwalter,
K., Litwak, E. & Abraham, I. (1996). Mental health services
for rural elderly: Innovative Service Strategies. Community
Mental Health Journal, 32(5), 463-480.
This article reviews
issues in planning and delivering mental health services to
rural dwelling elderly. Several strategies for improving the
development and delivery of geriatric mental health services
to rural areas are discussed. These include 1) increasing the
number and quality of rural mental health providers; 2) adapting
or developing diagnostic techniques to improve case identification
among rural elderly; 3) providing culturally sensitive mental
health services; strengthening informal and formal care linkages
in rural communities; 4) developing innovative service delivery
models building upon the strengths of rural settings and 5)
emphasizing fluidity as well as continuity in treatment models.
- Chandler, D., Meisel, J., Hu, T.W., McGowen,
M. & Madison, K. (1998). A capitated model for a cross-section
of severely mentally ill clients: Hospitalization. Community
Mental Health Journal, 34(1), 13-26.
This article examined
hospitalization outcomes in a three-year random assignment controlled
study of two capitated Integrated Service Agencies (ISAs) in
California. Using the flexibility of capitated funding, the
urban ISA reduced inpatient length of stay and days, but not
admissions. Elements of the capitated ISA model worked together
to produce clinically appropriate and less costly use of inpatient
services. At the rural ISA, admissions, but not cost, were reduced
substantially during the first to second years of the demonstration.
- Chandler, D., Meisel J., et al. (1996).
Client outcomes in a three-year controlled study of an integrated
service agency model. Psychiatric Services, 47(12), 1337-1343.
In a three-year controlled
study, two California integrated service agency (ISA) demonstration
programs that combined structural and program reforms were tested
to see if they produced improved outcomes for a cross-section
of 439 clients with severe and persistent mental illness (schizophrenia
and/or bipolar disorder). Compared with comparison Ss, ISA Ss
had less hospital care, greater workforce participation, fewer
group and institutional housing arrangements, less use of conservatorship,
greater social support, more leisure activity, less family burden
and greater client and family satisfaction. Ss in the urban
ISA program, but not those Ss in the rural ISA program, did
better than comparison Ss on measures of financial stability,
personal well-being and friendship. 72.6 percent of urban ISA
Ss participated in the work force during the three-year study
period, compared with 14.6 percent of comparison Ss. The capitated
costs for ISA Ss were much higher than the costs for services
used by comparison Ss.
- Chandler, D., Meisel, J., McGowen, M.,
Mintz, J., et al. (1996). Client outcomes in two model capitated
integrated service agencies. Psychiatric Services, 47(2),
175-180.
This examined client
outcomes for the first year of service at two integrated service
agencies (ISAs) for severely mentally ill persons, to study
the combined impact of assertive continuous treatment program,
and consolidated funding and capitation. Participation of the
demonstration Ss in the work force was higher than those in
the CGs. No significant differences were found in hospitalization
rates and costs, arrests, convictions, self-esteem, symptomatology,
substance abuse, homelessness, or quality of life. Both ISA
groups showed decreased use of hospital care and better treatment
outcomes than CGs. Urban ISA Ss participated in more leisure
and social activities than CG Ss.
- Chassin, L., Pillow, D.R., Curran, P.J.,
Molina, B.S.G & Barrera, M., Jr. (1993). Relations of parental
alcoholism to early adolescent substance use: A test of three
mediation mechanisms. Journal of Abnormal Psychology, 102(1),
3-19.
This test assessed
three hypothesized mediating mechanisms underlying the relation
between parental alcoholism and adolescent substance use. Results
suggested that parental alcoholism influenced adolescent substance
use through stress and negative affect pathways, through decreased
parental monitoring, and through increased temperamental emotionality.
Both negative affect and impaired parental monitoring were associated
with adolescents' membership in a peer network that supported
drug use behavior. The data did not support a link between parental
alcoholism and temperamental sociability.
- Chen, D.T., Blank, M.B. & Worrall,
B.B. (1999). Defending telepsychiatry: Comment. Psychiatric
Services, 50(2), 266.
The comments by A.
Werner and L. Anderson defend telepsychiatry use in rural environments,
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